Friday, April 3, 2009

Re: Fw: Re: [epilepsy] It happened again 4670 (craig)


Craig,
I get horrible headaches from MSG and a buzzing feeling, I'm not epileptic, my daughter is but I try to avoid MSG foods and Aspartame.
Thanks for the info.

Kirst

--- On Tue, 3/31/09, craig davis <ohs7778@yahoo.com> wrote:

> From: craig davis <ohs7778@yahoo.com>
> Subject: Fw: Re: [epilepsy] It happened again 4670
> To: "epilepsy@yahoogroups.com" <epilepsy@yahoogroups.com>
> Date: Tuesday, March 31, 2009, 7:09 PM
>
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> --- On Tue, 3/31/09, craig davis <ohs7778@yahoo.
> com> wrote:
>
>
>
> From: craig davis <ohs7778@yahoo.
> com>
>
> Subject: Re: [epilepsy] It happened again 4670
>
> To: "No Reply" <notify-dg-epilepsy@
> yahoogroups. com>
>
> Date: Tuesday, March 31, 2009, 11:20 AM
>
>
>
>  This notice is for anyone who has seizure conditions. 
> It happened again. I ate some food with an M S G replacement
> additive that came from a can of Carnation Milk. No MSG logo
> or information was on the can.  Last month I also had the
> same dish of food not knowing then what made me have the
> auras I had. At that time there were more foods which were
> made by different people. I ate just a little of everything
> as most things then must have had M S G in them. I felt bad
> for almost 3 full days then. Yesterday I had some of the
> same food. After eating the baked corn that was made with
> the canned milk.  I started to feel bad in 6 hours. I
> then realized I ate that same coen dish a month ago,
> thinking then the problem came from other food. I thought
> is was strange knowing it usually affects me within 9 to
> 11 hours later to start feeling bad. This time it was very
> noticeable as I only had the one food and I told my mom to
> read all the labels before she
>
> buys something. www.sellingsalesman ship.com.
> msginfo.html  That site will show all of you ALL the
> additives and replacement additives food companies use in
> place of MSG/MonoSodiumGluta mate. Just because something
> might read NO MSG !! or MSG FREE !! does not mean there is
> no MSG in it. M S G can cause seizures and auras in the
> brain. I would like everyone who is affected by MSG or
> parents to kids/infants to call our EFA who is looking out
> for us at 1-800-321-1000. If you believe the EFA really
> cares for us then I can walk on water. I have tried to get
> the EFA to do something about this MSG problem that I and
> "others" have to live with daily. There is no way
> that the FDA should be allowed to let this MSG stay in our
> food supply. But the FDA is on the side of the
> food corporations, drug companies and doctors. Why because
> they all get money through us who suffers from MSG, nitrates
> and other illnesses these two can cause besides seizures.
> You would
>
> think the EFA would have some compassion about this but
> they never will until they hear it from everyone. M S G and
> nitrates may not affect your condition now. That does not
> mean it will not later in life with seizures or any other
> condition. www.fda.gov  You all need to call the FDA as
> well on this issue.  I have in the past and I was told I
> did not know what I was talking about as they never heard of
> MSG creating a seizure condition in people. I say the FDA
> and all the workers there  should eat all the MSG foods
> first before anyone in the public digest them. WE ALL need
> to contact the EFA first, FDA second and NIH National
> Institutes of Health third at 1-800-411-1222 www.nih.gov 
> The NIH now is doing a study on MSG and fibromyagia. I know
> what MSG can do. Hopefully none of you will learn the hard
> way as I have. By calling these numbers and keeping the
> phone lines hot about it, maybe something can get done to
> get MSG out of the foods we eat. I
>
> can not do it alone as I will not by you all knowing who
> to call now. Get ready EFA we'll be calling you all
> there. 1-800- 321-1000 www.efa.org  Before phone calls are
> made, see for yourself if MSG and nitrates creates seizures
> in your life or in your childs life. I believe MSG is more
> dangerous to children more than adults as they will live a
> lifetime with seizures or something else, if parents are not
> warned about MSG and nitrates. Keep all the phone lines hot
> to these places. I'll call the FDA soon after I click
> send.   Craig 
>
>
>
> --- On Tue, 3/31/09, epilepsy@yahoogroup
> s.com <epilepsy@yahoogroup
> s.com> wrote:
>
>
>
> From: epilepsy@yahoogroup
> s.com <epilepsy@yahoogroup
> s.com>
>
> Subject: [epilepsy] Digest Number 4669
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Tuesday, March 31, 2009, 3:08 AM
>
>
>
> There are 21 messages in this issue.
>
>
>
> Topics in this digest:
>
>
>
> 1a. Re: Ever Have a Blood Test Lost?
>
> From: mylmy@bnin.net
>
>
>
> 2a. Re: EEG results; seizure newbie(Jill)
>
> From: mylmy@bnin.net
>
>
>
> 3a. Re: anyone pregnant/ have been pregnant?
>
> From: petenlynds
>
> 3b. Re: anyone pregnant/ have been pregnant?
>
> From: mylmy@bnin.net
>
> 3c. Re: anyone pregnant/ have been pregnant? Thanks:-)
>
> From: lucy133_daisy
>
> 3d. Re: anyone pregnant/ have been pregnant?
>
> From: Mary Allen
>
>
>
> 4. I was at an EFA lecture last week
>
> From: no_seizures_ since_surgery
>
>
>
> 5.1. Re: new member
>
> From: mylmy@bnin.net
>
> 5.2. Re: new member
>
> From: Kirsten
>
> 5.3. Re: new member
>
> From: Tammy Wolfgram
>
> 5.4. Re: new member
>
> From: uniquepnk tds.net
>
> 5.5. Re: new member
>
> From: kteribond@aol.
> com
>
>
>
> 6. Epilepsy Research Results
>
> From: Belinda Shale
>
>
>
> 7. Re: JILL [epilepsy] Re: EEG Result, seizure newbie
>
> From: Uggie
>
>
>
> 8a. Re: Seizures and Medications
>
> From: Karina Castillo
>
>
>
> 9a. Re: Does This Happen To You? [Annette]
>
> From: TIMOTHY BALDWIN
>
> 9b. Re: Does This Happen To You? [Annette]
>
> From: mylmy@bnin.net
>
> 9c. Re: Does This Happen To You? [Annette]
>
> From: TIMOTHY BALDWIN
>
>
>
> 10a. Re: GOOD MORNING TO ALL
>
> From: Kirsten
>
>
>
> 11. Re: drugs for seizures (Millie)
>
> From: Jill Gunzel
>
>
>
> 12a. Re: EEG Result
>
> From: debbie riley
>
>
>
> Messages
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 1a. Re: Ever Have a Blood Test Lost?
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 2:51 am ((PDT))
>
>
>
> Traveling 2,
>
>
>
> I would go to your second Doctor in a heart beat.
>
> An office that can't keep track of their tests
>
> would scare me to death.
>
>
>
> Millie
>
>
>
> > I was ordered on meds in January. I was instructed to
> come back in late
>
> > March to have my blood levels checked. I called the
> office on 3/21 and
>
> > there was no order on record. The doctor signed orders
> on Wednesday and I
>
> > went in on Friday 3/20.
>
> >
>
> > I followed up Tuesday 3/24, and the test could not be
> found right away. I
>
> > gave my cell for call back. I did not hear anything so
> I called back
>
> > Thursday, 26. Still...no test found. I was then told
> it may have been sent
>
> > to the doctors other office, so I called there. They
> had no record and did
>
> > not think it would have been sent there, but would
> check. Again, left my
>
> > cell phone for call back. No call from either office
> on Friday. I am going
>
> > to make a point of it on Monday and make sure I
> escalate this to the duty
>
> > nurse, but please....the lack of follow-up does not
> make me me feel
>
> > better.
>
> >
>
> > I went to another doctor last month for a second
> opinion. He concurred
>
> > with my current doctor and said that he was a
> colleague at another
>
> > practice and I was in good hands. I really did like
> him more though
>
> > becuase of his bedsire manners. I also had a list of
> quesitons that I
>
> > brought and he answered them all.
>
> >
>
> > I am really thinking of switching over to the other
> doctor. This is my
>
> > health and I really do not want to have tests being
> missed and then not
>
> > getting an answer on why.
>
> >
>
> > What does the rest of the group think?
>
> >
>
> >
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 2a. Re: EEG results; seizure newbie(Jill)
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 3:04 am ((PDT))
>
>
>
> Jill,
>
>
>
> That is a good idea to get all the reports of whatever
> tests
>
> he has.
>
>
>
> When you have a GM sz your whole body's muscles stretch
> like
>
> if they were doing an exercise they weren't used to
> doing.
>
> That is probably why he was sore.
>
>
>
> Millie
>
>
>
> >
>
> > Steve,
>
> > Thanks so much for your reply and for taking time to
> think it through with
>
> > me.
>
> > And thanks for the offer to have my husband join. I
> think I'm the
>
> > official family email support grouper. No one else
> seems interested
>
> > (except my son, who is on a fishing group....but is
> that a "support
>
> > group"?)
>
> > I'm also on one for stroke survivors, thyroid
> cancer, restless legs
>
> > syndrome, ovarian cancer, and tremors. Such fun!! I
> share responses
>
> > with others, but they don't seem to want to
> write.
>
> > I'm thinking you're right about the age factor
> with the soreness.
>
> He
>
> > was also exhausted from it. He actually took naps for
> the first time
>
> > in his life, and seemed to need them. But he's
> almost back to normal,
>
> > now.
>
> > Your thoughts on whether the MRI possibilities could
> be significant
>
> > enough to cause the seizure are what's been on our
> minds. Could the
>
> > findings be important? All we know, so far, is that
> the ER doctor
>
> > saw the CT scan and said, "There's no brain
> tumor."
