Steph,
You'll have to remember that they are not the one who have
the szs. They know what they have been taught, read in a book
or heard their patients say.
To me that makes a big difference.
Millie
> --- In epilepsy@yahoogroup
> wrote:
>>Hi Tammy
> Again thanks for answering my message, I'm hoping I can learn alot from
> everyone on here because allthough my doctors are brilliant they only have
> a limited time and i always remember another question afterwards but
> forget it by the time i get home to write it down!
> Im so grateful i found this site. Thanks
> Steph
>
>> Welcome to the group. I have had seizures since I was a baby. I am 40
>> now
>> now. Even though you will have to sit down and explain to your kids, it
>> is a
>> blessing they are there for you.I know you don't want them to see you
>> like
>> that, but if the seizures keep happening regularly then they can more or
>> less watch out for you if fall and get hurt. I don't have any kids
>> myself,
>> but there is usually somebody around here making sure I am all right.If
>> you
>> get enough warning time before the seizure, try to sit down so you won't
>> get
>> hurt. Sometimes I get a warning(aura) sometimes I don't. Stress and
>> hormones
>> seem to cause most of mine. I am here if you need anything, write
>> anytime.
>> Take care.
>>
>> Tammy
>>
>> On Tue, Jul 28, 2009 at 1:45 PM, Julie Hope <epilepsyhealth@
>>
>> >
>> >
>> > Hi
>> > I started having my Grand Mal at 13 or so and am now in just in my
>> 60's so
>> > YES you will still be here at 50
>> > (smile) And NO we don't mind you rambling on at all, not one little
>> bit.
>> > What you can do with your son to explain to him what is going on, sit
>> down
>> > on the floor with him and tell him
>> > in the simplest way possible how you sometimes get so dizzy and black
>> out
>> > and afterwards you may not be able
>> > to remember anything. You can also tell him mommy isn't hurting while
>> doing
>> > that but may have a bad headache
>> > after and have to sleep for a bit. Tell him the dr is going to give
>> mommy
>> > some medicine that hopefully will
>> > help so you don't do that so often. Make sure he knows that if he can
>> get a
>> > pillow and put it under your head
>> > so you don't hurt yourself.
>> > You say you were already 'out of work when these seizures started
>> > happening'..
>> > of this economy right now? The stress of just that alone could of been
>> > enough to start them possibly. Stress
>> > is a big factor and can be a trigger for a seizure.
>> > Take care and try to stay calm
>> > Best of luck to you and ask lots and learn is the best way.
>> > Above all keep smiling!!
>> > Julie
>> >
>> > Julie Hope
>> > epilepsyhealth@
>> > http://www.2betrhea
>> > ----- Original Message -----
>> > From: "itsme_imhere85" <itsme_imhere85@
>> > >
>> > To: <epilepsy@yahoogroup
>> > Sent: Tuesday, July 28, 2009 10:01 AM
>> > Subject: [epilepsy] Hi all. Newbie here!
>> >
>> > Hi all
>> > I'm pretty new to all this I only found out recently that i have
>> epilepsy.
>> > After suffering two seizures. I
>> > don't no all the details of names etc yet as im still waiting on my
>> mri and
>> > eeg tests.
>> > Both times i have had my fits i have felt funny for around half an
>> hour
>> > before and
>> > suffered mini seizures at this point (one time i was in a taxi and
>> when i
>> > realised what was going on i was
>> > highly embarrassed)
>> > Then the main seizure will come and last 2-3 minutes, afterwards i
>> have no
>> > memory of
>> > anything including who my partner is or my sons name, and i feel like
>> crap
>> > for a couple of days.
>> >
>> > I also had to have my thyroid removed and they just cant seem to get
>> my
>> > levels level! which is a pain and has
>> > caused me depression too.
>> >
>> > I can deal with all these things, but what does worry me is that the
>> 2nd
>> > seizure i had, It was my little boy
>> > who found me on the bathroom floor, and that really upset me because
>> he's
>> > only 3 and it must have scared the
>> > crap out of him.
>> > I have also applied for DLA, but am not sure what to expect bk from
>> them? I
>> > was
>> > already out of work when these fits started happening because i have
>> to
>> > care for my partner who was in a bad
>> > motorbike accident which has left him with no use in his left arm and
>> > shoulder and he's in constant agony.
>> >
>> > I hope no one minds me rambling on but no one else i know has any
>> problems
>> > like this, and
>> > im starting to think if i have this many problems by 23 what will i be
>> like
>> > at 50 or will i even be here???
>> >
>> > ------------
>> >
>> > Just a friendly reminder: Please remember to sign your post and
>> remember to
>> > clean up messages when you reply
>> > to them. This is especially important if you are on digest. This not
>> only
>> > helps out the list owner but, it
>> > makes messages much easier to read when they arrive in our inboxes.
>> >
>> > Yahoo! Groups Links
>> >
>> >
>> >
>>
>>
>> [Non-text portions of this message have been removed]
>>
>
>
>
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