--- In epilepsy@yahoogroup
>
> --- In epilepsy@yahoogroup
> >
> > Hi all
> > I'm pretty new to all this I only found out recently that i have epilepsy. After suffering two seizures. I don't no all the details of names etc yet as im still waiting on my mri and eeg tests.
> > Both times i have had my fits i have felt funny for around half an hour before and suffered mini seizures at this point (one time i was in a taxi and when i realised what was going on i was highly embarrassed)
> > Then the main seizure will come and last 2-3 minutes, afterwards i have no memory of anything including who my partner is or my sons name, and i feel like crap for a couple of days.
> >
> > I also had to have my thyroid removed and they just cant seem to get my levels level! which is a pain and has caused me depression too.
> >
> > I can deal with all these things, but what does worry me is that the 2nd seizure i had, It was my little boy who found me on the bathroom floor, and that really upset me because he's only 3 and it must have scared the crap out of him.
> > I have also applied for DLA, but am not sure what to expect bk from them? I was already out of work when these fits started happening because i have to care for my partner who was in a bad motorbike accident which has left him with no use in his left arm and shoulder and he's in constant agony.
> >
> > I hope no one minds me rambling on but no one else i know has any problems like this, and im starting to think if i have this many problems by 23 what will i be like at 50 or will i even be here???
> >
> Hi regarding your D.L.A be very carefull with your forms,if they can get out of a claim they wil,myself was one higher rate of care and mobility,have been for many years and though my condition deteriates they are makeing the rules up as they go along,if you need very good advice on benifits you can try getting help from your local D.I.AC or C.A.B.Hopeall goes well and dont let your epilepsey get you down,take care @ stay lucky.
> Stuart(uk)
>
Thanks stuart.
Im hoping they take me seriously as it is a real struggle when im the only one who can cook, clean (properly) and look after our son. Especially just before a seizure and the couple of days after. I've been to the cab but it was pre-diagnsis and my mum works for people with learning disabilities and ses from her experience DLA is all about how many times you appeal. So im not expecting anything any time soon! lol. But you never know they might just surprise me.
Thanks again
Steph (UK)
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