>
> > I immediately thought, "Maybe it's a small
> one and they just
>
> didn't see
>
> > it."
>
> > It was as if he could read my mind, because he looked
> at me and said,
>
> > "If a tumor had caused this, it would have been a
> BIG tumor, and we
>
> > would be seeing it in a CT scan."
>
> > So, I'm hoping he's right about that. If not,
> then you might be
>
> > right, that we're onto something, with the MRI.
> Oh, one other reason
>
> > I was sorta discounting the serious possibilities of
> the MRI, was
>
> > that there was no differences in symmetry, no shift in
> position, and
>
> > no mass apparent. So, it's just a brighter area.
> But hey, who am I
>
> > to read a MRI report, right? :)
>
> > You were right about the details I know. I'm a
> stickler for being a
>
> > team player with the doctors. I always get my lab and
> diagnostic
>
> > reports. Several times it's saved us from taking
> a wrong medical
>
> step.
>
> > Thanks again, for all your thoughts. :)
>
> > Jill
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Steve wrote:
>
> > Hi Jill,
>
> > Welcome to the group! Sorry to hear your husband had
> his first
>
> > seizure this month! First off, get your husband into
> the group
>
> > (smile). Allot of what might be running through both
> your minds we
>
> > call all relate to!, big time! You posted about
> specifics in great
>
> > detail which a majority of us wouldn't have a clue
> about (smile)! As
>
> > far as relating the details to basics as far as your
> husband goes I
>
> > would think the following as far as what you
> described. As far as
>
> > being sore for 3 weeks now. Might it be that when he
> had a grand mal,
>
> > might it be adding his age, the stressful body
> movement together
>
> > might be nothing more than pulling a muscle? I'm
> 51 and am pulling
>
> > muscles allot more than when I was younger (smile)! As
> far as vein
>
> > infections from the dye for an MRI. That would have
> nothing to do
>
> > with a seizure or epilepsy. And as far as the fun test
> (smile) called
>
> > a colonoscopy! I was put on meds. for a year after the
> results where
>
> > found. But in a year was taken off it. That had
> nothing to do with a
>
> > seizure or epilepsy either. And as far as the MRI
> results, might it
>
> > be that what you described what might become a nasty
> tumor might be a
>
> > possible cause for the seizure? Where the smaller
> piece found might
>
> > be located in an area of the brain which caused
> electrical activity
>
> > to be affected? Brain tumors can cause a seizure or
> seizures. Also,
>
> > you said he had his seizure was in front of the
> computer. Seizures
>
> > can be caused by a person who is more light sensitive.
> Such as
>
> > flashing police car lights, constantly changing
> channels on TV or
>
> > screens on the computer, oncoming traffic at night,
> the lights in a
>
> > disco (ect). Those changing flashing lights is a
> common cause for
>
> > seizures for a person with epilepsy. Also, stress is
> an easy way to
>
> > bring on seizures for a person with epilepsy! You add
> all these
>
> > different things together and just maybe, bits or a
> couple of
>
> > different things might be what brought on his seizure,
> who knows?
>
> > Just some thoughts. Get your husband in here if he
> could use support
>
> > by friends as far as seizures, life, the meds side
> affects ect...
>
> > Hey, we are nothing more than a group of people on
> this planet who
>
> > can relate to each other so much (smile)! Take care,
> keep a smile on your
>
> > face!
>
> > Steve
>
> >
>
> >
>
> >
>
> > [Non-text portions of this message have been removed]
>
> >
>
> >
>
>
>
> Messages in this topic (2)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3a. Re: anyone pregnant/ have been pregnant?
>
> Posted by: "petenlynds" petenlynds@yahoo.
> com petenlynds
>
> Date: Mon Mar 30, 2009 4:26 am ((PDT))
>
>
>
> --- In epilepsy@yahoogroup
> s.com, "lucy133_daisy"
>
> <lucy133_daisy@ ...> wrote:
>
> >
>
> > Hi all,
>
> >
>
> > I am looking for someone who is pregnant (or already
> has kids!) for some
>
> advice.
>
> >
>
> > I'm 15 weeks pregnant, and on lamictal. Have
> already had one seizure
>
> during the pregnancy, and would like some reasurrance/
> advice from any of the
>
> epileptic ladies here!
>
> >
>
> > TIA, Lucy.
>
> > lucy133_daisy@ ...
>
> >
>
>
>
> Hi Lucy,
>
>
>
> CONGRATULATIONS! !! I took Lamictal during my pregnancy 5
> years ago.
>
> I was very scared but that is the safest med to be on
> during pregnancy and has
>
> the least side effects. I have a healthy beautiful little
> girl. I did not have
>
> any serious complications. I had several small seizures
> during my pregnancy and
>
> had no problems. I was treated as high risk they may treat
> you as high risk as
>
> well. Prior to my daughter I had 2 miscarriages but at
> that time I was taking
>
> tegretol and neurontin. After that my dr. switched me to
> Lamictal because I
>
> wanted to try again and he said that it would be safer.
> Sure you will still
>
> have a small risk of complications but it is very small.
> I'm sure they will
>
> monitor you closely. I have a very healthy extremely
> intelligent child. They
>
> were not certain if it was the meds or just my
> endometriosis. I know it is
>
> nerve racking but remain positive and keep your chin up.
> My dr. also told me to
>
> take extra folic acid. So I took double what you normally
> would take. Lamictal
>
> depletes what your body naturally makes. If you were not
> informed of that ask
>
> your dr. Make sure you continue to see your Neurologist as
> well as your OB. If
>
> you are 15 weeks you are already at the safe point.
> Congratulations you made it
>
> through your first trimester. The only thing that I found
> with taking Lamictal
>
> during my pregnancy was that I had sleepless nights so I
> did a lot of resting
>
> during the day. Lamictal can cause that anyway but I found
> that I had more of a
>
> problem with it during pregnancy. Take care of yourself
> and remember to remain
>
> positive. Listen to your body and do not over do it rest
> when you need to.
>
> Take care and best wishes.
>
> Lyndsey (smile)
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3b. Re: anyone pregnant/ have been pregnant?
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 5:12 am ((PDT))
>
>
>
> Hi Lucy,
>
>
>
> Welcome to the group. I had my 1st sz when I
>
> was carrying my 2nd daughter and my 2nd sz when
>
> I was carrying my 3rd daughter.I do not remember
>
> what meds the Dr. gave me. My daughters are all
>
> near 50 years of age now.
>
>
>
> The Dr. thought pregnancy and I didn't mix so I had
>
> my tubes tied. When my 3rd daughter was 2 I had
>
> another sz and that took me 30 miles away to the
>
> closest EEG machine at that time. There I found out
>
> I had EP, couldn't drive for a year and needed to be
>
> on meds the rest of my life.
>
>
>
> I've been on a few meds but now have been on Dilantin
>
> and Phenabarb for over 20 years. Everybody has to find
>
> the med or combination of meds for them. My last sz was
>
> over 2 years ago and before that it was 4 years.
>
>
>
> I do suggest that you use the brand name drug of whatever
>
> your Dr.recommends. I also suggest that you keep a diary
>
> of when you take your meds, when you have a sz. what
> happens
>
> when you have a sz, how long the sz lasts and how long it
>
> takes you to get back to your usual self. That will help
> the
>
> Dr and you to see if there is a pattern.
>
>
>
> I have learned so much from this group. Read all the
> letters and
>
> you will also.
>
>
>
> Millie
>
>
>
> > Hi all,
>
> >
>
> > I am looking for someone who is pregnant (or already
> has kids!) for some
>
> > advice.
>
> >
>
> > I'm 15 weeks pregnant, and on lamictal. Have
> already had one seizure
>
> > during the pregnancy, and would like some reasurrance/
> advice from any of
>
> > the epileptic ladies here!
>
> >
>
> > TIA, Lucy.
>
> > lucy133_daisy@
> hotmail.com
>
> >
>
> >
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3c. Re: anyone pregnant/ have been pregnant? Thanks:-)
>
> Posted by: "lucy133_daisy" lucy133_daisy@
> hotmail.com
>
> lucy133_daisy
>
> Date: Mon Mar 30, 2009 7:23 am ((PDT))
>
>
>
> Thank you so much for your kind words and advice, Lyndsey
> and Millie!
>
> I am also taking Lamictal, and feel so relieved to hear
> that you both have
>
> healthy kids.
>
> Had an ultrasound today, and it's a boy!
>
> Am going to try and enjoy the pregnancy, and not worry all
> the time because of
>
> the epilepsy.
>
> Thanks again ladies:)
>
> Lucy.
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3d. Re: anyone pregnant/ have been pregnant?
>
> Posted by: "Mary Allen" jake100036@yahoo.
> com jake100036
>
> Date: Mon Mar 30, 2009 6:30 pm ((PDT))
>
>
>
> hello,  i have a daughter with epilepsy, she got this from
> a car accident when
>
> she was 15.  she didn"t have her first seizure until
> she was 18.   She
>
> is now 26 and has had 2 children and one on the way.  She
> has continued to take
>
> 1200 mg of lamictal a day, and is doing fine.  The
> seizures were pretty severe
>
> in the beginning, but are mainly mild ones every once in
> awhile.  She currently
>
> isn,t driving because her last big one was last July, and
> the state and her
>
> family will not let her drive.  I always worry about her
> and always will.  It
>
> is very hard to watch your child live this way,  but i
> thank God everyday that
>
> she is mine... Good Luck and Just have Faith,,,, God
> doesn't give us more
>
> than we can handle,,,,,, with love and prayers,,,,, , a 
> MOM 
>
>
>
> ____________ _________ _________ __
>
> From: lucy133_daisy <lucy133_daisy@
> hotmail.com>
>
> To: epilepsy@yahoogroup
> s.com
>
> Sent: Monday, March 30, 2009 2:28:19 AM
>
> Subject: [epilepsy] anyone pregnant/ have been pregnant?
