Monday, September 28, 2009

Re: [epilepsy] Re:

 

Millie,
Medic Alert is their name, hotline at 1-800-625-3780. On mine it says: Partial Complex Seizures, Epilepsy, Speech & Motor Delayed. It also has my ID number, If they contacted MedicAlert they would be told of medications, doctors and persons to contact etc.. As long as you own one of their products, you can change/alter their info. to be told at any time. Also, they keep a full record of all contacts made with them.   
Tim Baldwin
--- On Mon, 9/28/09, Millie Myers <mylmy@gogreencroft.net> wrote:

From: Millie Myers <mylmy@gogreencroft.net>
Subject: Re: [epilepsy] Re:
To: epilepsy@yahoogroups.com
Date: Monday, September 28, 2009, 7:49 PM

 

Tim ,
Who are they supposed to contact when they contact Medical Alert?
With mine they contact my daughters.  
Miilie 
-----Original Message-----
From: "TIMOTHY BALDWIN" <tbb1@prodigy. net>
Sent 9/28/2009 11:34:09 AM
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] Re:Donna,
I aIway wear two MedicAlert's, neck + l. wrist. They almost never, once in
18 years contacted Medic Alert, they don't pay attention to anything other
than getting to a hospital quickly.
Tim Baldwin 
--- On Sat, 9/26/09, Millie Myers <mylmy@gogreencroft. net> wrote:
From: Millie Myers <mylmy@gogreencroft. net>
Subject: Re: [epilepsy] Re:
To: epilepsy@yahoogroup s.com
Date: Saturday, September 26, 2009, 6:24 AM
 
Tim,
Have you ever gone to your police department and told them what you want do
ne
when you have a sz?  I don't know if that would help but you at least hav
e a one
to one contact with them and you have told them-- to at least look at your
medical
alert but more important that you get your meds.
What that tells me is that they are not educated about EP and it sounds lik
e they
need to be.
It sounds like you move around quite a bit.  I'd go to each and every pol
ice department
where ever you land and tell them.  Being taken to the hospital when you
don't need to
be or not given you meds to me is just plain ignorance.  But you may have
to educate them.
And who better than you who has had some bad experiences.  Don't go angry
but with
the attitude to help them and you.
Millie
\
-----Original Message-----
From: "Donna Marie" <moon_stargzr42@ yahoo.com>
Sent 9/25/2009 6:53:01 PM
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] Re: new memberHi Tim,
Question? When something like happens with police do they check for a medic
al id? I have not had this happen to me thankfully, but curious as to what
one does in a case like this?
DonnaS-NH
____________ _________ _________ __
From: Nancy Livesay <nlivesay73@ yahoo. com>
To: epilepsy@yahoogroup s.com
Sent: Friday, September 25, 2009 4:02:33 PM
Subject: Re: [epilepsy] Re: new member
 
Timothy,this is true
____________ _________ _________ __
From: TIMOTHY BALDWIN <tbb1@prodigy. net>
To: epilepsy@yahoogroup s.com
Sent: Friday, September 25, 2009 10:47:58 AM
Subject: Re: [epilepsy] Re: new member
 
Nancy, Donna and Everyone else,
In days when I drove, I had totaled all (a few) of my cars. All these cra
shes didn't involve any other cars, just me into wall or a tree. Police alw
ays listed them as through the accident was due to my falling asleep. If
a seizure occurs while walking in public or standing at bus stop. And a
police man is nearby, they first check to find the seizures cause. First
they decide that it isn't due to alcohol because they don't smell any sign
s of its use, then they want to decide its due to drug abuse. Then, if you
have medicine in your pocket that you were to use at the next dose. And the
y find it, you would arrested for possession of drugs. Then when in jail an
d the time of your next dose is passing, and you ask water to take your med
icine with. The police would respond, The drug you had are in police eviden
ce, and you can't touch it. They were then causing your therapeutic level o
f medicine in your blood to lower, it drops like a stock market (straight
down) but takes months or years to build back up to therapeutic level. ADA
is being avoided by the cops because you don't have any medicine to drink water with. They then tell you that there is no doctor on the premise and th
at you need to go to a hospital to see one. But how can you go when you are
locked up?
Good luck, better than mine,
Tim Baldwin
From: Nancy Livesay <nlivesay73@ yahoo. com>
Subject: Re: [epilepsy] Re: new member
To: epilepsy@yahoogroup s.com
Date: Friday, September 25, 2009, 9:28 AM
 
Donna,   I know as one time I talked funny and they though I was drun
k.  Nancy
____________ _________ _________ __
From: Donna Marie <moon_stargzr42@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Thursday, September 24, 2009 6:46:50 PM
Subject: Re: [epilepsy] Re: new member
 
I agree unless someone knows what to look for they assume the worst even th
o we can have tiny ones that go un-noticed which is what just happend to me
at my current job they thought i was sleeping. 
DonnaS-NH
____________ _________ _________ __
From: Nancy Livesay <nlivesay73@ yahoo. com>
To: epilepsy@yahoogroup s.com
Sent: Thursday, September 24, 2009 6:42:14 PM
Subject: Re: [epilepsy] Re: new member
 
Linda,  I think one of the reasons they do not believe me is because I do
not fall down as I only have the partical ones at this point.  They thin
k all seizures are falling down.  Nancy
____________ _________ _________ __
From: Nancy Livesay <nlivesay73@ yahoo. com>
To: epilepsy@yahoogroup s.com
Sent: Wednesday, September 23, 2009 4:52:20 PM
Subject: Re: [epilepsy] Re: new member
 
Linda,  I know what you mean about people as I had a friend and was very
close until I came back down with my seizures.  She does'nt know anything
about partical seizures just grand mal..  She doesn't believe that I hav
e them, just like my job when I got fired.  A lot of my friends think tha
t I am faking.  I said how can I be faking if the dr. has ran all kinds o
f test and saied that I have them.  They do not understand what they are.
  Nancy
 
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