I am not a specialist on this one but have had the odd one :) I worked with a person that did not speak and
they would automatically sit down. There could be a look of distress or the eyes look different possibly a
glossy look to them. I had to learn how to go by the way they looked if a smile, everything was ok, if the
more distressed look then possibly a seizure was on it's way.
As for the seizure itself from the small amount I have had as you describe there may be a bit of tension in
the muscles after (sorry as use to the GM). Wanted to tell you though too..with the non verbal part, do not
give up on this. The person I was speaking about would get extremely happy and start clapping his hands. It
was just an automatic for us to take his hands with him and being happy too say 'patty cake'. This may take a
long time (years) but if done over and over it eventually came out that this person said 'atty cake'. Talk
about a heart attack from the rest around him. Do not give up on her...hey not speaking or think delayed a
bit maybe...smarter than you think.
Should these seizures she is having now just be absence she could possibly grow out of them also. Do a search
on the net for the different kinds and learn as much as you can.
Make a diary of what appears to trigger these petit mal she is having now and see if a pattern is there also.
A diary of everything would be good to have for the Dr. to give a better treatment for.
Best of luck to you ....write any time
Julie
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "thezfamily04" <thezfamily04@msn.com>
To: <epilepsy@yahoogroups.com>
Sent: Saturday, September 25, 2010 7:20 PM
Subject: [epilepsy] Complex Partial Seizures
Hi, My daughter who is 7 is extremely developmentlly delayed, and des not speak. She had a right functional
hemi at 8 months old due to life threatening seizures Infantile Spasms. She had the right side disconnected,
so we thought it was all disconnected. The seizures have now crossed over to the left. She is having what
appears to be Absence seizures, where she goes in and out very quickly. She had an EEG to confirm that these
"spacey episodes" were infact seizure activity.
So our next step is to go to UCLA where she had her surgery and to get more intensive testing.
Since my daughter is non verbal, I am wondering if anyone here has these kinds of seizures and what you feel
like before and after. Do you have headachs, or feel pain, or lost or dizzy?? I just really need a better idea
of what she feels to help her.
Thank you!
Victoria
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