Hi Millie,
HBOT is a treatment. The oxygen used is considered a "drug". Once you do a series of treatments, usually 40, you go back for more as needed. The effects last weeks, months, years-everyone is different. I took my daughter in about every 6 months. The treatments consist of medicinal oxygen under pressure (which happens when you are in the chamber) which allows oxygen to reach parts of the body it would not normally reach at "ground level" meaning, when you are in the chamber it simulates the pressure you would feel if you were 16-32 feet under water (normal treatment ATA/PSI). By breathing the oxygen under pressure your bloodstream carries the oxygen to the injured areas, in our case, the brain. That's why HBOT works so well for burns and wounds because it speeds up the healing. Hope I made myself clear. It's really not that complicated!
--- In epilepsy@yahoogroup
>
> Sylvia,
>
> Welcome to our group.
>
> It sounds like Hyperbaric is a teatmaent -- not a med. How often
> do you need a treatment?
>
> What does it constite of?
>
> Millie
>
>
>
>
>
>
> > I worked at San Antonio Hyperbarics for several years. Hyperbaric
> > treatment did help almost everyone that had seizures, my own daughter
> > included. It is a bit expensive, about $125-$150 a treatment, depending
> > on how many you want to do. Most places reccommend doing a round of 40
> > treatments. Then you take a break and go back in a few months, depending
> > on how you do. My daughter did over 300 treatments in a 5 year time
> > frame. I can tell you from experience it helps a variety of ailments.
> > Just keep in mind it is not a cure, but in some cases, it has been. Your
> > neurologist may not like the idea because hyperbaric medicine is still
> > considered a treatment for wound care only by most of the medical
> > community. Do your own research. The staff at San Antonio Hyperbarics
> > are excellent! Give them a call, they will be happy to answer any
> > questions you may have. Email me privately if you'd like also.
> >
> > --- In epilepsy@yahoogroup
> >>
> >> This is amazing!!!
> >> Keep us posted on how she does. I'm going to ask my daughter's
> >> neurologist about this when we go see him in a couple of weeks.
> >> Kim
> >>
> >>
> >> In a message dated 8/23/2009 4:01:35 P.M. Pacific Standard Time,
> >> wendy.sue@ writes:
> >>
> >>
> >>
> >>
> >> Interesting that they didn't discuss HBOT!!! Julia (21 months old)
> >> has uncontrolable multi focal myoclonic seizures. Julia typically has
> >> 6 seizures a day each lasting 5 - 10 minutes in duration and we
> >> typically have to stop a seizure with diastat once in a 3 week period.
> >> Julia is taking 125 mg of zonagram 2x/day and 100mg of Lictamal
> >> 2x/day and 325mg/day of vigabatrin (not FDA approved). We also tried
> >> the keto diet and it did nothing but give Julia the worse case of acid
> >> reflux. Now 8 days ago we started HBOT and Julia only had 3 yes 3
> >> extremely short seizures today and is doing so many new things. This
> >> is SHOCKING!!! They are discovering that seizures arise from parts of
> >> the brain that are low in oxygen and Hyperberics help promote the
> >> groth of blood vessles to areas of the body (brain in Julia's case)
> >> that are low in oxygen. I hope that Julia will be seizure free within
> >> the next few weeks!! I will keep you all posted. One new thing that
> >> Julia started doing after one yes ONE treatment was chew her food.
> >>
> >> FYI hyperberics are used in the treatment of seizures in China.
> >>
> >> Wendy
> >>
> >> On Sun, Aug 23, 2009 at 2:33 PM, amanatullah
> >> Pathan<_dramanatkha
> >> >
> >> >
> >> > wikipedia.org
> >> > Treatment of EPILEPSY
> >> >
> >> > Epilepsy is usually treated with medication prescribed by a
> >> physician;
> >> > primary caregivers, neurologists, and neurosurgeons all frequently
> >> care
> >> for
> >> > people with epilepsy. In some cases the implantation of a stimulator
> >> of
> >> the
> >> > vagus nerve, or a special diet can be helpful. Neurosurgical
> >> operations
> >> for
> >> > epilepsy can be palliative, reducing the frequency or severity of
> >> seizures;
> >> > or, in some patients, an operation can be curative.
