Thursday, September 3, 2009

Re: [epilepsy] EMU Study

 

Hi, this is Sandy.
My heart goes out to you.. First of all don't upset yourself over it. That will just make things worse. Odd thoughts I hope are helpful are:
Educate those by you, be open to those who would support and understand you so if you have a seizure, they can tell you about it if you aren't aware you have one. A simple test can be entering something new to see you can react as in a seizure, brain doesn't take in new info and there is a confusion after.. with a sleep disruption, it can appear like a seizure but there can be an altered way to carry on a conversation.
See about getting another head piece. My insurance allows 2x a year. Hope you are getting your CPAP supplies whether you need them or not so you have something in case of breakage and are made of easy to break plastic. We are coming into colder months. There is an over the head and nose, it is not a full face mask so maybe that would work with those leads.. ugh..
Do know it is not wise to judge pregnancy by whether you have 'a cycle' or not. That is how some have children without knowing they are pregnant. Some women don't show either.. so find out for sure..watch your cycle pattern, ovulation.. stinky discharge would be missing..
and it would be a good idea to more closely follow and the diabetes.
It is sad to be single without kids.. I'm over 50 and same..
About the seizures, are you journaling? Maybe something is different in the past month, look over what you have eaten besides the sleep. Not everything is visible. Be aware of your surroundings and ask questions. People treat lawns with chemicals for example.
Google/search, ask pharmacists ..yours to better know your meds. No form of EEG is completely accurate I think either.. if you become pregnant, have your plans in line.

--- On Thu, 9/3/09, amazonfemale77 <amazonfemale77@yahoo.com> wrote:
I have new onset seizures that have begun August 2008. Since then I have had 4 more seizures. The last being very baffling to my nuerologist because of the lamitiacal level I had. Now he has ordered me to go have video 24 hour monitoring for 5 days. The kicker is that the EMU Nuerologist doe NOT want me to wein off my medication. How am I going to solve this if I don't have seizure? I am also a diabetic I take insulin and glucophage, have depression (on prozac)and I have sleep apnea and sleep with a CPAP machine. All of this at the age of 32. Single and no kids-yet. There is a possibility that I could be pregnant as well. I have not gotten my cycle yet. About four days late. Please help!
 

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