>
>
>
> Hi all,
>
>
>
> I am looking for someone who is pregnant (or already has
> kids!) for some
>
> advice.
>
>
>
> I'm 15 weeks pregnant, and on lamictal. Have already
> had one seizure during
>
> the pregnancy, and would like some reasurrance/ advice from
> any of the epileptic
>
> ladies here!
>
>
>
> TIA, Lucy.
>
> lucy133_daisy@ hotmail.com
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 4. I was at an EFA lecture last week
>
> Posted by: "no_seizures_ since_surgery" stephenpales@
> yahoo.com
>
> no_seizures_ since_surgery
>
> Date: Mon Mar 30, 2009 4:31 am ((PDT))
>
>
>
> I was at a lecture Thursday night by the EFA branch here
> near Chicago. One
>
> thing mentioned which I've heard many times before says
> so much in few
>
> words. They spoke about after the first few meds tried and
> don't control
>
> your seizures, the lower the chance of success in each new
> med. you try. More
>
> and more they are suggesting looking into surgery sooner
> than ever before.
>
> There are statistics of success you might be interested in
> asking your Dr. about
>
> as far as the percentage of success going down each new
> med. you try. Maybe
>
> those stats. could be found through the EFA? It was most
> definitely a very
>
> interesting lecture followed by Q/A by 2 Drs. The subject
> was "Epilepsy and
>
> Testing for Cognitive Deficits" And boy do I have
> cognitive deficits (big
>
> smile)! Allot of us can truly relate to that (smile)!
> Take care, keep a smile
>
> on your face!
>
>
>
> Steve
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.1. Re: new member
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 4:42 am ((PDT))
>
>
>
> Cathy,
>
>
>
> Welcome to our group. I don't have any experiecne
> with
>
> children but I have had EP for 46 years. I was diagnosed
>
> (DX) when I was 30.
>
>
>
> I have learned a lot from this group. Just read all the
>
> letters. You will hear from many. There are 30 different
>
> kind of meds. Your Dr. needs to find the one that fits
>
> your daughter.
>
>
>
> Keep on asking questions.
>
>
>
> Millie
>
>
>
> > my 7 yr old daughter was just diagnosed with epilepsy
> this past friday,
>
> > she had 2 grand mal seizures in less than a week. I
> have been reading
>
> > about the different meds and this is very scary!!!! I
> would love to hear
>
> > from anywone who could give me advice,
> answers,anything!
>
> >
>
> > cathie
>
> >
>
> >
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.2. Re: new member
>
> Posted by: "Kirsten" kirsty815@yahoo.
> com kirsty815
>
> Date: Mon Mar 30, 2009 8:16 am ((PDT))
>
>
>
> Hey Cathy,
>
> My daughter is 6 and has had epilepsy since she was a month
> old. I can tell
>
> you about our experiences with some meds. I know how scary
> it can be, but your
>
> in a trial and error period right now to see what med will
> work best for your
>
> daughter. The key is to find an epileptologist you trust
> and feel comfortable
>
> talking to.
>
>
>
> Meg started with Myoclonic seizures but they've always
> changed, she now has
>
> complex partial seizures, she's been pretty well
> controlled on meds and
>
> hasn't had a seizure since Aug '07'. Meds
> we've tried are
>
> Phenobarbital, dilantin, tryleptal, neurontin, and Keppra.
> Right now she's
>
> on 9cc's of Phenobarbital and 3cc's of Keppra 2 x a
> day (we're
>
> currently weaning the Pheno to see if she can stay seizure
> free on just the
>
> Keppra). I joined this group a little over a week ago and
> they are all very
>
> friendly and helpful.
>
>
>
> Welcome
>
> Kirst
>
> --- In epilepsy@yahoogroup
> s.com, "cathiebutler"
>
> <cathiebutler@ ...> wrote:
>
> >
>
> > my 7 yr old daughter was just diagnosed with epilepsy
> this past friday,
>
> she had 2 grand mal seizures in less than a week. I have
> been reading about the
>
> different meds and this is very scary!!!! I would love to
> hear from anywone who
>
> could give me advice, answers,anything!
>
> >
>
> > cathie
>
> >
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.3. Re: new member
>
> Posted by: "Tammy Wolfgram" tammy@maccetera.
> com arammat
>
> Date: Mon Mar 30, 2009 9:52 am ((PDT))
>
>
>
> To the Mom of the child who was just diagnosed with
> epilepsy,
>
>
>
> First, I'm sorry I forgot to grab your name. My
> daughter Megan
>
> started having seizures right around the time she turned
> ten. I don't
>
> want to step on anyone's toes, so I hope everyone reads
> this in the
>
> spirit in which is was written. I am so glad that my
> husband was
>
> diagnosed with esophageal before Megan was diagnosed with
> epilepsy,
>
> because dealing with cancer has given me an entirely
> different
>
> perspective than I think I would have had without that
> experience.
>
>
>
> My attitude at that time was that anything that didn't
> have a better
>
> than 90% change of killing you wasn't really worth
> worrying about too
>
> much. (It's still pretty much my attitude:) I am always
> grateful that
>
> I had that reaction, as it allowed Megan to live her life
> as normally
>
> as possible. I'm not suggesting you should be reckless
> where your
>
> child's safety is concerned, but don't overdo the
> protection either.
>
> I understand how a diagnosis like epilepsy can overshadow
> everything
>
> else, but only if you let it. Focus on making your
> child's life as
>
> normal as possible. If you are afraid to even have your
> child out of
>
> your sight because of epilepsy, he or she will pick up on
> that fear
>
> and very likely become fearful, too.
>
>
>
> Obviously, everyone's situation is different. Some
> children will
>
> outgrow their seizures and others may not. Some will only
> have an
>
> occasional seizure, while others may have dozens in a a
> single day.
>
> And you have to keep your own child's circumstances in
> mind as you
>
> make decisions. I'm just encouraging you to not let
> this diagnosis
>
> overwhelm you or your child. Life does go on and life can
> still be
>
> wonderful.
>
>
>
> Take care,
>
> Tammy
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.4. Re: new member
>
> Posted by: "uniquepnk tds.net" Uniquepnk@tds.
> net uniquepnk
>
> Date: Mon Mar 30, 2009 11:20 am ((PDT))
>
>
>
> Cathie,
>
>
>
> Welcome to the group. I have complex partial seizures. They
> were caused from
>
> a head injury when I was a baby. I am 40 now. There are
> many different
>
> medicines, so you will have to work with the doctors to
> find out what works
>
> for you daughter. It takes time to find the right
> combination. My seizures
>
> are not fully controlled,but with the medicine I am on they
> are not as bad
>
> as they were when I was younger.There is plenty of
> information here and if
>
> you need anything, write anytime. Take care.
>
>
>
> Tammy
>
>
>
> On Sun, Mar 29, 2009 at 8:02 PM, cathiebutler
>
> <cathiebutler@
> yahoo.com>wrote:
>
>
>
> > my 7 yr old daughter was just diagnosed with
> epilepsy this past friday,
>
> > she had 2 grand mal seizures in less than a week. I
> have been reading
>
> about
>
> > the different meds and this is very scary!!!! I would
> love to hear from
>
> > anywone who could give me advice, answers,anything!
>
> >
>
> > cathie
>
> >
>
> >
>
> >
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.5. Re: new member
>
> Posted by: "kteribond@aol.
> com" kteribond@aol.
> com love2skrap
>
> Date: Mon Mar 30, 2009 5:41 pm ((PDT))
>
>
>
> Hi Cathie,
>
> Welcome to the group. I have an 8 year old daughter that
> has had Epilepsy
>
> since she was 3 years old. She mainly has complex partials
> that usually occur
>
>
>
> in her sleep, which many times generalize into GM.
>
> What medication have they started your daughter on? My
> daughter was
>
> initially on Trileptal, but is now on Depakote and Keppra.
>
>
> It's a very scary process in the beginning dealing with
> all of this. But,
>
>
>
> it does get better. You will learn a lot from the others
> in this group.
>
> If I can help you in anyway please let me know.
>
> Kim
>
>
>
>
>
> Kim Bond
>
> Scrapbook Advisor #1440
>
> Picture Perfect Scrapbook Co;
>
> _www.scraplifesart. com_ (http://www.scraplif
> esart.com/)
>
> Contact me to get a copy of our NEW Catalog!!
>
>
>
> In a message dated 3/29/2009 4:05:40 P.M. Pacific Standard
> Time,
>
> cathiebutler@
> yahoo.com writes:
>
>
>
> my 7 yr old daughter was just diagnosed with epilepsy this
> past friday, she
>
> had 2 grand mal seizures in less than a week. I have been
> reading about the
>
> different meds and this is very scary!!!! I would love to
> hear from anywone
>
> who could give me advice, answers,anything!
>
>
>
> cathie
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 6. Epilepsy Research Results
>
> Posted by: "Belinda Shale"
>
> belinda.shale@
> thepatientconnec tions.com thepatientconnectio n
>
> Date: Mon Mar 30, 2009 7:03 am ((PDT))
>
>
>
> Hi Everyone
>
>
>
> Just to let you know that our epilepsy research results are
> now avaiable online
>
>
>
> http://www.thepatie
> ntsvoice. org/Epilepsy/
>
>
>
> Please do feel free to use the infomation as you see fit.
> However we do ask
>
> that you link to the page if you choose to do so
>
>
>
> Rgds
>
>
>
> Belinda
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 7. Re: JILL [epilepsy] Re: EEG Result, seizure newbie
>
> Posted by: "Uggie" ugmcginnis@embarqma
> il.com min9200meg
>
> Date: Mon Mar 30, 2009 7:26 am ((PDT))
>
>
>
> Jill -
>
> Ur husband needs to tell the drs that are treating him that
> he has a
>
> sensitivity to the IV dye. I know when I have to get an
> MRI with IV dye - I
>
> have to take a few days prior of additional (allergy) meds
> - so I don't
>
> have
>
> a reaction to that dye. U may check into this and see if
> his drs have it
>
> listed about his reactions to the IV dye.
