Hi Amy,
I know what you mean. I started having seizures during high school but I did not know what they were I was not diagnosed until the year I turned 19 when I fell down some morning flat on the floor and one day on our way to Virginia with my husband and his brother I fell down a flight of cement stairs I was so freaked, he said wash up and we will check on whats happening to me after we get back we were gone for a week. When I was diagnosed my now exhusband said I was "retarded" he would not even talk to doctors or anyone else to try and understand this I had to deal with it on my own thankfully my mom was with me to help with all appointments and my pregnancies my ex wanted nothing to do with my epilepsy. Every man I had a long relationship say they are ok with my epilepsy but don't seem to truly understand what happens. One guy I was with for 7 years he was good and helpful to me till one year I got laid off lost my insurance and I needed my meds
instead of him helping me he went on a vacation, (this was the last thing I let him do I left him after that) and I lived with him, joint owned a house together. And at work they say they understand but they don't their way of dealing with me is letting me go.
DonnaS-NH
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From: amylentine <amylentine@yahoo.
To: epilepsy@yahoogroup
Sent: Wednesday, September 30, 2009 2:21:06 PM
Subject: [epilepsy] Understanding.
I am currently trying to explain to my husband, family, and boss at work about my seizures and why my attitude has changed so drastically. I have only been dealing with this for about a month and a half now and I am already tired of being asked a million times a day how do I feel?? I don't even really know the answer to that question yet. My friends and family try to understand or they pretend like it is not even happening.
My husband is the biggest offender of this. Lately I am just so angry with him, I had a seizure on Saturday and he acted like it did not even happen! I am sure he just wants this to all go away so things can go back to the way they were before but I have no control over that. When ever he trys to talk to me I just get so angry at him for no reason.
Work is trying to be understanding, since I can not drive they are letting me work from home but they do not understand why my quality of work has decressed and why I am not as interested in work right now.
Just want a way to communicate with others what I am going through and what they can do to help, because right now I have no idea.
Thanks
Amy
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