Craig,
I get horrible headaches from MSG and a buzzing feeling, I'm not epileptic, my daughter is but I try to avoid MSG foods and Aspartame.
Thanks for the info.
Kirst
--- On Tue, 3/31/09, craig davis <ohs7778@yahoo.
> From: craig davis <ohs7778@yahoo.
> Subject: Fw: Re: [epilepsy] It happened again 4670
> To: "epilepsy@yahoogroup
> Date: Tuesday, March 31, 2009, 7:09 PM
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> --- On Tue, 3/31/09, craig davis <ohs7778@yahoo.
> com> wrote:
>
>
>
> From: craig davis <ohs7778@yahoo.
> com>
>
> Subject: Re: [epilepsy] It happened again 4670
>
> To: "No Reply" <notify-dg-epilepsy
> yahoogroups. com>
>
> Date: Tuesday, March 31, 2009, 11:20 AM
>
>
>
> This notice is for anyone who has seizure conditions.
> It happened again. I ate some food with an M S G replacement
> additive that came from a can of Carnation Milk. No MSG logo
> or information was on the can. Last month I also had the
> same dish of food not knowing then what made me have the
> auras I had. At that time there were more foods which were
> made by different people. I ate just a little of everything
> as most things then must have had M S G in them. I felt bad
> for almost 3 full days then. Yesterday I had some of the
> same food. After eating the baked corn that was made with
> the canned milk. I started to feel bad in 6 hours. I
> then realized I ate that same coen dish a month ago,
> thinking then the problem came from other food. I thought
> is was strange knowing it usually affects me within 9 to
> 11 hours later to start feeling bad. This time it was very
> noticeable as I only had the one food and I told my mom to
> read all the labels before she
>
> buys something. www.sellingsalesman ship.com.
> msginfo.html That site will show all of you ALL the
> additives and replacement additives food companies use in
> place of MSG/MonoSodiumGluta mate. Just because something
> might read NO MSG !! or MSG FREE !! does not mean there is
> no MSG in it. M S G can cause seizures and auras in the
> brain. I would like everyone who is affected by MSG or
> parents to kids/infants to call our EFA who is looking out
> for us at 1-800-321-1000. If you believe the EFA really
> cares for us then I can walk on water. I have tried to get
> the EFA to do something about this MSG problem that I and
> "others" have to live with daily. There is no way
> that the FDA should be allowed to let this MSG stay in our
> food supply. But the FDA is on the side of the
> food corporations, drug companies and doctors. Why because
> they all get money through us who suffers from MSG, nitrates
> and other illnesses these two can cause besides seizures.
> You would
>
> think the EFA would have some compassion about this but
> they never will until they hear it from everyone. M S G and
> nitrates may not affect your condition now. That does not
> mean it will not later in life with seizures or any other
> condition. www.fda.gov You all need to call the FDA as
> well on this issue. I have in the past and I was told I
> did not know what I was talking about as they never heard of
> MSG creating a seizure condition in people. I say the FDA
> and all the workers there should eat all the MSG foods
> first before anyone in the public digest them. WE ALL need
> to contact the EFA first, FDA second and NIH National
> Institutes of Health third at 1-800-411-1222 www.nih.gov
> The NIH now is doing a study on MSG and fibromyagia. I know
> what MSG can do. Hopefully none of you will learn the hard
> way as I have. By calling these numbers and keeping the
> phone lines hot about it, maybe something can get done to
> get MSG out of the foods we eat. I
>
> can not do it alone as I will not by you all knowing who
> to call now. Get ready EFA we'll be calling you all
> there. 1-800- 321-1000 www.efa.org Before phone calls are
> made, see for yourself if MSG and nitrates creates seizures
> in your life or in your childs life. I believe MSG is more
> dangerous to children more than adults as they will live a
> lifetime with seizures or something else, if parents are not
> warned about MSG and nitrates. Keep all the phone lines hot
> to these places. I'll call the FDA soon after I click
> send. Craig
>
>
>
> --- On Tue, 3/31/09, epilepsy@yahoogroup
> s.com <epilepsy@yahoogrou
> s.com> wrote:
>
>
>
> From: epilepsy@yahoogroup
> s.com <epilepsy@yahoogrou
> s.com>
>
> Subject: [epilepsy] Digest Number 4669
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Tuesday, March 31, 2009, 3:08 AM
>
>
>
> There are 21 messages in this issue.