>
>
>
> Just a thought
>
> Uggie
>
>
>
> -------Original Message----- --
>
>
>
> From: Jill Gunzel
>
> Date: 3/28/2009 7:53:08 PM
>
> To: epilepsy@yahoogroup
> s.com
>
> Subject: [epilepsy] Re: EEG Result, seizure newbie
>
>
>
> Dear Group,
>
> It was so interesting to read someone's post about EEG
> results not
>
> really showing anything (unless something happened to be
> going on
>
> during the test).
>
> I'm new to the group. My husband (57 yrs old,
> otherwise extremely
>
> healthy)) had a first time seizure, March 10. So far, the
> CT scan
>
> was clear, the blood test showed a definite tonic/clonic
> seizure
>
> (high CO2), he's been sore for almost 3 weeks (back
> xray showed no
>
> break), MRI showed a bright signal in the T2 area (so
> we'll retake it
>
> in April), and the EEG is next week. His blood tests
> showed kidney
>
> functions were way off a few days after the seizure. And
> he managed
>
> to get two vein infections from the IV's (from the
> ambulance and also
>
> from the dye with the MRI...he had an infection last year
> from the IV
>
> for a colonoscopy. Not sure why he's so prone to
> those.)
>
>
>
> The MRI report was slightly scary, because they gave those
>
> speculations on why there was a bright signal. I wish I
> hadn't
>
> looked up the terms they used (demylinating process, which
> is MS, and
>
> low grade neoplasm...which could be an early stage of a
> nasty
>
> tumor). But it was only "possibilities" . Our
> primary care
>
> doc's
>
> comment was, "They don't have a clue!" And I
> figure neither of
>
> those
>
> possibilities were big enough to have caused the
> seizure....so I"m
>
> trying to convince myself it was either always that way, or
> a result
>
> of the seizure, which was listed as another less likely
> possibility.
>
>
>
> The morning of the seizure, he was sitting at his computer
> and just
>
> keeled over onto the floor with the seizure. He'd been
> extremely
>
> constipate (like for a week), had taken 2 Exlax the night
> before and
>
> 2 that morning, and had just had a major dump. He was also
> taking
>
> cold meds for a nasty cold, and he'd had a lot of
> coffee. So, if
>
> electrolyte imbalance and/or viruses can be the
> cause....I'd like to
>
> think that was enough to be the case.
>
>
>
> For now, we're waiting for the EEG, the next MRI, the
> bloodtests to
>
> confirm kidneys are back....and an okay to start driving
> again. If
>
> any of you have a different take on this, I'd be very
> interested in
>
> hearing from you.
>
> Best wishes to all,
>
> Jill
>
>
>
>
>
>
>
> ------------ --------- --------- ------
>
>
>
> Just a friendly reminder: Please remember to sign your post
> and remember to
>
> clean up messages when you reply to them. This is
> especially important if
>
> you are on digest. This not only helps out the list owner
> but, it makes
>
> messages much easier to read when they arrive in our
> inboxes.
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>
> ____________ _________ _________ _________ _________
> _________ _
>
>
>
> No virus found in this incoming message.
>
> Checked by AVG - www.avg.com
>
> Version: 8.0.238 / Virus Database: 270.11.31/2028 - Release
> Date: 03/28/09
>
> 07:16:00
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 8a. Re: Seizures and Medications
>
> Posted by: "Karina Castillo" castillokarina88@
> yahoo.com
>
> castillokarina88
>
> Date: Mon Mar 30, 2009 8:00 am ((PDT))
>
>
>
> Well hardly, i used to be taking lamictal but now my doctor
> changed my
>
> prescription so now I am taking keppra 500mg.
>
> 1/2 in the morning, 1 in the pm, and 1 daily. And I feel
> fine as now.
>
> What medication is she taking? I used to take lamictal.
>
>
>
> ____________ _________ _________ __
>
> From: Barbara Allen <barb.allen50@
> yahoo.com>
>
> To: epilepsy@yahoogroup
> s.com
>
> Sent: Thursday, March 26, 2009 8:20:37 PM
>
> Subject: Re: [epilepsy] Re: Seizures and Medications
>
>
>
> My daughter takes 500 mg of Lamictal morning and night.
> Last night we went to
>
> see a local Epilepsy doc speak, he said she should not be
> taking the lamictal at
>
> night because it can cause insomnia (which has been the
> case with her), so she
>
> is going to talk to her doc. He also said that the generic
> drug has a 20%/20%
>
> which means the drug companies only have to come within 20%
> more or less of the
>
> effectivemness of the brand name drug so depending on how
> frequent and severe
>
> the seizures are you may want to stay away from generic.
>
>
>
> --- On Thu, 3/26/09, Doris <dorisellen@ nc. rr.com>
> wrote:
>
>
>
> From: Doris <dorisellen@ nc. rr.com>
>
> Subject: [epilepsy] Re: Seizures and Medications
>
> To: epilepsy@yahoogroup s.com
>
> Date: Thursday, March 26, 2009, 6:57 PM
>
>
>
> Hi Marie,
>
> Very glad Lamictal working well for you and the super thing
> is that you are
>
> going to persue your education online. That is a terrific
> idea. It will be an
>
> accomplishment and it will be super satisfying. There is so
> much we can do
>
> online. I am on the Lamictal too, 200mg twice daily. I
> still have seizures but
>
> they are nocturnal and it happens usually twice a month. I
> have my license too
>
> and it is very meaningful to me too. For a super amount of
> years I did not have
>
> it since seizures were during the day. Left temporal
> lobectomy changed that
>
> about 12 years ago. I hope you have real good insurance
> since the Lamictal is
>
> expensive unless you use the generic type. If by chance you
> do use generic,
>
> please fill me in as I keep thinking maybe sometime I will
> be able to change to
>
> that because of the cost involved. Good luck and fill in on
> how you are doing.
>
> Take care.
>
> Doris
>
>
>
> --- In epilepsy@yahoogroup s.com, Danny Newell
> <bigboy46@.. .> wrote:
>
> >
>
> > i know some meds work different on people, i did get a
> vasectomy at a very
>
> young age. i was only 20 years old.
>
> >
>
> >
>
> >  
>
> >
>
> >
>
> >
>
> >
>
> > --- On Thu, 3/26/09, moblondielpn <annaackermann@
> ...> wrote:
>
> >
>
> > From: moblondielpn <annaackermann@ ...>
>
> > Subject: [epilepsy] Seizures and Medications
>
> > To: epilepsy@yahoogroup s.com
>
> > Date: Thursday, March 26, 2009, 8:41 AM
>
> >
>
> > Seems they are different for each of us. I take
> lamitcal for years now. I
>
> works
>
> > for me. Wont say haven't had any but it has helped
> me.
>
> > I am back at work. I can drive. of course we never
> forget that in one day
>
> that
>
> > can all change and I could start having them
> frequently again.
>
> > I had to have a hysterectomy about the same time I
> started lamitcal I
>
> always
>
> > had seizures and
>
> > bad ones around that "time of the month" So
> that also helped I
>
> am
>
> > sure.
>
> > I am a L.P.N. and now Hubby and i have decided for me
> to try to get my
>
> > R.N.online . take my time and just try. Even if
> studies takes a few
>
> years.. I
>
> > always even as a child that I am not so smart. Killed
> to many brain cells
>
> I
>
> > guess. My husband says that I am smarter than I think
> I am. But being
>
> treated
>
> > like I was mentally challenged as a child didn't
> help I'm sure. No
>
> one
>
> > explained to me anything about seizures and My
> childhood is a lifetime
>
> movie for
>
> > sure.
>
> > So I will try a subject at a time. I need some
> encouragement please.
>
> > Marie
>
> >
>
> >
>
> >
>
> > ------------ --------- --------- ------
>
> >
>
> > Just a friendly reminder: Please remember to sign your
> post and remember
>
> to
>
> > clean up messages when you reply to them. This is
> especially important if
>
> you
>
> > are on digest. This not only helps out the list owner
> but, it makes
>
> messages
>
> > much easier to read when they arrive in our inboxes.
>
> >
>
> > Yahoo! Groups Links
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > [Non-text portions of this message have been removed]
>
> >
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (19)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 9a. Re: Does This Happen To You? [Annette]
>
> Posted by: "TIMOTHY BALDWIN" tbb1@prodigy.
> net tbb19572000
>
> Date: Mon Mar 30, 2009 8:05 am ((PDT))
>
>
>
> Millie,
>
>  
>
> Complex-partial siezures are unconscious partial siezures.
> My seizures in one
>
> area of my brain is all that is nechacerly to show that
> they are partial.
>
> And that my unconsciousness shows that defines that they
> are complex. Thank
>
> you. 
>
>  
>
> Timothy Baldwin < tbb1@prodigy.
> net >
>
>
>
> --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
>
>
> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Monday, March 30, 2009, 5:26 AM
>
>
>
> Annette,
>
>
>
> You usually pass out with a GM. With a Complex partial
>
> or an absence or other kinds- you don't pass out.--
> your
>
> brain just isn't working like usual. You don't
> hear
>
> what is going on and sometimes can't talk. There are
> 25
>
> different kinds of szs.
>
>
>
> Millie
>
>
>
> > Hi Millie:  I don't get Medicare  I get
> "Minnesota 
>
> Care"  Because I am
>
> > from Minnesota-- I getmy meds Cheap  cuz the State
> pays for it and I pay
>
> a
>
> > CO---Pay.  Oh, I was taking to a friend and she said
> the seizures I was
>
> > have were GM.  But I don't understand I was
> sitting>>>> 
>
> I thought the GM
>
> > is ONLY when you fall to the floor? 
