Friday, February 28, 2014

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[epilepsy] RE: Question re working

 

Janet,

I suggest you look into getting your son a "service" dog.  A properly trained service dog will never leave your son when he's having a problem.  And your son needs to be wearing a medical bracelet.  The service dog will have the information on your son including his epilepsy, medical issues, your phone number and his address.
Paul

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[Healthy_Recipes_For_Diabetic_Friends] Cauliflower and Leek Soup - 18.8g Carbs, 3.3g Fiber, 10.7g Sugar

 

Cauliflower and Leek Soup - 18.8g Carbs, 3.3g Fiber, 10.7g Sugar

From: dLife

This delicious creamy vegetarian soup made with leeks, cauliflower, and chicken broth.
Prep Time: 15 min
Cook Time: 40 min
Difficulty: Intermediate
Servings: 4

2 fresh leeks
Cooking spray
2 tsp margarine
1 each medium garlic cloves
4 cups fresh cauliflower
3 cups low sodium chicken broth
1 cup Milk, evaporated, with add vitamin A, canned

Remove and discard roots and green tops from leeks. Wash thoroughly under running water to remove grit. Cut white portions into thin slices and set aside.

Coat a medium saucepan with cooking spray, and add margarine. Place over medium high heat until margarine melts.

Add leek and garlic, and cook 2 minutes or until leek is tender, stirring often.

Add cauliflower and broth and bring to a boil. Reduce heat, cover, and simmer 30 minutes.

Position knife blade in food processor bowl. Add cauliflower mixture and process until smooth.

Return mixture to saucepan.

Stir in milk, cook 3 to 4 minutes or until thoroughly heated, stirring occasionally.

Servings: 4
Nutrition per Serving: 169 Calories, 7g Total Fat, 3.2g Saturated Fat, 0.3g Unsaturated Fat, 18.8g Total Carbs, 3.3g Dietary Fiber, 10.7g Sugars, 724.3mg Potassium, 9.3g Protein, 538mg Sodium    

Dietary Exchanges: 1/2 Fat, 2 1/2 Vegetables, 1 Milk

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[epilepsy] RE: Question re working

 

Hi,
 
 I have 3 sons on the autism spectrum and one has uncontrolled seizures.  Are you on any lists for autism?  Are you connected with any local support groups for autism or seizures?  There could be many things available that you don't know about.  It could be training to ride public transportation to individuals with small business who are friendly to hiring the disabled part time.  It greatly helps to network.
 
  I would look to your state department of disability or rehabilitation.  Each state calls it something else.  Once you get linked up with them, it varies on what services they will offer depending on your state and on what counselor you get.  It helps to get connected with other parents and find out what is possible.  Always keep an email trail of what you send to the counselor and what they send to you!!  Keep track of phone calls, who you spoke to, and why the call was made. If you find yourself hitting a roadblock with a state agency, contact your state representative or state senator after you contacted the supervisor with an email question about the issue.  Give the supervisor a week to get back to you and then if you don't hear something, call the politician.  They can move mountains on this stuff and I can't stress it enough.  Now they can't get you what the agency doesn't do but they can get you what the agency does regularly do.  Lots of families fall through the cracks so you have to stay on top of things.
 
  I would suggest a medic alert or similar type bracelet that identifies your son's disabilities.  I would also contact your police departments and see if they have protocol for autism and or seizure.  Many departments do.  You can tell them about your son and they will put him in the system.  Different departments call this by different terms but there is sometimes forms for it. Once you have done that, if they have a call to your home, before they even get there, they pull up your address and find there is a person who may not respond as the average person.  This type of program is great for all kinds of disabilities ( hearing loss, dementia, Parkinson's, autism, etc).  It is better to have the information in place before an emergency than to have to do it when everyone is stressed out.  Also if the police encounter your son like what happened, they pull up his name and find out what could possibly be going on.
 
  Also make sure he ALWAYS carries a wallet.  Yeah I know getting your kid to do things is an on going process but hang in there.  Every time you go to leave the house, you ask, 'have your wallet?'  In his wallet, have a card about IN CASE OF EMERGENCY with information about his seizures and where to call.  Just have a short concise few lines about what happens during and after.  Keep in mind the most unmedical person could be reading it.  You could have a friend read it and ask if what they think it means. Also if he has a cell phone, many carriers have programs to track the phone.  I have it set up to let me know when my son gets to or leaves the train station and the same for his place of training/work.  Now he has to have his phone on but it is great peace of mind.  I can also go to a website with the cell phone company and see where he is.  We use Verizon and it is 10 dollars a month.  He doesn't have a super all the bells and whistles smart phone either so check it out.
 
  Please feel free to email me if you like.  nedra3boysi@sbcglobal.net

In Christ,

Nedra 2 of 5,

Borg Mom Resistance is Futile in finding what works for my kids with God's help

Nick, 28, AS, ADHD, + CAPD, grad student in computer security

Ben, 25, AS + ADHD, grad student in finance and working as financial planner

Matt, 22, very AS, ADHD,+ Complex Partial Seizures of the Temporo- Limbic region with VNS, at nonPareil Institute- non-profit for spectrum people, making phone apps and computer games and a part time instructor

God knew there would be children with Autism - and in honor of them He made the planets in the solar system spin round and round, round and round.....