>
>
>
> Topics in this digest:
>
>
>
> 1a. Re: Ever Have a Blood Test Lost?
>
> From: mylmy@bnin.net
>
>
>
> 2a. Re: EEG results; seizure newbie(Jill)
>
> From: mylmy@bnin.net
>
>
>
> 3a. Re: anyone pregnant/ have been pregnant?
>
> From: petenlynds
>
> 3b. Re: anyone pregnant/ have been pregnant?
>
> From: mylmy@bnin.net
>
> 3c. Re: anyone pregnant/ have been pregnant? Thanks:-)
>
> From: lucy133_daisy
>
> 3d. Re: anyone pregnant/ have been pregnant?
>
> From: Mary Allen
>
>
>
> 4. I was at an EFA lecture last week
>
> From: no_seizures_ since_surgery
>
>
>
> 5.1. Re: new member
>
> From: mylmy@bnin.net
>
> 5.2. Re: new member
>
> From: Kirsten
>
> 5.3. Re: new member
>
> From: Tammy Wolfgram
>
> 5.4. Re: new member
>
> From: uniquepnk tds.net
>
> 5.5. Re: new member
>
> From: kteribond@aol.
> com
>
>
>
> 6. Epilepsy Research Results
>
> From: Belinda Shale
>
>
>
> 7. Re: JILL [epilepsy] Re: EEG Result, seizure newbie
>
> From: Uggie
>
>
>
> 8a. Re: Seizures and Medications
>
> From: Karina Castillo
>
>
>
> 9a. Re: Does This Happen To You? [Annette]
>
> From: TIMOTHY BALDWIN
>
> 9b. Re: Does This Happen To You? [Annette]
>
> From: mylmy@bnin.net
>
> 9c. Re: Does This Happen To You? [Annette]
>
> From: TIMOTHY BALDWIN
>
>
>
> 10a. Re: GOOD MORNING TO ALL
>
> From: Kirsten
>
>
>
> 11. Re: drugs for seizures (Millie)
>
> From: Jill Gunzel
>
>
>
> 12a. Re: EEG Result
>
> From: debbie riley
>
>
>
> Messages
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 1a. Re: Ever Have a Blood Test Lost?
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 2:51 am ((PDT))
>
>
>
> Traveling 2,
>
>
>
> I would go to your second Doctor in a heart beat.
>
> An office that can't keep track of their tests
>
> would scare me to death.
>
>
>
> Millie
>
>
>
> > I was ordered on meds in January. I was instructed to
> come back in late
>
> > March to have my blood levels checked. I called the
> office on 3/21 and
>
> > there was no order on record. The doctor signed orders
> on Wednesday and I
>
> > went in on Friday 3/20.
>
> >
>
> > I followed up Tuesday 3/24, and the test could not be
> found right away. I
>
> > gave my cell for call back. I did not hear anything so
> I called back
>
> > Thursday, 26. Still...no test found. I was then told
> it may have been sent
>
> > to the doctors other office, so I called there. They
> had no record and did
>
> > not think it would have been sent there, but would
> check. Again, left my
>
> > cell phone for call back. No call from either office
> on Friday. I am going
>
> > to make a point of it on Monday and make sure I
> escalate this to the duty
>
> > nurse, but please....the lack of follow-up does not
> make me me feel
>
> > better.
