--- In epilepsy@yahoogroup
>Hi Tammy
Again thanks for answering my message, I'm hoping I can learn alot from everyone on here because allthough my doctors are brilliant they only have a limited time and i always remember another question afterwards but forget it by the time i get home to write it down!
Im so grateful i found this site. Thanks
Steph
> Welcome to the group. I have had seizures since I was a baby. I am 40 now
> now. Even though you will have to sit down and explain to your kids, it is a
> blessing they are there for you.I know you don't want them to see you like
> that, but if the seizures keep happening regularly then they can more or
> less watch out for you if fall and get hurt. I don't have any kids myself,
> but there is usually somebody around here making sure I am all right.If you
> get enough warning time before the seizure, try to sit down so you won't get
> hurt. Sometimes I get a warning(aura) sometimes I don't. Stress and hormones
> seem to cause most of mine. I am here if you need anything, write anytime.
> Take care.
>
> Tammy
>
> On Tue, Jul 28, 2009 at 1:45 PM, Julie Hope <epilepsyhealth@
>
> >
> >
> > Hi
> > I started having my Grand Mal at 13 or so and am now in just in my 60's so
> > YES you will still be here at 50
> > (smile) And NO we don't mind you rambling on at all, not one little bit.
> > What you can do with your son to explain to him what is going on, sit down
> > on the floor with him and tell him
> > in the simplest way possible how you sometimes get so dizzy and black out
> > and afterwards you may not be able
> > to remember anything. You can also tell him mommy isn't hurting while doing
> > that but may have a bad headache
> > after and have to sleep for a bit. Tell him the dr is going to give mommy
> > some medicine that hopefully will
> > help so you don't do that so often. Make sure he knows that if he can get a
> > pillow and put it under your head
> > so you don't hurt yourself.
> > You say you were already 'out of work when these seizures started
> > happening'..
> > of this economy right now? The stress of just that alone could of been
> > enough to start them possibly. Stress
> > is a big factor and can be a trigger for a seizure.
> > Take care and try to stay calm
> > Best of luck to you and ask lots and learn is the best way.
> > Above all keep smiling!!
> > Julie
> >
> > Julie Hope
> > epilepsyhealth@
> > http://www.2betrhea
> > ----- Original Message -----
> > From: "itsme_imhere85" <itsme_imhere85@
> > >
> > To: <epilepsy@yahoogroup
> > Sent: Tuesday, July 28, 2009 10:01 AM
> > Subject: [epilepsy] Hi all. Newbie here!
> >
> > Hi all
> > I'm pretty new to all this I only found out recently that i have epilepsy.
> > After suffering two seizures. I
> > don't no all the details of names etc yet as im still waiting on my mri and
> > eeg tests.
> > Both times i have had my fits i have felt funny for around half an hour
> > before and
> > suffered mini seizures at this point (one time i was in a taxi and when i
> > realised what was going on i was
> > highly embarrassed)
> > Then the main seizure will come and last 2-3 minutes, afterwards i have no
> > memory of
> > anything including who my partner is or my sons name, and i feel like crap
> > for a couple of days.
> >
> > I also had to have my thyroid removed and they just cant seem to get my
> > levels level! which is a pain and has
> > caused me depression too.
> >
> > I can deal with all these things, but what does worry me is that the 2nd
> > seizure i had, It was my little boy
> > who found me on the bathroom floor, and that really upset me because he's
> > only 3 and it must have scared the
> > crap out of him.
> > I have also applied for DLA, but am not sure what to expect bk from them? I
> > was
> > already out of work when these fits started happening because i have to
> > care for my partner who was in a bad
> > motorbike accident which has left him with no use in his left arm and
> > shoulder and he's in constant agony.
> >
> > I hope no one minds me rambling on but no one else i know has any problems
> > like this, and
> > im starting to think if i have this many problems by 23 what will i be like
> > at 50 or will i even be here???
> >
> > ------------
> >
> > Just a friendly reminder: Please remember to sign your post and remember to
> > clean up messages when you reply
> > to them. This is especially important if you are on digest. This not only
> > helps out the list owner but, it
> > makes messages much easier to read when they arrive in our inboxes.
> >
> > Yahoo! Groups Links
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>
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