Tuesday, July 28, 2009

Re: [epilepsy] Hi all. Newbie here!

 

Since you didn't sing your name ---

Welcome to our group. I'm glad you found us. I have had
EP for 47 years. When I was diagnosed -- I had 3 daughters
2, 4, and 6 plus a husband (now ex).

I have learned a lot here. Hope you do also.

Millie

> Hi all
> I'm pretty new to all this I only found out recently that i have epilepsy.
> After suffering two seizures. I don't no all the details of names etc yet
> as im still waiting on my mri and eeg tests.
> Both times i have had my fits i have felt funny for
> around half an hour before and suffered mini
> seizures at this point (one time i was in a taxi and
> when i realised what was going on i was highly
> embarrassed)!
> Then the main seizure will come and last 2-3 minutes,
> afterwards i have no memory of anything including who
> my partner is or my sons name, and i feel like crap
> for a couple of days.
>
> I also had to have my thyroid removed and they just cant seem to get my
> levels level! which is a pain and has caused me depression too.
>
> I can deal with all these things, but what does worry me is that the 2nd
> seizure i had, It was my little boy who found me on the bathroom floor,
> and that really upset me because he's only 3 and it must have scared the
> crap out of him.
> I have also applied for DLA, but am not sure
> what to expect bk from them? I was already out
> of work when these fits started happening
> because i have to care for my partner who was in
> a bad motorbike accident which has left him with
> no use in his left arm and shoulder and he's in
> constant agony.
>
> I hope no one minds me rambling on but no one else i
> know has any problems like this, and im starting to
> think if i have this many problems by 23 what will i
> be like at 50 or will i even be here???
>
>

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