>
> >
>
> > I went to another doctor last month for a second
> opinion. He concurred
>
> > with my current doctor and said that he was a
> colleague at another
>
> > practice and I was in good hands. I really did like
> him more though
>
> > becuase of his bedsire manners. I also had a list of
> quesitons that I
>
> > brought and he answered them all.
>
> >
>
> > I am really thinking of switching over to the other
> doctor. This is my
>
> > health and I really do not want to have tests being
> missed and then not
>
> > getting an answer on why.
>
> >
>
> > What does the rest of the group think?
>
> >
>
> >
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 2a. Re: EEG results; seizure newbie(Jill)
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 3:04 am ((PDT))
>
>
>
> Jill,
>
>
>
> That is a good idea to get all the reports of whatever
> tests
>
> he has.
>
>
>
> When you have a GM sz your whole body's muscles stretch
> like
>
> if they were doing an exercise they weren't used to
> doing.
>
> That is probably why he was sore.
>
>
>
> Millie
>
>
>
> >
>
> > Steve,
>
> > Thanks so much for your reply and for taking time to
> think it through with
>
> > me.
>
> > And thanks for the offer to have my husband join. I
> think I'm the
>
> > official family email support grouper. No one else
> seems interested
>
> > (except my son, who is on a fishing group....but is
> that a "support
>
> > group"?)
>
> > I'm also on one for stroke survivors, thyroid
> cancer, restless legs
>
> > syndrome, ovarian cancer, and tremors. Such fun!! I
> share responses
>
> > with others, but they don't seem to want to
> write.
>
> > I'm thinking you're right about the age factor
> with the soreness.
>
> He
>
> > was also exhausted from it. He actually took naps for
> the first time
>
> > in his life, and seemed to need them. But he's
> almost back to normal,
>
> > now.
>
> > Your thoughts on whether the MRI possibilities could
> be significant
>
> > enough to cause the seizure are what's been on our
> minds. Could the
>
> > findings be important? All we know, so far, is that
> the ER doctor
>
> > saw the CT scan and said, "There's no brain
> tumor."
>
> > I immediately thought, "Maybe it's a small
> one and they just
>
> didn't see
>
> > it."
>
> > It was as if he could read my mind, because he looked
> at me and said,
>
> > "If a tumor had caused this, it would have been a
> BIG tumor, and we
>
> > would be seeing it in a CT scan."
>
> > So, I'm hoping he's right about that. If not,
> then you might be
>
> > right, that we're onto something, with the MRI.
> Oh, one other reason
>
> > I was sorta discounting the serious possibilities of
> the MRI, was
>
> > that there was no differences in symmetry, no shift in
> position, and
>
> > no mass apparent. So, it's just a brighter area.
> But hey, who am I
>
> > to read a MRI report, right? :)
>
> > You were right about the details I know. I'm a
> stickler for being a
>
> > team player with the doctors. I always get my lab and
> diagnostic
>
> > reports. Several times it's saved us from taking
> a wrong medical
>
> step.
>
> > Thanks again, for all your thoughts. :)
>
> > Jill
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Steve wrote:
>
> > Hi Jill,
>
> > Welcome to the group! Sorry to hear your husband had
> his first
>
> > seizure this month! First off, get your husband into
> the group
>
> > (smile). Allot of what might be running through both
> your minds we
>
> > call all relate to!, big time! You posted about
> specifics in great
>
> > detail which a majority of us wouldn't have a clue
> about (smile)! As
>
> > far as relating the details to basics as far as your
> husband goes I
>
> > would think the following as far as what you
> described. As far as
>
> > being sore for 3 weeks now. Might it be that when he
> had a grand mal,
>
> > might it be adding his age, the stressful body
> movement together
>
> > might be nothing more than pulling a muscle? I'm
> 51 and am pulling
>
> > muscles allot more than when I was younger (smile)! As
> far as vein
>
> > infections from the dye for an MRI. That would have
> nothing to do
>
> > with a seizure or epilepsy. And as far as the fun test
> (smile) called
>
> > a colonoscopy! I was put on meds. for a year after the
> results where
>
> > found. But in a year was taken off it. That had
> nothing to do with a
>
> > seizure or epilepsy either. And as far as the MRI
> results, might it
>
> > be that what you described what might become a nasty
> tumor might be a
>
> > possible cause for the seizure? Where the smaller
> piece found might
>
> > be located in an area of the brain which caused
> electrical activity
>
> > to be affected? Brain tumors can cause a seizure or
> seizures. Also,
>
> > you said he had his seizure was in front of the
> computer. Seizures
>
> > can be caused by a person who is more light sensitive.
