I also have the vns. It's done wonders on me and given me a second
chance. Before that I have died three times from my gran mals and
finally got a dnr wrote up for me. I am also 46! Welcome to the group!
Terri
Sent from my iPhone
On Jul 28, 2009, at 4:22 PM, Pastor Joseph Groth <pastorjwgroth@
> wrote:
>
>
>
> Thanks for letting me join. I'm Joseph and I'm 46. I've had Epilepsy
> since I was just 2 years old(1965). I was doing alright until I hit
> my 20's.. I began having unrecognized seizures. I never have a
> warning sign of a seizure coming on. I had a complex/negastic type
> seizure
> in 1983. I found out later that I had became immuned to
> phenobarbital that I had taken since the epilepsy started. I was
> taken off medicine for 5 years to clear my system. In 1988, I had
> some motor and grandmal seizures. And was put back on medicine
> Dilatin.
> For the next 5 years I was doing alright, having a couple seizures a
> month. In 1993, I started having daily seizures on the job and at
> home. I lost my job and was put on disability. This put me in a very
> deep depression, causing more seizures to occur. By 1998, I was
> having as many as 7 seizures a day. I opted for brain surgery. It
> took 3+ years of medical testing before I could get the surgery. On
> October 31, 2001 I had the 5 hour brain surgery. Was put on a 2 year
> recovery period and remained on medicine. I went 4 1/2 years seizure
> free. I had a stroke in Dec. 2005 which caused my seizures to
> return. I went through having the seizures more often again. In May
> 2008, I had a 2nd surgery. This time I chose the VNS surgery. VNS
> stands for Vegus Nerve Stimulator. I had the surgery May 15th 2008
> and on June 2nd 2008 My VNS was activated. It is set to activate in
> every 3minutes for 30 second intervals. When a seizure is about to
> take place, the stimulator
> activates and stops the seizure immediately. I wear a magnet on my
> wrist as a back up device. I have had only 6 seizures squeak through
> since my stimulator was activated. My wife has been able to swipe
> the magnet over the stimulator when she noticed the seizure and stop
> the seizure immediately. Since May 31st 2008, I have not been in the
> hospital.
> This has reduced a lot of stress of me and my wife. I'm partially
> paralyzed from a colon surgery I had in 2004 and walk with 2 canes.
> I also use a power chair for places that require a lot of standing
> or walking. This is a bit stressful, but easier to deal with now
> that my seizures can be controled. I take Keppra 750mg 4 a day and
> Lamictal 100mg 4 a day. I must say that the Lord works in mysterious
> ways. Every time I have a medical problem He has been there to help
> me every time. Looking forward to getting to know you all better.
> God Bless!!!!
> Pastor Joseph Groth
>
> [Non-text portions of this message have been removed]
>
>
[Non-text portions of this message have been removed]
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