Friday, July 17, 2009

RE: [epilepsy] Survey investigate how the use of online support groups affects users'

 

Kiera Bartlett is currently undertaking research as part of an MSc degree
within the Institute of Work, Health & Organisations (I-WHO), which is a
postgraduate institute of applied psychology at the University of
Nottingham, UK.

The overall purpose of the project is to investigate how the use of online
support groups affects users' feelings about themselves and their illness,
and how this impacts on the doctor/patient relationship. More specifically
it is concerned with if and how users become empowered, whether users feel
comfortable using online information in consultations with healthcare
professionals and whether using a support group has had any effect on the
doctor - patient relationship.

I have designed a questionnaire to investigate this based on previous
research findings in this area. I am contacting you to ask if you would be
willing to post a link to the questionnaire on the forum for users to
complete?

The link is:

http://www.surveymonkey.com/s.aspx?sm=IRVMEmNUS4rAoUN_2b6QxcXg_3d_3d

It is mainly tick boxes with a few longer answer questions and it should
take around 15 minutes to complete.

Participation in any stage of this research is completely voluntary for both
moderators and users. All sites that post the link will be acknowledged in
any publications and reports written. This study has received ethical
approval from the I-WHO Ethics Committee.

If you have any questions regarding this research please either reply to
this email or my address is <blocked::mailto:lwxykb@nottingham.ac.uk>
lwxykb@nottingham.ac.uk.

Many thanks,

Kiera Bartlett

[Non-text portions of this message have been removed]

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