> >> >
> >> > [edit] Responding to a seizure
> >> >
> >> > In most cases, the proper emergency response to a generalized
> >> tonic-clonic
> >> > epileptic seizure is simply to prevent the patient from self-injury
> >> by
> >> > moving him or her away from sharp edges, placing something soft
> >> beneath
> >> the
> >> > head, and carefully rolling the person into the recovery position to
> >> avoid
> >> > asphyxiation. In some cases the person may seem to start snoring
> >> loudly
> >> > following a seizure, before coming to. This merely indicates that the
> >> person
> >> > is beginning to breathe properly and does not mean he or she is
> >> suffocating.
> >> > Should the person regurgitate, the material should be allowed to drip
> >> out
> >> > the side of the person's mouth by itself. If a seizure lasts longer
> >> than
> >> 5
> >> > minutes, or if the seizures begin coming in 'waves' one after the
> >> other
> >> -
> >> > then Emergency Medical Services should be contacted immediately.
> >> Prolonged
> >> > seizures may develop into status epilepticus, a dangerous condition
> >> > requiring hospitalization and emergency treatment.
> >> >
> >> > Objects should never be placed in a person's mouth by anybody -
> >> including
> >> > paramedics - during a seizure as this could result in serious injury
> >> to
> >> > either party. Despite common folklore, it is not possible for a
> >> person to
> >> > swallow their own tongue during a seizure. However, it is possible
> >> that
> >> the
> >> > person will bite their own tongue, especially if an object is placed
> >> in
> >> the
> >> > mouth.
> >> >
> >> > With other types of seizures such as simple partial seizures and
> >> complex
> >> > partial seizures where the person is not convulsing but may be
> >> > hallucinating, disoriented, distressed, or unconscious, the person
> >> should be
> >> > reassured, gently guided away from danger, and sometimes it may be
> >> necessary
> >> > to protect the person from self-injury, but physical force should be
> >> used
> >> > only as a last resort as this could distress the person even more. In
> >> > complex partial seizures where the person is unconscious, attempts to
> >> rouse
> >> > the person should not be made as the seizure must take its full
> >> course.
> >> > After a seizure, the person may pass into a deep sleep or otherwise
> >> they
> >> > will be disoriented and often unaware that they have just had a
> >> seizure,
> >> as
> >> > amnesia is common with complex partial seizures. The person should
> >> remain
> >> > observed until they have completely recovered, as with a tonic-clonic
> >> > seizure.
> >> >
> >> > After a seizure, it is typical for a person to be exhausted and
> >> confused.
> >> > (this is known as post-ictal state). Often the person is not
> >> immediately
> >> > aware that they have just had a seizure. During this time one should
> >> stay
> >> > with the person - reassuring and comforting them - until they appear
> >> to
> >> act
> >> > as they normally would. Seldom during seizures do people lose bladder
> >> or
> >> > bowel control. In some instances the person may vomit after coming
> >> to.
> >> > People should not be allowed to wander about unsupervised until they
> >> have
> >> > returned to their normal level of awareness. Many patients will sleep
> >> deeply
> >> > for a few hours after a seizure - this is common for those having
> >> just
> >> > experienced a more violent type of seizure such as a tonic-clonic. In
> >> about
> >> > 50% of people with epilepsy, headaches may occur after a seizure.
> >> These
> >> > headaches share many features with migraines, and respond to the same
> >> > medications.
> >> >
> >> > It is helpful if those present at the time of a seizure make note of
> >> how
> >> > long and how severe the seizure was. It is also helpful to note any
> >> > mannerisms displayed during the seizure. For example, the individual
> >> may
> >> > twist the body to the right or left, may blink, might mumble nonsense
> >> words,
> >> > or might pull at clothing. Any observed behaviors, when relayed to a
> >> > neurologist, may be of help in diagnosing the type of seizure which
> >> > occurred.