> Such as
>
> > flashing police car lights, constantly changing
> channels on TV or
>
> > screens on the computer, oncoming traffic at night,
> the lights in a
>
> > disco (ect). Those changing flashing lights is a
> common cause for
>
> > seizures for a person with epilepsy. Also, stress is
> an easy way to
>
> > bring on seizures for a person with epilepsy! You add
> all these
>
> > different things together and just maybe, bits or a
> couple of
>
> > different things might be what brought on his seizure,
> who knows?
>
> > Just some thoughts. Get your husband in here if he
> could use support
>
> > by friends as far as seizures, life, the meds side
> affects ect...
>
> > Hey, we are nothing more than a group of people on
> this planet who
>
> > can relate to each other so much (smile)! Take care,
> keep a smile on your
>
> > face!
>
> > Steve
>
> >
>
> >
>
> >
>
> > [Non-text portions of this message have been removed]
>
> >
>
> >
>
>
>
> Messages in this topic (2)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3a. Re: anyone pregnant/ have been pregnant?
>
> Posted by: "petenlynds" petenlynds@yahoo.
> com petenlynds
>
> Date: Mon Mar 30, 2009 4:26 am ((PDT))
>
>
>
> --- In epilepsy@yahoogroup
> s.com, "lucy133_daisy"
>
> <lucy133_daisy@ ...> wrote:
>
> >
>
> > Hi all,
>
> >
>
> > I am looking for someone who is pregnant (or already
> has kids!) for some
>
> advice.
>
> >
>
> > I'm 15 weeks pregnant, and on lamictal. Have
> already had one seizure
>
> during the pregnancy, and would like some reasurrance/
> advice from any of the
>
> epileptic ladies here!
>
> >
>
> > TIA, Lucy.
>
> > lucy133_daisy@ ...
>
> >
>
>
>
> Hi Lucy,
>
>
>
> CONGRATULATIONS! !! I took Lamictal during my pregnancy 5
> years ago.
>
> I was very scared but that is the safest med to be on
> during pregnancy and has
>
> the least side effects. I have a healthy beautiful little
> girl. I did not have
>
> any serious complications. I had several small seizures
> during my pregnancy and
>
> had no problems. I was treated as high risk they may treat
> you as high risk as
>
> well. Prior to my daughter I had 2 miscarriages but at
> that time I was taking
>
> tegretol and neurontin. After that my dr. switched me to
> Lamictal because I
>
> wanted to try again and he said that it would be safer.
> Sure you will still
>
> have a small risk of complications but it is very small.
> I'm sure they will
>
> monitor you closely. I have a very healthy extremely
> intelligent child. They
>
> were not certain if it was the meds or just my
> endometriosis. I know it is
>
> nerve racking but remain positive and keep your chin up.
> My dr. also told me to
>
> take extra folic acid. So I took double what you normally
> would take. Lamictal
>
> depletes what your body naturally makes. If you were not
> informed of that ask
>
> your dr. Make sure you continue to see your Neurologist as
> well as your OB. If
>
> you are 15 weeks you are already at the safe point.
