[epilepsy] Complex Partial Seizures

 

Hi, My daughter who is 7 is extremely developmentlly delayed, and des not speak. She had a right functional hemi at 8 months old due to life threatening seizures Infantile Spasms. She had the right side disconnected, so we thought it was all disconnected. The seizures have now crossed over to the left. She is having what appears to be Absence seizures, where she goes in and out very quickly. She had an EEG to confirm that these "spacey episodes" were infact seizure activity.

So our next step is to go to UCLA where she had her surgery and to get more intensive testing.

Since my daughter is non verbal, I am wondering if anyone here has these kinds of seizures and what you feel like before and after. Do you have headachs, or feel pain, or lost or dizzy?? I just really need a better idea of what she feels to help her.

Thank you!
Victoria

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