> >> >
> >> > [edit] Pharmacologic treatment
> >> > Main article: Anticonvulsant
> >> >
> >> > The mainstay of treatment of epilepsy is anticonvulsant medications.
> >> Often,
> >> > anticonvulsant medication treatment will be lifelong and can have
> >> major
> >> > effects on quality of life. The choice among anticonvulsants and
> >> their
> >> > effectiveness differs by epilepsy syndrome. Mechanisms, effectiveness
> >> for
> >> > particular epilepsy syndromes, and side effects, of course, differ
> >> among
> >> the
> >> > individual anticonvulsant medications. Some general findings about
> >> the
> >> use
> >> > of anticonvulsants are outlined below.
> >> >
> >> > History and Availability- The first anticonvulsant was bromide,
> >> suggested in
> >> > 1857 by Charles Locock who used it to treat women with "hysterical
> >> epilepsy"
> >> > (probably catamenial epilepsy). Potassium bromide was also noted to
> >> cause
> >> > impotence in men. Authorities concluded that potassium bromide would
> >> dampen
> >> > sexual excitement thought to cause the seizures. In fact, bromides
> >> were
> >> > effective against epilepsy, and also caused impotence; it is now
> >> known
> >> that
> >> > impotence is a side effect of bromide treatment, which is not related
> >> to
> >> its
> >> > anti-epileptic effects. It also suffered from the way it affected
> >> behaviour,
> >> > introducing the idea of the 'epileptic personality' which was
> >> actually a
> >> > result of the medication. Phenobarbital was first used in 1912 for
> >> both
> >> its
> >> > sedative and antiepileptic properties. By the 1930s, the development
> >> of
> >> > animal models in epilepsy research lead to the development of
> >> phenytoin
> >> by
> >> > Tracy Putnam and H. Houston Merritt, which had the distinct
> >> > advantage of treating epileptic seizures with less sedation[29]
> >> advanta
> >> > 1970s, an National Institutes of Health initiative, the
> >> Anticonvulsant
> >> > Screening Program, headed by J. Kiffin Penry, served as a mechanism
> >> for
> >> > drawing the interest and abilities of pharmaceutical companies in the
> >> > development of new anticonvulsant medications.
> >> >
> >> > Currently there are 20 medications approved by the Food and Drug
> >> > Administration for the use of treatment of epileptic seizures in the
> >> US:
> >> > carbamazepine (common US brand name Tegretol), clorazepate
> >> (Tranxene),
> >> > clonazepam (Klonopin), ethosuximide (Zarontin), felbamate (Felbatol),
> >> > fosphenytoin (Cerebyx), gabapentin (Neurontin), lacosamide (Vimpat),
> >> > lamotrigine (Lamictal), levetiracetam (Keppra), oxcarbazepine
> >> (Trileptal),
> >> > phenobarbital (Luminal), phenytoin (Dilantin), pregabalin (Lyrica),
> >> > primidone (Mysoline), tiagabine (Gabitril), topiramate (Topamax),
> >> valproate
> >> > semisodium (Depakote), valproic acid (Depakene), and zonisamide
> >> (Zonegran).
> >> > Most of these appeared after 1990.
> >> >
> >> > Medications commonly available outside the US but still labelled as
> >> > "investigational" within the US are clobazam (Frisium) and vigabatrin
> >> > (Sabril). Medications currently under clinical trial under the
> >> supervision
> >> > of the FDA include retigabine, brivaracetam, and seletracetam.
> >> >
> >> > Other drugs are commonly used to abort an active seizure or interrupt
> >> a
> >> > seizure flurry; these include diazepam (Valium, Diastat) and
> >> lorazepam
> >> > (Ativan). Drugs used only in the treatment of refractory status
> >> epilepticus
> >> > include paraldehyde (Paral), midazolam (Versed), and pentobarbital
> >> > (Nembutal).
