Linda,
Welcome to the group. I am 40 now and have seizures since I was a baby, as
the result of a head injury. I have complex partial seizures.It is good that
you have your husband to watch out for you. I know it is hard to make it
without somebody to watch out for you.I have had one surgery, which helped a
lot, but stress and hormones seems to cause a lot of my seizures too.I have
never been able to drive. My friends and family have always taken me where I
need or want to go.I don't see why your friends would make treat you any
differently because of your seizures.That is ashame.If there is anything I
can do, write anytime. Take care.
Tammy
On Wed, Sep 2, 2009 at 10:01 PM, lindahammond91 <lindahammond91@
>
>
> I am 58 yrs.old and I have had seizures for 16 years. My first seizure was
> a grand mal which I had in Hilton Head, S.C. I was down there visiting my
> daughter in N.C. and we went there on a trip. When I went
> home I went to a doctor in Columbus, Ohio that put me on so much medicine
> that I was like zombie. I felt terrible and I still had seizures. They were
> worse then they are now. They had me on alot of depression meds that I
> couldn't take and Neurontin made me gain about
> 30 lbs.
> The doctor also tried cyberonics with me too , to see if that would help my
> partial complex seizures and it didnt work either. It
> {the device would turn over inside my chest cavity after a time and I
> decided to have it taken out. It did not wok like it should have with
> me anyway. It was in for two years. I left the doctor in Columbus
> because he up and left the hospital and I had to find another doctor.
> I found another doctor within 30 miles of our home and he got me off all
> the meds I was on onto no more than absolutely have to take. I feel much
> better now. I still have seizures. I guess the doc told me they either come
> from stress or hormones and there is no other explanation.
>
> Other than this I gave up driving becase I never know when my seiz. are
> going to happen. Sometimes I have an aura and sometimes they come on so fast
> that I just go out like that! If I am lucky and my hubby is there he helps
> me thru them and I'm fine as long as I'M
> sitting down. Otherwise I will fall down like in a faint, maybe say
> stupid things . I'll be out for maybe 10-15min and not know nothing about
> it. I've fallen flat on my back and my face and I end up with quite a few
> bruises.
> . Getting used to having seizures waas very hard and still is. My
> friends I had I don't have no more because they can't handle them.
> I am in Friends of the Library group and they said oh don't have aseizure
> on us like they could no handle it. It made feel like I
> didnt want to be there. I am still amember but it is hard sometimes.
> I just feel I need to talk to other peole who will understand what I feel.
> Sorry for such a long letter. One thing I am thankful for is that Ihave such
> averypatient and loving husband. Linda
>
>
>
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