Author, unknown

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Re: [epilepsy] Re: Question re working

 

Do they have many szs?  What kind?
 
Millie
 
 
 
 
 
----- Original Message -----
Sent: Friday, February 28, 2014 10:18 AM
Subject: [epilepsy] Re: Question re working

 

I meant to say how do you begin to let someone with epilepsy out of your sight. I know that this isn't an autism forum. I am just trying to deal with one issue at a time. And I was hoping you could just help me with how to deal with the epilepsy issue in the community. Then I can figure out the autism part later.

Thank you
Jan

Sent from my iPhone

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[epilepsy] RE: Question re working

 

Obviously we only know what you say here, but I'm just wondering if it will be difficult to separate the two, so therefore treat the issue holistically. I guess though you are just trying to find a way through.
I don't really have any suggestions, but just wondering what sort of support do you get/does he get from organisations or maybe charities to help you through?
Robert

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[epilepsy] Re: Question re working

 

I meant to say how do you begin to let someone with epilepsy out of your sight. I know that this isn't an autism forum. I am just trying to deal with one issue at a time. And I was hoping you could just help me with how to deal with the epilepsy issue in the community. Then I can figure out the autism part later.

Thank you
Jan

Sent from my iPhone

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Thursday, February 27, 2014

Re: [epilepsy] Question re working

 

My only idea is to contact the vocational rehabilitation department for your state.

On Feb 27, 2014 12:15 PM, "Janet Formichella" <im22tired@yahoo.com> wrote:
 

I have a question. I have a son with moderate functioning autism and epilepsy. He was on the EMU for two weeks last year and they discovered that his seizures are multifocal both sides if the brain so an operation won't help. While he was in the EMU his heart stopped for 10 seconds and then restarted and he also had a ventricular tachycardia in his sleep. He is 17. I have lurked on the list for several years off and on.
He is a senior in high school and as part of his education he goes into the community to work in various stores and restaurants three times a week to get work experience. The school supplies an nurse to accompany him in the event that he has seizures while working. The nurse has been helpful in those situations.
Now that you have some background I guess my first question is how I go about letting him try to get a part time job eventually. I first want to look at him as a young man with epilepsy and then make further adjustments as a young man with autism.
How do I let him go into a work environment alone. How do you ensure his safety in the community when I know he will have seizures and may be on the ground alone for considerable amounts of time. And his post ictal period can last as long as an hour? Last year, without my knowledge he left the house and took a bike ride in our neighborhood. He had a seizure on the bike and while post ictal walked into the nearest house. He was unable to speak to them - or the police who were summoned- for about 30 minutes. Then the police called us. The people in the house did not know him. They only noticed he was wearing a heart monitor at the time. I am concerned about something like this happening when he gets a little older and someone could shoot him as an intruder. How do you begin to allow someone with autism out of your sight?

Thank you,
Janet

Sent from my iPhone

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[epilepsy] Question re working

 

I have a question. I have a son with moderate functioning autism and epilepsy. He was on the EMU for two weeks last year and they discovered that his seizures are multifocal both sides if the brain so an operation won't help. While he was in the EMU his heart stopped for 10 seconds and then restarted and he also had a ventricular tachycardia in his sleep. He is 17. I have lurked on the list for several years off and on.
He is a senior in high school and as part of his education he goes into the community to work in various stores and restaurants three times a week to get work experience. The school supplies an nurse to accompany him in the event that he has seizures while working. The nurse has been helpful in those situations.
Now that you have some background I guess my first question is how I go about letting him try to get a part time job eventually. I first want to look at him as a young man with epilepsy and then make further adjustments as a young man with autism.
How do I let him go into a work environment alone. How do you ensure his safety in the community when I know he will have seizures and may be on the ground alone for considerable amounts of time. And his post ictal period can last as long as an hour? Last year, without my knowledge he left the house and took a bike ride in our neighborhood. He had a seizure on the bike and while post ictal walked into the nearest house. He was unable to speak to them - or the police who were summoned- for about 30 minutes. Then the police called us. The people in the house did not know him. They only noticed he was wearing a heart monitor at the time. I am concerned about something like this happening when he gets a little older and someone could shoot him as an intruder. How do you begin to allow someone with autism out of your sight?

Thank you,
Janet

Sent from my iPhone

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Re: [epilepsy] Re: Ho Everyone

 

I'm still here as well!  With me I had to increase my Onfi to 10mg but I'm still on Lamictal, Keppra, Trileptal, and Depakote ER

Sent from my iPod

On Feb 27, 2014, at 12:05 PM, "Sara cornelius" <sacornelius@msn.com> wrote:

 

I'm still here too. I have had to increase my Ativan for seizures. I still take my Lamictal.  Other than that things aren't too bad right now. 

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[epilepsy] Re: Ho Everyone

 

I'm still here too. I have had to increase my Ativan for seizures. I still take my Lamictal.  Other than that things aren't too bad right now. 

