Saturday, September 26, 2009

[epilepsy] During a Seizure

 

Hi Tammy,

My seizures are basically identical to yours.

I feel them coming on, but when I am actually having the seizure I am at a total blank.
People who've witnessed me having them all say approximately the exact same thing.  I am gritting my teeth, mumbling - not making any sense, staring, and maybe walking away from them.

Sometimes I set up my PC cams hoping that if I have a seizure I'll see and hear it with my own eyes, but that never happens.

My worst seizure was a grand mal, when I was driving my car coming home from work at 4:00 am.
I was very tired after working since 8am the previous morning, and had very few hours of sleep for the 2 days prior to that.  I pulled into the parking lot of a supermarket, felt one coming on, so I immediately headed for a parking spot. 

The next thing I found myself surrounded with police, an ambulance and a crowd of people.
Then I realized that I crashed right into the front of the store!!.  Luckily I had an old 78 Lincoln, so there was some protection there which saved my life.  Needless to say, I don't have a driver's license since then.  Honestly. I feel I am better off without it and the pedestrians are safer also.

There were two major instances when it happened at work (btw, I'am a stagehand).

One was when my partner and I were cutting up some wood.  He had the saw and I was steadying the end for him.  About five minutes into the job, I find myself out on the loading dock!  I hadn't felt the seizure coming on at all!  I quickly ran back inside to see if he was OK, and he asked me if I was ok.  I explained to him what happened.

Another time was when I was climbing up an 18 foot ladder.  Just as I was reaching the top, one of my friends noticed that i looked like I was going to have a seizure and yelled at me to get down.  If he hadn't done that, I don't think I would've realized it until it was too late.

One more thing...  For my doctor (and myself) I keep a detailed record on my pc using a spreadsheet where I log every seizure that I have.  Date, time, location, what I was doing, etc..  maybe 10 columns of info.  A strange thing is that during a seizure I am able to access the file, go to the next row, update it and save it!  A few hours later I won't realize that I had done it already!  Hard to believe!.. 

At this time I have my second application in for Disability, so I am very concerned.

Take care,
Vinnie

--- On Thu, 9/10/09, uniquepnk tds.net <Uniquepnk@tds.net> wrote:

From: uniquepnk tds.net <Uniquepnk@tds.net>
Subject: Re: [epilepsy] Hi everyone have a few questions
To: epilepsy@yahoogroups.com
Date: Thursday, September 10, 2009, 10:20 PM

 

Erin,

I have complex partial seizures. I don't know much of what I do when I have

one. My botfriend tells me I say things during the seizures, try to move

around and grit my teeth. I know I have had them, but they last a few

minutes and after I have sat for a few minutes afterwards I go back to what

I was doing. I don't know much about the way the other kind are, but that is

what the neurologist said my type of seizure was. Take care.

Tammy

On Thu, Sep 10, 2009 at 1:47 PM, erin nichole <lazer63@yahoo. com> wrote:

>

>

> Hi there its erin I am very confused about my seizures.Ok first of all I

> have been waking up screaming I couldn't tell u what it was about.Could that

> be related?I also want to know how I can identify my seizures.My seizures

> are mainly grand mal,however I don't know what the symptoms would be of

> other kind of seizures.If this has been talked about sorry its just my

> computer at home is down so I come to the library when I can

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

[Non-text portions of this message have been removed]











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