>
> >
>
> >
>
> >
>
> > From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> > Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> > To: epilepsy@yahoogroup s.com
>
> > Date: Saturday, March 28, 2009, 8:44 AM
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Annette,
>
> >
>
> > Before Medicare d -- I had been getting my meds almost
> free.
>
> > Dilantin (brand name) was free. Then Medicare D came
> in and
>
> > they changed it to generic. I had a complex partial--
> or
>
> > something like it and my Dr. ordered the brand name. I
> had
>
> > been sz free for 4 years. I've been on a
> combination of Dilantin
>
> > and Phenabarb for over 20 years.
>
> >
>
> > Millie
>
> >
>
> >>   Hi Millie : My Insurance that I get thru the
> State does't cover
>
> >> regular
>
> >> EP  meds I was on it but now I sopose cuz the
> Country's pinching
>
> >> pennies 
>
> >> they want to try me out on Generic  .   I have
> been on these 2
>
> types of
>
> >> Meds 4 years.  Maybe I will have 2 b a Guinne Pig
> again   ( which I
>
> >> really
>
> >> don't)  Maybe it takes longer/  who knows 
> thanks 4 your
>
> reply. 
>
> >> ~~Annette~~
>
> >>
>
> >> --- On Fri, 3/27/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >>
>
> >>
>
> >> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >> Subject: Re: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >> To: epilepsy@yahoogroup s.com
>
> >> Date: Friday, March 27, 2009, 8:47 PM
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> Anne,
>
> >>
>
> >> Generic meds for EP don't seem to work too
> well. I know I need
>
> >> to take the Brand name. It is more expensive but
> if it works--fine.
>
> >>
>
> >> Or maybe you need another med. There are 30
> different kinds of meds.
>
> >> Or a combination. Each person has to find the one
> that works for them.
>
> >>
>
> >> Millie
>
> >>
>
> >>>   Hi  At   first it was Grandmal  then 
> I started haveing
>
> what are
>
> >>> called
>
> >>> Complex Partial, and Simple Partial  I just
> called them Medium
>
> Seizures
>
> >>> or
>
> >>> Small Seizures  cuz to me that is what they
> are to me  also
>
> "Clusters" 
>
> >>> haveing small ones right after another. I am
> sopose to take
>
> Lorazapam 1
>
> >>> mg.  When it does that,  But Latnight I was
> on the computer and
>
> I had 3
>
> >>> (
>
> >>> what I call) Complex Partial and very
> different I just sat at my
>
> chair
>
> >>> andjust shook and then my head hurt like my
> brain was rattled
>
> >>> (headache) 
>
> >>> Then I read that Lamictial makes ya not
> sleepy  I doesnt matter
>
> what
>
> >>> time
>
> >>> I take my meds I still can't fall
> asleep.   I am now on Both
>
> Generic
>
> >>> Keppra  & Generic Lamictal    to me I
> think it isn't
>
> working cuz I have
>
> >>> not had these many seizures in years.  ~Hope
> this answers your
>
> >>> questions~~      ~~Annette~~
>
> >>>
>
> >>> --- On Fri, 3/27/09, pat040394
> <ltpat228@comcast. net>
>
> wrote:
>
> >>>
>
> >>>
>
> >>> From: pat040394 <ltpat228@comcast. net>
>
> >>> Subject: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >>> To: epilepsy@yahoogroup s.com
>
> >>> Date: Friday, March 27, 2009, 5:18 PM
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> Annette - what kind of epilepsy were you
> diagnosed?
>
> >>>
>
> >>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>
> >>>
>
> >>> --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@
>
> ...>
>
> >>> wrote:
>
> >>>>
>
> >>>>   I don't really know What I do know
> is that I have G.M
>
> (grandmals, Cp
>
> >>>> -complex partial  what I call
> med.  seizures   and Sp
>
> Simple Partial
>
> >>>> what I call little ones cuz they  last
> only sec.)  I have a
>
> V.N.S.  
>
> >>>> Vagel Nerve Stimalator   I like it . 
> going on 8 yrs now
>
> .   
>
> >>>> ~~Annette~~
>
> >>>>
>
> >>>> --- On Wed, 3/25/09, pat040394
> <ltpat228@.. .> wrote:
>
> >>>>
>
> >>>>
>
> >>>> From: pat040394 <ltpat228@.. .>
>
> >>>> Subject: [epilepsy] Re: Does This Happen
> To You?
>
> >>>> To: epilepsy@yahoogroup s.com
>
> >>>> Date: Wednesday, March 25, 2009, 7:09 PM
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> Well I called my Neuro today and left a
> message with her
>
> Nurses about
>
> >>>> my
>
> >>>> episode.
>
> >>>> For me it's paramount as hopefully
> this will aide her in
>
> my diagnosis.
>
> >>>>
>
> >>>> What kind of epilepsy do you have?
>
> >>>>
>
> >>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>
> >>>>
>
> >>>> --- In epilepsy@yahoogroup s.com, Annette
> Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>> >
>
> >>>> >   ok-- I was standing outside  A
> Hospital   cuz my
>
> stepdaughter just
>
> >>>> had twins  and felt weird I could feel my
> head turn to the
>
> right  ( I
>
> >>>> knew it wasn't sopose to )  I new it
> was an involentary
>
> movement (
>
> >>>> there were other people standing near
> me)  but didn't
>
> notice .  which
>
> >>>> was ok  don't want to freak them out
> ( some of the people
>
> know about
>
> >>>> my seizures)   it also was 2-3 pm.  
> and also I felt like
>
> I was
>
> >>>> spacy~~!!  It just seemed really odd I
> sopose I should tell
>
> my neuro 
>
> >>>> X-Cept  I don't want her to(up) the
> meds . I hate that
>
> when they do
>
> >>>> that. 
>
> >>>> >
>
> >>>> > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .> wrote:
>
> >>>> >
>
> >>>> >
>
> >>>> > From: pat040394 <ltpat228@ .>
>
> >>>> > Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>> > To: epilepsy@yahoogroup s.com
>
> >>>> > Date: Wednesday, March 25, 2009, 5:19
> PM
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> > Please tell me, Annette, what exactly
> happened with you.
>
> >>>> >
>
> >>>> > My episode occured mid afternoon.
>
> >>>> >
>
> >>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~~~~ ~~
>
> >>>> >
>
> >>>> > --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>> > >
>
> >>>> > >   Hi~~ Yes, this has happened
> to me about 3 wks
>
> ago, I wasn't at
>
> >>>> the
>
> >>>> computer, but I have noticed it a few
> times,  I don't
>
> know what I'd
>
> >>>> call it I  think it is a type of seizure
> cp-----sp  ?   I
>
> don't know
>
> >>>> if this has happened to you besides being
> on the computer  I
>
> have
>
> >>>> noticed when I play .  certain games on
> the computer this
>
> happenes
>
> >>>> to me .  ~~Annette~~  I cannot say about
> others cuz they are
>
> all
>
> >>>> different just like we are.
>
> >>>> > >
>
> >>>> > > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .>
>
> wrote:
>
> >>>> > >
>
> >>>> > >
>
> >>>> > > From: pat040394 <ltpat228@
> .>
>
> >>>> > > Subject: [epilepsy] Does This
> Happen To You?
>
> >>>> > > To: epilepsy@yahoogroup s.com
>
> >>>> > > Date: Wednesday, March 25, 2009,
> 3:08 PM
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > > Last Sunday I was sitting here
> at my computer when
>
> it occured to
>
> >>>> me
>
> >>>> I was staring, then my neck and head
> started to pull/twitch to
>
> the
>
> >>>> right. I think when the pulling began,
> that's when I
>
> realized
>
> >>>> something was odd and I shook my body so
> it would stop. I
>
> really had
>
> >>>> to concentrate and force myself so my neck
> would go back
>
> right.
>
> >>>> > >
>
> >>>> > > I really can't say how long
> it lasted but maybe
>
> up to 30 seconds?
>
> >>>> > > I say this as when I stare, I
> truly don't know
>
> how much time goes
>
> >>>> by.
>
> >>>> > > Afterwards I felt worn out for
> some reason.
>
> >>>> > >
>
> >>>> > > As most of you know, I'm
> still being tested and
>
> haven't yet been
>
> >>>> diagnosed with epilepsy, although my
> Neurologist suspects
>
> absence
>
> >>>> petit mals.
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > > [Non-text portions of this
> message have been
>
> removed]
>
> >>>> > >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> > [Non-text portions of this message
> have been removed]
>
> >>>> >
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> [Non-text portions of this message have
> been removed]
>
> >>>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> [Non-text portions of this message have been
> removed]
>
> >>>
>
> >>>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> [Non-text portions of this message have been
> removed]
>
> >>
>
> >>
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
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> >
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> >
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>
> >
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> >
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> > [Non-text portions of this message have been removed]
>
> >
>
> >
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (23)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 9b. Re: Does This Happen To You? [Annette]
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 9:18 am ((PDT))
>
>
>
> Timorthy,
>
>
>
> Do you pass out or are you not aware of what is going on?
>
>
>
> Millie
>
>
>
> > Millie,
>
> >  
>
> > Complex-partial siezures are unconscious partial
> siezures. My seizures in
>
> > one area of my brain is all that is nechacerly to show
> that they are
>
> > partial. And that my unconsciousness shows
> that defines that they are
>
> > complex. Thank you. 
>
> >  
>
> > Timothy Baldwin < tbb1@prodigy.
