Linda,
 
 Where do you live in Ohio?  I grew up in Wayne county-- between Wooster and 
 Canton.  I live in IN now.
 
 I was fortunate to have a loving husband who had
 been an orderly in a hospital.  He is now ex but when I needed him he was 
 there when the girls called him.  He caught them what to do when I had
 my grand mal szs.
 
 What is scary for the family is that we are not our normal take charge 
 selves and are passed out-- which especially scares little children and 
 others.
 
 Personally I have never seen a sz except on TV but one of my daughters told 
 me later that she thought I was going to die.She would sit besideme on the 
 floor.  It is harder on the family than the person
 who has the szs.
 
 Millie
 
 ----- Original Message ----- 
 From: "Linda Hammond" <lindahammond91@
 To: <epilepsy@yahoogroup
 Sent: Wednesday, September 30, 2009 5:30 PM
 Subject: Re: [epilepsy] Understanding.
 
 Amy. You are not alone. The people don't understand that seizures and meds 
 afect your concentation and this one thing is probably why you are slower at 
 work. You can't help that. I have had seizures since I was
 in my early 40's. My first one was a grand mal and then I never had any more 
 for 3 years. I was on meds
 but they came back and I was on alot of meds that I shouldn't have been on. 
 The dr. said mine were from stress or hormones or both. No other explan. But 
 I still have seizures nomatter what I take. They arent as
 bad now as they were but I don't take anymore med. than I absolutely have to 
 take because I do not want to feel like azombie ever again like at first. I 
 have lost my driving priveledges because I willing gave them up.
 It has been hard and I hate being dependent on someone and losing friends 
 was hard for me too, but
 this group has given me someone to talk to who understands and it does help 
 alot. Your husband will have to learn patience too if he wants to help you. 
 Iam very fortunate to have a very loving hubby that gets me thru my seizures 
 very well. I have complex partial seiz. where I just like pass out sometimes 
 with an aura and others
 not. If standing I will fall flat on floor-I will fall like a d runk and be 
 out of it for about 10- 20 min. and then when I come to I don't remember 
 nothing. I will have seizure maybe 2-5 a month. I never know when.
 I fully understand what you are going thru. It is very hard get thru but we 
 are all here for you if you need anything at all. Ok? Linda I am 58 yrs old 
 now and live in Ohio.
 
 ____________
 From: amylentine amylentine@yahoo.
 To: epilepsy@yahoogroup
 Sent: Wednesday, September 30, 2009 2:21:06 PM
 Subject: [epilepsy] Understanding.
 
 I am currently trying to explain to my husband, family, and boss at work 
 about my seizures and why my attitude has changed so drastically. I have 
 only been dealing with this for about a month and a half now and I am 
 already tired of being asked a million times a day how do I feel?? I don't 
 even really know the answer to that question yet. My friends and family try 
 to understand or they pretend like it is not even happening.
 
 My husband is the biggest offender of this. Lately I am just so angry with 
 him, I had a seizure on Saturday and he acted like it did not even happen! I 
 am sure he just wants this to all go away so things can go back to the way 
 they were before but I have no control over that. When ever he trys to talk 
 to me I just get so angry at him for no reason.
 
 Work is trying to be understanding, since I can not drive they are letting 
 me work from home but they do not understand why my quality of work has 
 decressed and why I am not as interested in work right now.
 
 Just want a way to communicate with others what I am going through and what 
 they can do to help, because right now I have no idea.
 
 Thanks
 Amy
 
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