> >> >
> >> > Some anticonvulsant medications do not have primary FDA-approved uses
> >> in
> >> > epilepsy but are used in limited trials, remain in rare use in
> >> difficult
> >> > cases, have limited "grandfather" status, are bound to particular
> >> severe
> >> > epilepsies, or are under current investigation. These include
> >> acetazolamide
> >> > (Diamox), progesterone, adrenocorticotropic hormone (ACTH, Acthar),
> >> various
> >> > corticotropic steroid hormones (prednisone) corticotropi
> >> >
> >> > Effectiveness - The definition of "effective" varies. FDA-approval
> >> usually
> >> > requires that 50% of the patient treatment group had at least a 50%
> >> > improvement in the rate of epileptic seizures. About 20% of patients
> >> with
> >> > epilepsy continue to have breakthrough epileptic seizures despite
> >> best
> >> > anticonvulsant treatment. [30][31].
> >> >
> >> > Safety and Side Effects - 88% of patients with epilepsy, in a
> >> European
> >> > survey, reported at least one anticonvulsant related side effect.
> >> [32]
> >> Most
> >> > side effects are mild and "dose-related" and can often be avoided or
> >> > minimized by the use of the smallest effective amount. Some examples
> >> include
> >> > mood changes, sleepiness, or unsteadiness in gait. Some
> >> anticonvulsant
> >> > medications have "idiosyncratic" side-effects that can not be
> >> predicted
> >> by
> >> > dose. Some examples include drug rashes, liver toxicity (hepatitis),
> >> or
> >> > aplastic anemia. Safety includes the consideration of teratogenicity
> >> (the
> >> > effects of medications on fetal development) when women with epilepsy
> >> become
> >> > pregnant.
> >> >
> >> > Principles of Anticonvulsant Use and Management - The goal for
> >> individual
> >> > patients is, of course, no seizures and no side effects, and the job
> >> of
> >> the
> >> > physician is to aid the patient to find the best balance between the
> >> two
> >> > during the prescribing of anticonvulsants. Most patients can achieve
> >> this
> >> > balance best with monotherapy, the use of a single anticonvulsant
> >> > medication. Some patients, however, require polypharmacy; the use of
> >> two
> >> or
> >> > more anticonvulsants.
> >> >
> >> > Serum levels of AEDs can be checked to determine medication
> >> compliance,
> >> to
> >> > assess the effects of new drug-drug interactions upon previous stable
> >> > medication levels, or to help establish if particular symptoms such
> >> as
> >> > instability or sleepiness can be considered a drug side-effect or are
> >> due to
> >> > different causes. Children or impaired adults who may not be able to
> >> > communicate side effects may benefit from routine screening of drug
> >> levels.
> >> > Beyond baseline screening, however, trials of recurrent, routine
> >> blood or
> >> > urine monitoring show no proven benefits and may lead to unnecessary
> >> > medication adjustments in most older children and adults using
> >> routine
> >> > anticonvulsants. anticon
> >> >
> >> > If a person's epilepsy cannot be brought under control after adequate
> >> trials
> >> > of two or three (experts vary here) different drugs, that person's
> >> epilepsy
> >> > is generally said to be medically refractory. A study of patients
> >> with
> >> > previously untreated epilepsy demonstrated that 47% achieved control
> >> of
> >> > seizures with the use of their first single drug. 14% became seizure
> >> free
> >> > during treatment with a second or third drug. An additional 3% became
> >> > seizure-free with the use of two drugs simultaneously. seizure-free
> >> with
> >> the
> >> > in addition to or instead of, anticonvulsant medications may be
> >> considered
> >> > by those people with continuing
> >> >
> >> > [Non-text portions of this message have been removed]
> >> >
> >> >
> >>
> >>
> >>
> >>
> >>
> >>
> >> [Non-text portions of this message have been removed]
> >>
> >
> >
> >
>
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