> net >
>
> >
>
> > --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >
>
> > From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> > Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> > To: epilepsy@yahoogroup
> s.com
>
> > Date: Monday, March 30, 2009, 5:26 AM
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Annette,
>
> >
>
> > You usually pass out with a GM. With a Complex
> partial
>
> > or an absence or other kinds- you don't pass
> out.-- your
>
> > brain just isn't working like usual. You don't
> hear
>
> > what is going on and sometimes can't talk. There
> are 25
>
> > different kinds of szs.
>
> >
>
> > Millie
>
> >
>
> >> Hi Millie:  I don't get Medicare  I get
> "Minnesota 
>
> Care"  Because I am
>
> >> from Minnesota-- I getmy meds Cheap  cuz the
> State pays for it and I
>
> pay
>
> >> a
>
> >> CO---Pay.  Oh, I was taking to a friend and she
> said the seizures I
>
> was
>
> >> have were GM.  But I don't understand I was
>
> sitting>>>>  I thought the
>
> >> GM
>
> >> is ONLY when you fall to the floor? 
>
> >>
>
> >>
>
> >>
>
> >> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >> Subject: Re: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >> To: epilepsy@yahoogroup s.com
>
> >> Date: Saturday, March 28, 2009, 8:44 AM
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> Annette,
>
> >>
>
> >> Before Medicare d -- I had been getting my meds
> almost free.
>
> >> Dilantin (brand name) was free. Then Medicare D
> came in and
>
> >> they changed it to generic. I had a complex
> partial-- or
>
> >> something like it and my Dr. ordered the brand
> name. I had
>
> >> been sz free for 4 years. I've been on a
> combination of Dilantin
>
> >> and Phenabarb for over 20 years.
>
> >>
>
> >> Millie
>
> >>
>
> >>>   Hi Millie : My Insurance that I get thru
> the State does't
>
> cover
>
> >>> regular
>
> >>> EP  meds I was on it but now I sopose cuz the
> Country's
>
> pinching
>
> >>> pennies 
>
> >>> they want to try me out on Generic  .   I
> have been on these 2
>
> types of
>
> >>> Meds 4 years.  Maybe I will have 2 b a Guinne
> Pig again   (
>
> which I
>
> >>> really
>
> >>> don't)  Maybe it takes longer/  who
> knows  thanks 4 your
>
> reply. 
>
> >>> ~~Annette~~
>
> >>>
>
> >>> --- On Fri, 3/27/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >>>
>
> >>>
>
> >>> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >>> Subject: Re: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>> To: epilepsy@yahoogroup s.com
>
> >>> Date: Friday, March 27, 2009, 8:47 PM
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> Anne,
>
> >>>
>
> >>> Generic meds for EP don't seem to work too
> well. I know I need
>
> >>> to take the Brand name. It is more expensive
> but if it
>
> works--fine.
>
> >>>
>
> >>> Or maybe you need another med. There are 30
> different kinds of
>
> meds.
>
> >>> Or a combination. Each person has to find the
> one that works for
>
> them.
>
> >>>
>
> >>> Millie
>
> >>>
>
> >>>>   Hi  At   first it was Grandmal 
> then  I started
>
> haveing what are
>
> >>>> called
>
> >>>> Complex Partial, and Simple Partial  I
> just called them
>
> Medium
>
> >>>> Seizures
>
> >>>> or
>
> >>>> Small Seizures  cuz to me that is what
> they are to me  also
>
> >>>> "Clusters" 
>
> >>>> haveing small ones right after another. I
> am sopose to take
>
> Lorazapam
>
> >>>> 1
>
> >>>> mg.  When it does that,  But Latnight I
> was on the computer
>
> and I had
>
> >>>> 3
>
> >>>> (
>
> >>>> what I call) Complex Partial and very
> different I just sat at
>
> my chair
>
> >>>> andjust shook and then my head hurt like
> my brain was rattled
>
> >>>> (headache) 
>
> >>>> Then I read that Lamictial makes ya not
> sleepy  I doesnt
>
> matter what
>
> >>>> time
>
> >>>> I take my meds I still can't fall
> asleep.   I am now on
>
> Both Generic
>
> >>>> Keppra  & Generic Lamictal    to
> me I think it
>
> isn't working cuz I
>
> >>>> have
>
> >>>> not had these many seizures in years. 
> ~Hope this answers
>
> your
>
> >>>> questions~~      ~~Annette~~
>
> >>>>
>
> >>>> --- On Fri, 3/27/09, pat040394
> <ltpat228@comcast. net>
>
> wrote:
>
> >>>>
>
> >>>>
>
> >>>> From: pat040394 <ltpat228@comcast.
> net>
>
> >>>> Subject: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>>> To: epilepsy@yahoogroup s.com
>
> >>>> Date: Friday, March 27, 2009, 5:18 PM
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> Annette - what kind of epilepsy were you
> diagnosed?
>
> >>>>
>
> >>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>
> >>>>
>
> >>>> --- In epilepsy@yahoogroup s.com, Annette
> Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>>>
>
> >>>>>   I don't really know What I do
> know is that I have
>
> G.M (grandmals,
>
> >>>>> Cp
>
> >>>>> -complex partial  what I call
> med.  seizures   and Sp
>
> Simple Partial
>
> >>>>> what I call little ones cuz they 
> last only sec.)  I
>
> have a V.N.S.  
>
> >>>>> Vagel Nerve Stimalator   I like it
> .  going on 8 yrs
>
> now .   
>
> >>>>> ~~Annette~~
>
> >>>>>
>
> >>>>> --- On Wed, 3/25/09, pat040394
> <ltpat228@.. .>
>
> wrote:
>
> >>>>>
>
> >>>>>
>
> >>>>> From: pat040394 <ltpat228@.. .>
>
> >>>>> Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> To: epilepsy@yahoogroup s.com
>
> >>>>> Date: Wednesday, March 25, 2009, 7:09
> PM
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>> Well I called my Neuro today and left
> a message with her
>
> Nurses about
>
> >>>>> my
>
> >>>>> episode.
>
> >>>>> For me it's paramount as hopefully
> this will aide her
>
> in my
>
> >>>>> diagnosis.
>
> >>>>>
>
> >>>>> What kind of epilepsy do you have?
>
> >>>>>
>
> >>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~
>
> >>>>>
>
> >>>>> --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> >
>
> >>>>> >   ok-- I was standing outside 
> A Hospital   cuz
>
> my stepdaughter
>
> >>>>> just
>
> >>>>> had twins  and felt weird I could
> feel my head turn to
>
> the right  ( I
>
> >>>>> knew it wasn't sopose to )  I new
> it was an
>
> involentary movement (
>
> >>>>> there were other people standing near
> me)  but didn't
>
> notice .  which
>
> >>>>> was ok  don't want to freak them
> out ( some of the
>
> people know about
>
> >>>>> my seizures)   it also was 2-3
> pm.   and also I felt
>
> like I was
>
> >>>>> spacy~~!!  It just seemed really odd
> I sopose I should
>
> tell my neuro 
>
> >>>>> X-Cept  I don't want her to(up)
> the meds . I hate
>
> that when they do
>
> >>>>> that. 
>
> >>>>> >
>
> >>>>> > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .>
>
> wrote:
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > From: pat040394 <ltpat228@
> .>
>
> >>>>> > Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> > To: epilepsy@yahoogroup s.com
>
> >>>>> > Date: Wednesday, March 25, 2009,
> 5:19 PM
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > Please tell me, Annette, what
> exactly happened with
>
> you.
>
> >>>>> >
>
> >>>>> > My episode occured mid
> afternoon.
>
> >>>>> >
>
> >>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~~~~ ~~
>
> >>>>> >
>
> >>>>> > --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> > >
>
> >>>>> > >   Hi~~ Yes, this has
> happened to me about 3 wks
>
> ago, I wasn't at
>
> >>>>> the
>
> >>>>> computer, but I have noticed it a few
> times,  I don't
>
> know what I'd
>
> >>>>> call it I  think it is a type of
> seizure cp-----sp 
>
> ?   I don't know
>
> >>>>> if this has happened to you besides
> being on the
>
> computer  I have
>
> >>>>> noticed when I play .  certain games
> on the computer this
>
> happenes
>
> >>>>> to me .  ~~Annette~~  I cannot say
> about others cuz they
>
> are all
>
> >>>>> different just like we are.
>
> >>>>> > >
>
> >>>>> > > --- On Wed, 3/25/09,
> pat040394 <ltpat228@
>
> .> wrote:
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > From: pat040394
> <ltpat228@ .>
>
> >>>>> > > Subject: [epilepsy] Does
> This Happen To You?
>
> >>>>> > > To: epilepsy@yahoogroup
> s.com
>
> >>>>> > > Date: Wednesday, March 25,
> 2009, 3:08 PM
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > Last Sunday I was sitting
> here at my computer
>
> when it occured to
>
> >>>>> me
>
> >>>>> I was staring, then my neck and head
> started to
>
> pull/twitch to the
>
> >>>>> right. I think when the pulling began,
> that's when I
>
> realized
>
> >>>>> something was odd and I shook my body
> so it would stop. I
>
> really had
>
> >>>>> to concentrate and force myself so my
> neck would go back
>
> right.
>
> >>>>> > >
>
> >>>>> > > I really can't say how
> long it lasted but
>
> maybe up to 30 seconds?
>
> >>>>> > > I say this as when I stare,
> I truly don't
>
> know how much time goes
>
> >>>>> by.
>
> >>>>> > > Afterwards I felt worn out
> for some reason.
>
> >>>>> > >
>
> >>>>> > > As most of you know, I'm
> still being tested
>
> and haven't yet been
>
> >>>>> diagnosed with epilepsy, although my
> Neurologist suspects
>
> absence
>
> >>>>> petit mals.
>
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>
> Messages in this topic (23)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 9c. Re: Does This Happen To You? [Annette]
>
> Posted by: "TIMOTHY BALDWIN" tbb1@prodigy.
