Tuesday, September 29, 2009

RE: [epilepsy] New to this

 

Hello Amy, You are not a complainer! Many people my 7 yr old little girl
included was on Keppra. Only for a few weeks. It made her mean, nasty and
unbearable and did not work. It has horrible side effects for many. Suggest
you read up on it so you can properly discuss it with your Neuro. There are
other drug options.

Pat D

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From: epilepsy@yahoogroups.com [mailto:epilepsy@yahoogroups.com] On Behalf
Of Amy Lentine
Sent: Tuesday, September 29, 2009 7:19 AM
To: epilepsy@yahoogroups.com
Subject: [epilepsy] New to this

Hi,

I was just currently diagnosed with seizures a month and a half ago. My EEG
came back normal but they did find a small lesion on my frontal lobe. I seem
to have seizures where I completely pass out and shiver/twitch or I have
seizures where I just kind of zone out for a few seconds then I either go
back to what I was doing or I just fall asleep. Currently the doctor has me
on Keppra XR (500 mg) at night and they did have me on 1,000mg but the side
effects were unbearable. I am still having some side effects on the 500 mg
and I am still having seizures. I know I am supposed to call my doctor to
let him know that I am still having seizures but he just makes me feel some
uncomfortable. So I guess the short of it is I am looking for any
recommendations for a good neuro near the flint area. Just want a doc who
does not treat me like I am a complainer.

Thanks
Amy

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[Non-text portions of this message have been removed]

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