Thanks Terri,
Unfortunately there isn't any more I can say to keep you posted. He is someone I work with, almost-non verbal,and it is the 'higher ups' that decide what information we need to know. Other information that we (the others with my same position) want to know has to come from elsewhere and talked about the VNS in general, not specific people or situations.
What is CBS?
--- In epilepsy@yahoogroups.com, Terri Sutten <suttenterri@...> wrote:
>
> No it will not hurt him at all even if he's not about to have sz. I have the CBS and all family members have had to use the magnet. Talk to your friend about getting a service dog too. I don't get auras also and my sd or medical alert was trained for me. She detects the sz 5-10 min before it happens. Please keep us posted.
> Terri
>
> Sent from my iPhone
>
> On Sep 4, 2010, at 5:59 PM, "UhuraC" <sacornelius@...> wrote:
>
> > I know someone who just got one. I am not able to give details but if I see him needing me to use the magnet (he won't be able to tell me, it is basically watching for behavior change to let me know), what is your advice?
> >
> > What would happen if I used it but he didn't need it? If I judged wrong in deciding, is it better to wait for a seizure and then use it or watch for behavior changes to see if an aura is happening (If I do that and use it but it turns out he doesn't need it, will he be hurt by unecessary use?
> >
> > Thanks.
> >
> >
>
>
> [Non-text portions of this message have been removed]
>
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