First, I a, sorry you are still battling this.
Absence seizures, also known as simple partial seizures, and complex
partial seizures are not the same thing. You stated she has absence
seizures, which most likely is something she does not feel coming, and
after she most likely only feels the sense of missing moments in time.
She might also experience odd smells or tastes that have no cause.
Complex parital seizures are a whole different thing. Not everyone, but
some, have auras before hand. I rarely had an aura, but the ones I did
have were a "sick to my stomach" feeling and only happened with some of
my worst ones. After I felt the same sense of losing time since complex
partials happen when unconscious though functioning at some capacity.
Complex partials can be anything from a dizzy disorienting experience,
to doing strange things called automations. For many these can include
bicycle movements with feet, walking aimlessly, repeating words,
fiddling with things including clothing, waving things around, and other
out of sorts things. I once stood on a stool int he middle of room full
of people, grabbed my mother in laws steering wheel while she was
driving twice. Complex partial seizures are much more dangerous then
absence, or simple partial, seizures because of the accompanying
behavior that goes with them.
I certainly hope you get some answers when you go to UCLA. I had my
right temporal lobectomy over 2 years ago, and though my seizures have
reduced form up to 12 a day to one a week or so, I am still on meds.
kelly
On 9/25/2010 7:20 PM, thezfamily04 wrote:
> Hi, My daughter who is 7 is extremely developmentlly delayed, and des not speak. She had a right functional hemi at 8 months old due to life threatening seizures Infantile Spasms. She had the right side disconnected, so we thought it was all disconnected. The seizures have now crossed over to the left. She is having what appears to be Absence seizures, where she goes in and out very quickly. She had an EEG to confirm that these "spacey episodes" were infact seizure activity.
>
> So our next step is to go to UCLA where she had her surgery and to get more intensive testing.
>
> Since my daughter is non verbal, I am wondering if anyone here has these kinds of seizures and what you feel like before and after. Do you have headachs, or feel pain, or lost or dizzy?? I just really need a better idea of what she feels to help her.
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