Wednesday, September 2, 2009

[epilepsy] Getting SSDI, and having children who are eligible.

 

I get SSDI, and have a 2year old daughter, she collects under mine. My EP, severe enough that I can't work, and my wife acts as my payee. I am here in NY. New York is one the hardest states to get SSDI, I fought for 2 years, and got it. It takes time, but yes, if it severe enough you can get it, and your children too. I hired a lawyer, and even he thought I wouldn't, but when push came to shove I did.
I grew up, in a house with alot of fighting and I was always the protector, My parents beat on each other and I protected my mother and sister, I had #3 grand mal seziures in a row, due to tension, I was told they are due to stress. That night they woke me with a smelling salt and I punched and literally "knocked-out" an ambulance attendant. I apologized, but I don't think he realized, that waking me after a seziure, is not a good thing. People with EP, don't mean what they do, its an Involuntary Muscle reaction.It took 3 marraiges, and a whole lotof putting my wives through hell, to find my angel who was /is diabetic, and we take care of each other.
When a pereson has a seziure, people have the tendency to mistreat them, especially a kid. I read about the kids and having them in school, the children in his/her class should be warned that it happens, so that they understand, that its not something that they mean to do. I call it the "Frankenstien" treatment, another words people don't quite understand, that people with EP, are normal, we are wired differently.
I as a matter of fact, am actually now since I can't work am attending Kaplan college, I want to be a CPA, and I would also like to be a advocate for people with EP, since most neurologists have never seen a seziure, and want to know what they look like. I feel, that maybe I can tell them a basic description of the aura before, and the "cloudiness" after, basically same thing a stroke victim goes through, ask some one who has a stroke, they can describe all this, because its basically the same. With me I can't shut off my brain and relax, its impossible.

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