Hi Steph...you have it all down pat and a good father to your son. It is funny how the parental instinct takes
over when in a situation like that. Keeping things as calm as possible really does work. I use to work with
the mentally and physically disabled a lot of whom had seizures of some kind and one specially was famous for
going into cluster GMs. I would just talk to him, quietly as if nothing at all was going on and we were just
talking naturally and even as if he were answering me, those multi seizures would be cut in half easily. Even
the strength and length of them would be less.
Julie
Julie Hope
epilepsyhealth@
http://www.2betrhea
----- Original Message -----
From: "itsme_imhere85" <itsme_imhere85@
To: <epilepsy@yahoogroup
Sent: Tuesday, July 28, 2009 3:10 PM
Subject: [epilepsy] Re: Hi all. Newbie here!
--- In epilepsy@yahoogroup
>Thanks Julie
What you have said has been a big help. I have sat down with my son and told him that mummy gets poorly
sometimes and I might have to lie down for a bit and not to worry Just to get daddy, I also told him how proud
i was of him when he found me in the bathroom how he didnt panic and fetched daddy for me. He kind of looked a
bit unbothered by it so i made a joke and said haven't you got a silly mummy!
To answer your other question i'm out of work off my own back because my partner was in a rather nasty
motorbike accident so i had no choice but to leave work to look after everything..
very stressful, so maybe that has something to do with it. Who knows. Ive got my EEG and MRI scans tomorrow so
maybe i'll get some answers soon.
Anyway thanks again.
Steph
> Hi
> I started having my Grand Mal at 13 or so and am now in just in my 60's so YES you will still be here at 50
> (smile) And NO we don't mind you rambling on at all, not one little bit.
> What you can do with your son to explain to him what is going on, sit down on the floor with him and tell
> him
> in the simplest way possible how you sometimes get so dizzy and black out and afterwards you may not be able
> to remember anything. You can also tell him mommy isn't hurting while doing that but may have a bad
> headache
> after and have to sleep for a bit. Tell him the dr is going to give mommy some medicine that hopefully will
> help so you don't do that so often. Make sure he knows that if he can get a pillow and put it under your
> head
> so you don't hurt yourself.
> You say you were already 'out of work when these seizures started happening'..
> because
> of this economy right now? The stress of just that alone could of been enough to start them possibly.
> Stress
> is a big factor and can be a trigger for a seizure.
> Take care and try to stay calm
> Best of luck to you and ask lots and learn is the best way.
> Above all keep smiling!!
> Julie
>
> Julie Hope
> epilepsyhealth@
> http://www.2betrhea
> ----- Original Message -----
> From: "itsme_imhere85" <itsme_imhere85@
> To: <epilepsy@yahoogroup
> Sent: Tuesday, July 28, 2009 10:01 AM
> Subject: [epilepsy] Hi all. Newbie here!
>
>
> Hi all
> I'm pretty new to all this I only found out recently that i have epilepsy. After suffering two seizures. I
> don't no all the details of names etc yet as im still waiting on my mri and eeg tests.
> Both times i have had my fits i have felt funny for around half an hour before and
> suffered mini seizures at this point (one time i was in a taxi and when i realised what was going on i was
> highly embarrassed)
> Then the main seizure will come and last 2-3 minutes, afterwards i have no memory of
> anything including who my partner is or my sons name, and i feel like crap for a couple of days.
>
> I also had to have my thyroid removed and they just cant seem to get my levels level! which is a pain and
> has
> caused me depression too.
>
> I can deal with all these things, but what does worry me is that the 2nd seizure i had, It was my little boy
> who found me on the bathroom floor, and that really upset me because he's only 3 and it must have scared the
> crap out of him.
> I have also applied for DLA, but am not sure what to expect bk from them? I was
> already out of work when these fits started happening because i have to care for my partner who was in a bad
> motorbike accident which has left him with no use in his left arm and shoulder and he's in constant agony.
>
> I hope no one minds me rambling on but no one else i know has any problems like this,
> and
> im starting to think if i have this many problems by 23 what will i be like at 50 or will i even be here???
>
>
>
> ------------
>
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