> net tbb19572000
>
> Date: Mon Mar 30, 2009 1:01 pm ((PDT))
>
>
>
> YES. Mostly all times when one occurs at home, where I live
> by my self without
>
> a witness to inform me of them. I'm not aware of a
> seizure. Unless, I was
>
> injured in the fall, or if I may have been sitting in a
> good chair watching
>
> TV and spilled something I'd been drinking 
> into my lap. If I don't
>
> spill anything, I wouldn't be aware that I missed a
> min. or few of the
>
> show. During one of latest seizures, I was walking from
> the
>
> refrigerator.  Thing in a hand were dropped while I fell
> and afterward I
>
> probably just stood up and got back and did something
> without being fully aware
>
> that anything until 30 mins. later when I noticed that I
> was confused, I was
>
> in the right place but didn't remember my route there
> or those I was to take
>
> I just walked and thought that I was having a simple
> partial seizure. I
>
> didn't know that my confusion was due to being in the
> post ictal period
>
> of a complex-partial that had happed at home earlier when
> I was
>
> returning from the refridgerator. It took place, I dropped
> what was in my
>
> hand. I then stood up and wasn't aware of the seizure
> happening or
>
> anything or what I was doing or had been in my hand.
> Thirty mins. later, I
>
> still wasn't aware of previous seizure. But I noticed
> that I
>
> was confused and thought that I was having a simple
> partial taking place in my
>
> brain at that time. I wasn't aware of a seizure
> earlier which placed me
>
> in the post ictal period of the complex partial that
> had occured .
>
> Later, after work I was back at home and near the refidg.
> I saw the remains
>
> from it.  And, I figured that the confusion I was aware
> later when on my way
>
> to work was related to it.
>
>  
>
> Thanks for hearing it,
>
> Tim Baldwin < tbb1@prodigy.
> net >
>
>           
>
>
>
> --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
>
>
> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Monday, March 30, 2009, 12:16 PM
>
>
>
> Timorthy,
>
>
>
> Do you pass out or are you not aware of what is going on?
>
>
>
> Millie
>
>
>
> > Millie,
>
> >  
>
> > Complex-partial siezures are unconscious partial
> siezures. My seizures in
>
> > one area of my brain is all that is nechacerly to show
> that they are
>
> > partial. And that my unconsciousness shows
> that defines that they are
>
> > complex. Thank you. 
>
> >  
>
> > Timothy Baldwin < tbb1@prodigy. net >
>
> >
>
> > --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >
>
> > From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> > Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> > To: epilepsy@yahoogroup s.com
>
> > Date: Monday, March 30, 2009, 5:26 AM
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Annette,
>
> >
>
> > You usually pass out with a GM. With a Complex
> partial
>
> > or an absence or other kinds- you don't pass
> out.-- your
>
> > brain just isn't working like usual. You don't
> hear
>
> > what is going on and sometimes can't talk. There
> are 25
>
> > different kinds of szs.
>
> >
>
> > Millie
>
> >
>
> >> Hi Millie:  I don't get Medicare  I get
> "Minnesota 
>
> Care"  Because I am
>
> >> from Minnesota-- I getmy meds Cheap  cuz the
> State pays for it and I
>
> pay
>
> >> a
>
> >> CO---Pay.  Oh, I was taking to a friend and she
> said the seizures I
>
> was
>
> >> have were GM.  But I don't understand I was
>
> sitting>>>>  I thought the
>
> >> GM
>
> >> is ONLY when you fall to the floor? 
>
> >>
>
> >>
>
> >>
>
> >> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >> Subject: Re: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >> To: epilepsy@yahoogroup s.com
>
> >> Date: Saturday, March 28, 2009, 8:44 AM
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> Annette,
>
> >>
>
> >> Before Medicare d -- I had been getting my meds
> almost free.
>
> >> Dilantin (brand name) was free. Then Medicare D
> came in and
>
> >> they changed it to generic. I had a complex
> partial-- or
>
> >> something like it and my Dr. ordered the brand
> name. I had
>
> >> been sz free for 4 years. I've been on a
> combination of Dilantin
>
> >> and Phenabarb for over 20 years.
>
> >>
>
> >> Millie
>
> >>
>
> >>>   Hi Millie : My Insurance that I get thru
> the State does't
>
> cover
>
> >>> regular
>
> >>> EP  meds I was on it but now I sopose cuz the
> Country's
>
> pinching
>
> >>> pennies 
>
> >>> they want to try me out on Generic  .   I
> have been on these 2
>
> types of
>
> >>> Meds 4 years.  Maybe I will have 2 b a Guinne
> Pig again   (
>
> which I
>
> >>> really
>
> >>> don't)  Maybe it takes longer/  who
> knows  thanks 4 your
>
> reply. 
>
> >>> ~~Annette~~
>
> >>>
>
> >>> --- On Fri, 3/27/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >>>
>
> >>>
>
> >>> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >>> Subject: Re: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>> To: epilepsy@yahoogroup s.com
>
> >>> Date: Friday, March 27, 2009, 8:47 PM
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> Anne,
>
> >>>
>
> >>> Generic meds for EP don't seem to work too
> well. I know I need
>
> >>> to take the Brand name. It is more expensive
> but if it
>
> works--fine.
>
> >>>
>
> >>> Or maybe you need another med. There are 30
> different kinds of
>
> meds.
>
> >>> Or a combination. Each person has to find the
> one that works for
>
> them.
>
> >>>
>
> >>> Millie
>
> >>>
>
> >>>>   Hi  At   first it was Grandmal 
> then  I started
>
> haveing what are
>
> >>>> called
>
> >>>> Complex Partial, and Simple Partial  I
> just called them
>
> Medium
>
> >>>> Seizures
>
> >>>> or
>
> >>>> Small Seizures  cuz to me that is what
> they are to me  also
>
> >>>> "Clusters" 
>
> >>>> haveing small ones right after another. I
> am sopose to take
>
> Lorazapam
>
> >>>> 1
>
> >>>> mg.  When it does that,  But Latnight I
> was on the computer
>
> and I had
>
> >>>> 3
>
> >>>> (
>
> >>>> what I call) Complex Partial and very
> different I just sat at
>
> my chair
>
> >>>> andjust shook and then my head hurt like
> my brain was rattled
>
> >>>> (headache) 
>
> >>>> Then I read that Lamictial makes ya not
> sleepy  I doesnt
>
> matter what
>
> >>>> time
>
> >>>> I take my meds I still can't fall
> asleep.   I am now on
>
> Both Generic
>
> >>>> Keppra  & Generic Lamictal    to
> me I think it
>
> isn't working cuz I
>
> >>>> have
>
> >>>> not had these many seizures in years. 
> ~Hope this answers
>
> your
>
> >>>> questions~~      ~~Annette~~
>
> >>>>
>
> >>>> --- On Fri, 3/27/09, pat040394
> <ltpat228@comcast. net>
>
> wrote:
>
> >>>>
>
> >>>>
>
> >>>> From: pat040394 <ltpat228@comcast.
> net>
>
> >>>> Subject: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>>> To: epilepsy@yahoogroup s.com
>
> >>>> Date: Friday, March 27, 2009, 5:18 PM
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> Annette - what kind of epilepsy were you
> diagnosed?
>
> >>>>
>
> >>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>
> >>>>
>
> >>>> --- In epilepsy@yahoogroup s.com, Annette
> Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>>>
>
> >>>>>   I don't really know What I do
> know is that I have
>
> G.M (grandmals,
>
> >>>>> Cp
>
> >>>>> -complex partial  what I call
> med.  seizures   and Sp
>
> Simple Partial
>
> >>>>> what I call little ones cuz they 
> last only sec.)  I
>
> have a V.N.S.  
>
> >>>>> Vagel Nerve Stimalator   I like it
> .  going on 8 yrs
>
> now .   
>
> >>>>> ~~Annette~~
>
> >>>>>
>
> >>>>> --- On Wed, 3/25/09, pat040394
> <ltpat228@.. .>
>
> wrote:
>
> >>>>>
>
> >>>>>
>
> >>>>> From: pat040394 <ltpat228@.. .>
>
> >>>>> Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> To: epilepsy@yahoogroup s.com
>
> >>>>> Date: Wednesday, March 25, 2009, 7:09
> PM
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>> Well I called my Neuro today and left
> a message with her
>
> Nurses about
>
> >>>>> my
>
> >>>>> episode.
>
> >>>>> For me it's paramount as hopefully
> this will aide her
>
> in my
>
> >>>>> diagnosis.
>
> >>>>>
>
> >>>>> What kind of epilepsy do you have?
>
> >>>>>
>
> >>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~
>
> >>>>>
>
> >>>>> --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> >
>
> >>>>> >   ok-- I was standing outside 
> A Hospital   cuz
>
> my stepdaughter
>
> >>>>> just
>
> >>>>> had twins  and felt weird I could
> feel my head turn to
>
> the right  ( I
>
> >>>>> knew it wasn't sopose to )  I new
> it was an
>
> involentary movement (
>
> >>>>> there were other people standing near
> me)  but didn't
>
> notice .  which
>
> >>>>> was ok  don't want to freak them
> out ( some of the
>
> people know about
>
> >>>>> my seizures)   it also was 2-3
> pm.   and also I felt
>
> like I was
>
> >>>>> spacy~~!!  It just seemed really odd
> I sopose I should
>
> tell my neuro 
>
> >>>>> X-Cept  I don't want her to(up)
> the meds . I hate
>
> that when they do
>
> >>>>> that. 
>
> >>>>> >
>
> >>>>> > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .>
>
> wrote:
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > From: pat040394 <ltpat228@
> .>
>
> >>>>> > Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> > To: epilepsy@yahoogroup s.com
>
> >>>>> > Date: Wednesday, March 25, 2009,
> 5:19 PM
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > Please tell me, Annette, what
> exactly happened with
>
> you.
