Been around for quite a while now Rodolfo (love that name) just not always on touch. Either on here answering
everyone or you won't see me for a few days. :)smile:( You also will find quite a few Julies here that's why
put my last name on there....makes for a good one as there is 'Hope' for all of us.
jh
Julie Hope
epilepsyhealth@
http://www.2betrhea
----- Original Message -----
From: "Rodolfo Quinones" <rodolfoquinones20@
To: <epilepsy@yahoogroup
Sent: Tuesday, July 28, 2009 5:23 PM
Subject: Re: [epilepsy] Re: Hi all. Newbie here!
Hi Julie,
Wecome to the group,this is a good place to be, I been gone for a bite because I a bad siezure and it was a
bad one too.. It was morning chow,which I never touch it.
But anyway welcome to the group Julie, Just old Rodolfo
--- On Tue, 7/28/09, Julie Hope <epilepsyhealth@
From: Julie Hope <epilepsyhealth@
Subject: Re: [epilepsy] Re: Hi all. Newbie here!
To: epilepsy@yahoogroup
Date: Tuesday, July 28, 2009, 10:33 PM
Here Steph is where a diary comes in handy and between each appointment as the questions come into your mind
write them down. Believe me it is hard to remember everything, but a diary of questions wanted to ask, as well
as another with dates and how each of your seizures acted + circumstances around each one would sure help.
Some doctors only allow a couple questions for each visit, but if you have a list and can hand it to him get
him to write the answer down beside it after he has told you and that way you can go over it later too.
Always ask if the doctor says something ask that big 'why' 'what can I expect from' 'side effects'.
Good luck with your EEG and MRI scans.
Julie
Julie Hope
epilepsyhealth@ sasktel.net
http://www.2betrhea lth.com
----- Original Message -----
From: "itsme_imhere85" <itsme_imhere85@ yahoo.com>
To: <epilepsy@yahoogrou
Sent: Tuesday, July 28, 2009 3:18 PM
Subject: [epilepsy] Re: Hi all. Newbie here!
--- In epilepsy@yahoogroup s.com, "uniquepnk tds.net" <Uniquepnk@. ..> wrote:
>Hi Tammy
Again thanks for answering my message, I'm hoping I can learn alot from everyone on here because allthough my
doctors are brilliant they only have a limited time and i always remember another question afterwards but
forget it by the time i get home to write it down!
Im so grateful i found this site. Thanks
Steph
> Welcome to the group. I have had seizures since I was a baby. I am 40 now
> now. Even though you will have to sit down and explain to your kids, it is a
> blessing they are there for you.I know you don't want them to see you like
> that, but if the seizures keep happening regularly then they can more or
> less watch out for you if fall and get hurt. I don't have any kids myself,
> but there is usually somebody around here making sure I am all right.If you
> get enough warning time before the seizure, try to sit down so you won't get
> hurt. Sometimes I get a warning(aura) sometimes I don't. Stress and hormones
> seem to cause most of mine. I am here if you need anything, write anytime..
> Take care.
>
> Tammy
>
> On Tue, Jul 28, 2009 at 1:45 PM, Julie Hope <epilepsyhealth@ ...>wrote:
>
> >
> >
> > Hi
> > I started having my Grand Mal at 13 or so and am now in just in my 60's so
> > YES you will still be here at 50
> > (smile) And NO we don't mind you rambling on at all, not one little bit..
> > What you can do with your son to explain to him what is going on, sit down
> > on the floor with him and tell him
> > in the simplest way possible how you sometimes get so dizzy and black out
> > and afterwards you may not be able
> > to remember anything. You can also tell him mommy isn't hurting while doing
> > that but may have a bad headache
> > after and have to sleep for a bit. Tell him the dr is going to give mommy
> > some medicine that hopefully will
> > help so you don't do that so often. Make sure he knows that if he can get a
> > pillow and put it under your head
> > so you don't hurt yourself.
> > You say you were already 'out of work when these seizures started
> > happening'.. ..did you get layed off because
> > of this economy right now? The stress of just that alone could of been
> > enough to start them possibly. Stress
> > is a big factor and can be a trigger for a seizure.
> > Take care and try to stay calm
> > Best of luck to you and ask lots and learn is the best way.
> > Above all keep smiling!!
> > Julie
> >
> > Julie Hope
> > epilepsyhealth@ ... <epilepsyhealth% 40sasktel. net>
> > http://www.2betrhea lth.com
> > ----- Original Message -----
> > From: "itsme_imhere85" <itsme_imhere85@ ...<itsme_ imhere85% 40yahoo.com>
> > >
> > To: <epilepsy@yahoogrou
> > Sent: Tuesday, July 28, 2009 10:01 AM
> > Subject: [epilepsy] Hi all. Newbie here!
> >
> > Hi all
> > I'm pretty new to all this I only found out recently that i have epilepsy.
> > After suffering two seizures. I
> > don't no all the details of names etc yet as im still waiting on my mri and
> > eeg tests.
> > Both times i have had my fits i have felt funny for around half an hour
> > before and
> > suffered mini seizures at this point (one time i was in a taxi and when i
> > realised what was going on i was
> > highly embarrassed) !
> > Then the main seizure will come and last 2-3 minutes, afterwards i have no
> > memory of
> > anything including who my partner is or my sons name, and i feel like crap
> > for a couple of days.
> >
> > I also had to have my thyroid removed and they just cant seem to get my
> > levels level! which is a pain and has
> > caused me depression too.
> >
> > I can deal with all these things, but what does worry me is that the 2nd
> > seizure i had, It was my little boy
> > who found me on the bathroom floor, and that really upset me because he's
> > only 3 and it must have scared the
> > crap out of him.
> > I have also applied for DLA, but am not sure what to expect bk from them? I
> > was
> > already out of work when these fits started happening because i have to
> > care for my partner who was in a bad
> > motorbike accident which has left him with no use in his left arm and
> > shoulder and he's in constant agony.
> >
> > I hope no one minds me rambling on but no one else i know has any problems
> > like this, and
> > im starting to think if i have this many problems by 23 what will i be like
> > at 50 or will i even be here???
> >
> > ------------ --------- --------- ------
> >
> > Just a friendly reminder: Please remember to sign your post and remember to
> > clean up messages when you reply
> > to them. This is especially important if you are on digest. This not only
> > helps out the list owner but, it
> > makes messages much easier to read when they arrive in our inboxes.
> >
> > Yahoo! Groups Links
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>
------------ --------- --------- ------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
to them. This is especially important if you are on digest. This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
[Non-text portions of this message have been removed]
------------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
to them. This is especially important if you are on digest. This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional
Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe
No comments:
Post a Comment