I am 58 yrs.old and I have had seizures for 16 years. My first seizure was a grand mal which I had in Hilton Head, S.C. I was down there visiting my daughter in N.C. and we went there on a trip. When I went
home I went to a doctor in Columbus, Ohio that put me on so much medicine that I was like zombie. I felt terrible and I still had seizures. They were worse then they are now. They had me on alot of depression meds that I couldn't take and Neurontin made me gain about
30 lbs.
The doctor also tried cyberonics with me too , to see if that would help my partial complex seizures and it didnt work either. It
{the device would turn over inside my chest cavity after a time and I
decided to have it taken out. It did not wok like it should have with
me anyway. It was in for two years. I left the doctor in Columbus
because he up and left the hospital and I had to find another doctor.
I found another doctor within 30 miles of our home and he got me off all the meds I was on onto no more than absolutely have to take. I feel much better now. I still have seizures. I guess the doc told me they either come from stress or hormones and there is no other explanation.
Other than this I gave up driving becase I never know when my seiz. are going to happen. Sometimes I have an aura and sometimes they come on so fast that I just go out like that! If I am lucky and my hubby is there he helps me thru them and I'm fine as long as I'M
sitting down. Otherwise I will fall down like in a faint, maybe say
stupid things . I'll be out for maybe 10-15min and not know nothing about it. I've fallen flat on my back and my face and I end up with quite a few bruises.
. Getting used to having seizures waas very hard and still is. My
friends I had I don't have no more because they can't handle them.
I am in Friends of the Library group and they said oh don't have aseizure on us like they could no handle it. It made feel like I
didnt want to be there. I am still amember but it is hard sometimes.
I just feel I need to talk to other peole who will understand what I feel. Sorry for such a long letter. One thing I am thankful for is that Ihave such averypatient and loving husband. Linda
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