>
> >>>>> >
>
> >>>>> > My episode occured mid
> afternoon.
>
> >>>>> >
>
> >>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~~~~ ~~
>
> >>>>> >
>
> >>>>> > --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> > >
>
> >>>>> > >   Hi~~ Yes, this has
> happened to me about 3 wks
>
> ago, I wasn't at
>
> >>>>> the
>
> >>>>> computer, but I have noticed it a few
> times,  I don't
>
> know what I'd
>
> >>>>> call it I  think it is a type of
> seizure cp-----sp 
>
> ?   I don't know
>
> >>>>> if this has happened to you besides
> being on the
>
> computer  I have
>
> >>>>> noticed when I play .  certain games
> on the computer this
>
> happenes
>
> >>>>> to me .  ~~Annette~~  I cannot say
> about others cuz they
>
> are all
>
> >>>>> different just like we are.
>
> >>>>> > >
>
> >>>>> > > --- On Wed, 3/25/09,
> pat040394 <ltpat228@
>
> .> wrote:
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > From: pat040394
> <ltpat228@ .>
>
> >>>>> > > Subject: [epilepsy] Does
> This Happen To You?
>
> >>>>> > > To: epilepsy@yahoogroup
> s.com
>
> >>>>> > > Date: Wednesday, March 25,
> 2009, 3:08 PM
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > Last Sunday I was sitting
> here at my computer
>
> when it occured to
>
> >>>>> me
>
> >>>>> I was staring, then my neck and head
> started to
>
> pull/twitch to the
>
> >>>>> right. I think when the pulling began,
> that's when I
>
> realized
>
> >>>>> something was odd and I shook my body
> so it would stop. I
>
> really had
>
> >>>>> to concentrate and force myself so my
> neck would go back
>
> right.
>
> >>>>> > >
>
> >>>>> > > I really can't say how
> long it lasted but
>
> maybe up to 30 seconds?
>
> >>>>> > > I say this as when I stare,
> I truly don't
>
> know how much time goes
>
> >>>>> by.
>
> >>>>> > > Afterwards I felt worn out
> for some reason.
>
> >>>>> > >
>
> >>>>> > > As most of you know, I'm
> still being tested
>
> and haven't yet been
>
> >>>>> diagnosed with epilepsy, although my
> Neurologist suspects
>
> absence
>
> >>>>> petit mals.
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > [Non-text portions of this
> message have been
>
> removed]
>
> >>>>> > >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > [Non-text portions of this
> message have been removed]
>
> >>>>> >
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>> [Non-text portions of this message
> have been removed]
>
> >>>>>
>
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> Messages in this topic (23)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 10a. Re: GOOD MORNING TO ALL
>
> Posted by: "Kirsten" kirsty815@yahoo.
> com kirsty815
>
> Date: Mon Mar 30, 2009 8:25 am ((PDT))
>
>
>
> Hey Tammy,
>
> Our Meghan is 6 years old, she goes by meggers, meg-a-moo,
> moo moo, bug-a-boo
>
> and various others I'm sure she'll totally be
> embarrassed by in a few
>
> years..lol
>
> The National Walk for Epilepsy is in D.C. but you can
> fundraise and virtual
>
> walk or walk in your own community on the day (they'll
> send you your
>
> t-shirts and give you press release info if you want to get
> the media involved
>
> in your local participation) . This was our first year
> virtual walking and we
>
> raised $130 not to bad considering I'm not a pushy
> sales person..lol Next
>
> year we're going to try and make it to D.C. and get our
> local media
>
> involved. There are other walks you can participate in,
> but you have to check
>
> your local Epilepsy Foundation chapter to see where they
> are. I know here in
>
> Tampa they have one in December called the reindeer run,
> it's a 5k or a mile
>
> walk with kids, they give the kids bells and antlers, very
> cute!
>
>
>
> Kirst
>
>
>
> --- In epilepsy@yahoogroup
> s.com, Tammy Wolfgram <tammy@...> wrote:
>
> >
>
> > Hi all,
>
> >
>
> > You all have too much to say! I can barely keep up
> with you. I was
>
> > five digests behind this afternoon! I'm doing to
> just do all my
>
> > replies to the two remaining digests in this email.
> BTW, it would
>
> > really help me and others who are on digest format if
> you would trim
>
> > your quoted material when replying. A lot of times,
> there is about 3
>
> > or 4 times as much quoted material in each digest as
> new material.
>
> >
>
> > Annette, I am insured by my state's health risk
> sharing pool, which
>
> > means that I pay premiums like an insurance plan, but
> it has similar
>
> > restrictions to medicare. I think that in most cases,
> if your doctor
>
> > indicates that the brand name medication is
> "medically
>
> necessary" you
>
> > can get the brand name approved. We were able to do
> this for Megan,
>
> > in spite of the new drug policy indicating that no
> brand name drugs
>
> > would be covered if there was a generic available. We
> pay a higher co-
>
> > pay ($30 for each Rx), but it's well worth it in
> terms of Megan's
>
>
>
> > better seizure control.
>
> >
>
> > Also for Annette: Grand mal seizures are also known as
> generalized
>
> > tonic clonic seizures. You can fall to the floor, but
> if you are
>
> > seated, you might remain so even while having a tonic
> clonic seizure.
>
> > You generally lose consciousness during the seizure,
> and your muscles
>
> > spasm or contract. When Megan feels like she is going
> to have a
>
> > seizure and can let us know, we either sit her down
> or get her to
>
> > lie down so she doesn't injure herself while
> falling. That said,
>
> > Megan generally has only superficial injuries as the
> result of her
>
> > seizures. Bruises or small abrasions are usually all
> that happens.
>
> >
>
> > It is possible for you to have more than one kind of
> seizure. When
>
> > you were sitting, was there anyone around to describe
> what was
>
> > happening? Do you have any recollection of that time?
> Best wishes in
>
> > getting this figured out.
>
> >
>
> > For Kirst and Meghan: first off, how old is your
> Meghan? My Megan is
>
> > 19 and will be 20 in May. We also call our Megan
> "Meggers"
>
> although
>
> > she is also known as Monkey and Magpie by various
> people :) I am
>
> > unfamiliar with the Walk for Epilepsy. Do they only do
> this in DC, or
>
> > are there events staged in other cities in the US on
> the same day?
>
> >
>
> > For Melissa and Steve's reply: Steve, I think it
> is so great that
>
> > your surgery had such good results for you. Melissa,
> since
>
> > medications do not work for you and you apparently
> have a focus of
>
> > seizure activity in your brain, I certainly would
> encourage you to
>
> > explore the option of surgery.
>
> >
>
> > For Jill: I can understand your worry and concern for
> your husband.
>
> > It sounds like he has only had one seizure so far.
> While it is wise
>
> > to look into it, this one seizure could just be an
> anomaly. Best
>
> > wishes to you both.
>
> >
>
> > For travilin2, if you feel this second doctor is a
> better fit for
>
> > you, and you don't have much confidence in the way
> your case is being
>
>
>
> > handled by the first doctor and his office, I think
> changing would be
>
> > a good idea. You might want to investigate the
> reputation and
>
> > credentials of doctor number 2 before making the
> switch, just to be
>
> > sure.
>
> >
>
> > OK, this is long and I've only read the one
> digest, so I'll send
>
> this
>
> > now.
>
> >
>
> > Tammy
>
> >
>
>
>
> Messages in this topic (6)
>
> ____________ _________ _________ _________ _________
> _________ _
>
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> _________ _
>
> 11. Re: drugs for seizures (Millie)
>
> Posted by: "Jill Gunzel" gunzel@cox.net
> jgunzel
>
> Date: Mon Mar 30, 2009 9:29 am ((PDT))
>
>
>
> Millie,
>
> Thanks so much for your comments on meds and seizures.
> I'm hoping we
>
> won't need them, but we're already talking about
> the "what if this
>
>
>
> wasn't a flukey one-time seizure". I speculated
> about medicines and
>
> your post confirmed I was correct. I speculated that it
> was just
>
> like with Restless Legs Syndrome. The FDA approves some
> drugs for
>
> it, the doctors also prescribe other drugs that are
> approved for
>
> other situations, and to make it really exciting, we find
> that what
>
> works for one doesn't work for the other....or even
> makes it worse!
>
>
>
> With RLS, coffee is a bad thing for some, but for others it
> will stop
>
> and RLS attack. Go figure!
>
>
>
> I love your attitude about not caring about the
> cause....you got it,
>
> you're dealing with it. Good for you!!!
>
> Jill
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
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> _________ _
>
> 12a. Re: EEG Result
>
> Posted by: "debbie riley" islandbabie5942004@
> yahoo.com
>
> islandbabie5942004
>
> Date: Mon Mar 30, 2009 1:25 pm ((PDT))
>
>
>
> hun dont give up. it took my hubby 5 years to finally have
> a egg to show
>
> something we thougtht the doc tought we was crazy but 2
> weeks ago he had a
>
> siezure and it show up on the egg and now he is on meds
> doing better please take
>
> care
>
>
>
> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast.
> net> wrote:
>
>
>
> From: pat040394 <ltpat228@comcast.
> net>
>
> Subject: [epilepsy] EEG Result
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Friday, March 27, 2009, 10:32 PM
>
>
>
> It was normal.
>
>
>
> Had an absence petit mal last Sunday but noooooooooo, the
> friggin EEG taken 1
>
> week earlier was normal!
>
>
>
> I've had it, man - just about had it.
>
>
>
> All these tests and still no diagnosis.
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (7)
>
>
>
> Just a friendly reminder: Please remember to sign your post
> and remember to
>
> clean up messages when you reply to them. This is
> especially important if you
>
> are on digest. This not only helps out the list owner but,
> it makes messages
>
> much easier to read when they arrive in our inboxes.
>
>
>
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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

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