Thursday, July 30, 2009

Re: [epilepsy] Re: brain surgery and driving.

 

Everyone,
   Its looks like allot of people have commented about how successful their operations were, that's different than me. In '96 my l. temporal lobe was mostly removed, before the surgery I was aware of a seizure occurring every 3-4 weeks, Others probably happened that I knew nothing of. After my unsuccessful surgery my seizure rate didn't change, and I continued to take the same amount of medicines. In '74 I had my first few seizure and was diagnosed. I continued to drive and totaled my five cars each were repaired at least as many times as possible. In '98 I finally quit driving I gave up with my ridicules good luck, my crashes were always alone without another car involved and the police always assumed that I'd fallen asleep. If someone else was involved who saw that my eyes were open and the cop may write that the accident was due to a seizure, If people in that car saw lawyers could look at my past medical records and decide that I
shouldn't have been driving in the first place...
Tim B.                

--- On Thu, 7/30/09, sept161999@aol.com <sept161999@aol.com> wrote:

From: sept161999@aol.com <sept161999@aol.com>
Subject: Re: [epilepsy] Re: brain surgery and driving.
To: epilepsy@yahoogroups.com
Date: Thursday, July 30, 2009, 7:41 PM

 

congrats.
my doctors asked me before they discharged me from the hospital a few days
after the surgery if theres anything they could do.
i said "could you write me prescriptions for my medications" ?
they looked at me like i was crazy.
i guess they never saw someone who wanted medication even after surgery
talk with your dr.
hope everything goes good
Brian

In a message dated 7/30/2009 6:20:51 A.M. Pacific Daylight Time,
tristinspike26@ yahoo.com writes:

Brian,
Oh, I already had the surgery (Nov 12, 08). It was a cinch! I know that
surgery isn't a guarantee, but it's worked so far. You mentioned that I
shouldn't think of it as a way to get off of my meds. Although I'm still on
extreme dosages, I do plan to talk my neuro into decreasing my dosages at
my next visit. I know I'll probably never be fully "sober," (lol) but I do
think I could cut back a few hundered mg.

Tristin :)

--- On Thu, 7/30/09, _sept161999@ aol.sep_ (mailto:sept161999@aol. com)
<_sept161999@ aol.sep_ (mailto:sept161999@aol. com) > wrote:

From: _sept161999@ aol.sep_ (mailto:sept161999@aol. com)
<_sept161999@ aol.sep_ (mailto:sept161999@aol. com) >
Subject: Re: [epilepsy] Re: brain surgery and driving.
To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@yahoogroup s.com)
Date: Thursday, July 30, 2009, 9:09 AM

it's true that surgery is not for everyone but looking into it might not

hurt. I had surgery. before surgery i would have an average 50 seizures
per

day from age 2 to age 29. now after surgery ive been seizure free a little

more then 9 in a half years. Just remember if you want to have it done do
a

lot of homework into what you must do(testing) how things would be done.

get references on doctors. BUT REMEMBER SURGERY IS NOT A GUARANTEE IT WILL

STOP OR EVEN CONTROL SEIZURES. and also you might have to stay on
medication

so dont think of surgery as a way to also being able to stop medications.

Brian

In a message dated 7/30/2009 5:54:22 A.M. Pacific Daylight Time,

tristinspike26@ yahoo.com writes:

Well Birdman,

I understand that surgery isn't always perfect, and it doesn't work for

everyone. But I can't criticize it. It's worked for me, so far. I'm 8

months seizure-free thanks to a left temporal lobectomy. I've waited a
long

time to get my driver's license, and driving I'm gonna do. I know there's

the possibility of having another seizure, and I know to take precautions

if/when I start feeling strange. I have to take advantage of this time

because it may not last for long.

Tristin :)

--- On Thu, 7/30/09, korky106_a <_korky106_a@ yahoo.kor_

(mailto:korky106_ (mailto:korky1> wrote:

From: korky106_a <_korky106_a@ yahoo.kor_ (mailto:korky106_ _korky106_ a@ y>

Subject: [epilepsy] Re: brain surgery and driving.

To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@ To: _epilepsy@yaho

Date: Thursday, July 30, 2009, 1:56 AM

I am well aware the desire for people to drive- I think it may be more for

a person with seizures. i am 58- I have had seizures since I was 13- I was

bit by a mosquito and given encephalitis- my brain became infected-

swelled up to the point I went into a coma for 18 hrs. The drs did not
expect me

to come out of it and live. I have brain damage because of this and

seizures- all kinds. I have had a right temporal lobectomy to remove what
they

thought was the damaged cells and take away my seizures. Well some time
went

by without seizures- I got my license and- away I drove feeling GREAT-
well

i have totalled my Honda Accord because I had a seizure- surgery is NOT

always perfect- I found this out when I totaled my Taurus as a result of a

seizure accident. OKEASE reconsider driving- I will NEVER try driving
again. I

am fortunate to be alive and to have not hurt anyone as a result of my

driving- I can adjust to not driving- I could

NEVER adjust to hurting a person because I chose to drive when I

shouldn't- THINK TWICE- Thanks- Birdman--- In epilepsy@yahoogroup s.com,

"tristinspike26" <tristinspike26@ ...> wrote:

>

> Hi all,

> Tomorrow I'm kind of going to share my epilepsy surgery testimony with

my friend's (Lisa's) neurologist. I'm totally tickled that she wants me to

talk to her neurologist and tell him what surgery did for me. We're trying

to get her referred to the Medical College of Georgia; where I had my

surgery. Surgery worked so far for me. I hope and pray that my friend,
Lisa,

turns out to be a good candidate. Maybe surgery will work for her too. It
makes

me feel good knowing that my struggle with epilepsy and my surgery might

inspire someone else (Lisa). Since I got my driver's license (for the past

month) I've been driving Lisa around and helping her get to where she
needs

to go. I've been in her shoes. I know what it's like. It's just my way of

paying it forward.

>

> Tristin :)

>

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