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[Healthy_Recipes_For_Diabetic_Friends] Mediterranean Chicken Soup - 11.9g Carbs, 2.5g Fiber, 3.1g Sugar

 

Mediterranean Chicken Soup - 11.9g Carbs, 2.5g Fiber, 3.1g Sugar

From: SPARK_RECIPES
This homemade soup is ready in 20 minutes but tastes like it cooked all day. We won't tell if you don't!

Tips:
Make the soup vegetarian by swapping the chicken for a can of rinsed and drained chickpeas.
Stirring a spoonful of hummus into the soup makes it rich and creamy.

Prep: 2 min
Cook: 15 min
Servings: 4

1 (11.8-oz) bag Mediterranean blend vegetables (frozen)
1 tsp olive oil
1/2 medium onion, chopped
1 tsp Italian herbs
12 oz cooked chicken breast, shredded or chopped
1 (14.5-oz can) no salt added tomatoes
2 cups homemade or no salt added chicken broth
1 Tbsp PLUS 1 tsp prepared pesto or hummus

Prepare the Mediterranean vegetables according to the package directions.

Meanwhile, place a large pot over medium heat. Add the oil and, once hot, add the onion and the herbs. Cook, stirring often, for five minutes.

Once the veggies are ready, add them to the pot and raise the heat to medium-high. Add the cooked chicken, tomatoes, and broth and cook for five minutes.

Ladle into bowls and top each serving with a teaspoon of pesto or hummus.

Servings: 4
Serving Size: about 2 cups
Nutrition per Serving: 196.3 Calories, 6g Total Fat, 1.3g Saturated Fat, 0.6g Polyunsaturated Fat, 1.4g Monounsaturated Fat, 54.4mg Cholesterol, 122.3mg Sodium, 452.4mg Potassium, 11.9g Total Carbs, 2.5g Dietary Fiber, 3.1g Sugars, 22.6g Protein

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Wednesday, February 26, 2014

Re: [epilepsy] I will keep the group open

 

Hi I'm still here too. Only able to get online when the computer cooperates. I just saw my neurologist Feb. 5th and he said I have about 2 years of battery life in my stimulator. The last couple of years I've only had 3 seizures each year. So the stimulator battery has lasted longer than expected. Hope everyone else is doing fine. I'll check in when I can.


Pastor Joseph



From: Linda Hammond
To: epilepsy@yahoogroups.com
Sent: Wednesday, February 26, 2014 9:17 AM
Subject: Re: [epilepsy] I will keep the group open



Hi, I am still here. Linda Hammond. Just haven't heard much from the group either until here lately. I just thought it folded up.Linda


On Tuesday, February 25, 2014 11:29 AM, Millie Myers wrote:
 

Thanks Jewel
 
Millie


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[Healthy_Recipes_For_Diabetic_Friends] Kale with Caramelized Onion - 16g Carbs, 2g Fiber OR 6.7g Carbs, 2.5g Fiber, 2.1g Sugar

 

Kale with Caramelized Onion - 16g Carbs, 2g Fiber OR 6.7g Carbs, 2.5g Fiber, 2.1g Sugar

{See Nutrition for option to omit salt and honey}
From: www.health.com

Good to Know
On its own, kale won't win any flavor awards, but this recipe turns the calcium- and fiber-rich vegetable into a dish that will tickle your taste buds. The caramelized onions bring out the sweet, earthy flavor of the kale, and create a side dish with under 100 calories.
Prep: 4 min
Cook: 16 min

2 tsp olive oil
1 1/2 cups chopped red onion
2 tsp honey
3/4 tsp salt
1/4 tsp pepper
1 (10-oz) bag prewashed chopped kale or spinach

1. Heat oil in a large Dutch oven over medium-high heat. Add onion; saute 7 minutes or until golden. Add honey, salt, and pepper; cook 2 minutes.

2. Add kale; cover, reduce heat to medium-low, and cook 6 minutes or just until kale is tender, stirring after 3 minutes.

Servings: 4
Serving size: 1 cup
Nutrition per Serving: 92 Calories, 3g Fat, 0g Saturated Fat, 2g Monounsaturated Fat, 0g Polyunsaturated Fat, 0mg Cholesterol, 3g Protein, 16g Carbs, 2g Fiber, 1mg Iron, 243mg Sodium, 110mg Calcium

Nutrition From: www.caloriecount.about.com
Without honey or salt!
Servings: 4
Serving size: 1 cup
Serving Size: 117 g
Nutrition per Serving: 55 Calories, 23 Calories from Fat, 2.6g Total Fat, 0mg Cholesterol, 56mg Sodium, 460mg Potassium, 6.7g Total Carbs, 2.5g Dietary Fiber, 2.1g Sugars, 2.3g Protein
Vitamin A 133% - Vitamin C 44% - Calcium 7% - Iron 11%
Nutrition Grade: A

Good points:
    No cholesterol
    High in calcium
    High in dietary fiber
    High in iron
    Very high in manganese
    Very high in magnesium
    Very high in potassium
    High in riboflavin
    Very high in vitamin A
    Very high in vitamin B6
    Very high in vitamin C

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