> Congratulations you made it
>
> through your first trimester. The only thing that I found
> with taking Lamictal
>
> during my pregnancy was that I had sleepless nights so I
> did a lot of resting
>
> during the day. Lamictal can cause that anyway but I found
> that I had more of a
>
> problem with it during pregnancy. Take care of yourself
> and remember to remain
>
> positive. Listen to your body and do not over do it rest
> when you need to.
>
> Take care and best wishes.
>
> Lyndsey (smile)
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3b. Re: anyone pregnant/ have been pregnant?
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 5:12 am ((PDT))
>
>
>
> Hi Lucy,
>
>
>
> Welcome to the group. I had my 1st sz when I
>
> was carrying my 2nd daughter and my 2nd sz when
>
> I was carrying my 3rd daughter.I do not remember
>
> what meds the Dr. gave me. My daughters are all
>
> near 50 years of age now.
>
>
>
> The Dr. thought pregnancy and I didn't mix so I had
>
> my tubes tied. When my 3rd daughter was 2 I had
>
> another sz and that took me 30 miles away to the
>
> closest EEG machine at that time. There I found out
>
> I had EP, couldn't drive for a year and needed to be
>
> on meds the rest of my life.
>
>
>
> I've been on a few meds but now have been on Dilantin
>
> and Phenabarb for over 20 years. Everybody has to find
>
> the med or combination of meds for them. My last sz was
>
> over 2 years ago and before that it was 4 years.
>
>
>
> I do suggest that you use the brand name drug of whatever
>
> your Dr.recommends. I also suggest that you keep a diary
>
> of when you take your meds, when you have a sz. what
> happens
>
> when you have a sz, how long the sz lasts and how long it
>
> takes you to get back to your usual self. That will help
> the
>
> Dr and you to see if there is a pattern.
>
>
>
> I have learned so much from this group. Read all the
> letters and
>
> you will also.
>
>
>
> Millie
>
>
>
> > Hi all,
>
> >
>
> > I am looking for someone who is pregnant (or already
> has kids!) for some
>
> > advice.
>
> >
>
> > I'm 15 weeks pregnant, and on lamictal. Have
> already had one seizure
>
> > during the pregnancy, and would like some reasurrance/
> advice from any of
>
> > the epileptic ladies here!
>
> >
>
> > TIA, Lucy.
>
> > lucy133_daisy@
> hotmail.com
>
> >
>
> >
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3c. Re: anyone pregnant/ have been pregnant? Thanks:-)
>
> Posted by: "lucy133_daisy" lucy133_daisy@
> hotmail.com
>
> lucy133_daisy
>
> Date: Mon Mar 30, 2009 7:23 am ((PDT))
>
>
>
> Thank you so much for your kind words and advice, Lyndsey
> and Millie!
>
> I am also taking Lamictal, and feel so relieved to hear
> that you both have
>
> healthy kids.
>
> Had an ultrasound today, and it's a boy!
>
> Am going to try and enjoy the pregnancy, and not worry all
> the time because of
>
> the epilepsy.
>
> Thanks again ladies:)
>
> Lucy.
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 3d. Re: anyone pregnant/ have been pregnant?
>
> Posted by: "Mary Allen" jake100036@yahoo.
> com jake100036
>
> Date: Mon Mar 30, 2009 6:30 pm ((PDT))
>
>
>
> hello, i have a daughter with epilepsy, she got this from
> a car accident when
>
> she was 15. she didn"t have her first seizure until
> she was 18. She
>
> is now 26 and has had 2 children and one on the way. She
> has continued to take
>
> 1200 mg of lamictal a day, and is doing fine. The
> seizures were pretty severe
>
> in the beginning, but are mainly mild ones every once in
> awhile. She currently
>
> isn,t driving because her last big one was last July, and
> the state and her
>
> family will not let her drive. I always worry about her
> and always will. It
>
> is very hard to watch your child live this way, but i
> thank God everyday that
>
> she is mine... Good Luck and Just have Faith,,,, God
> doesn't give us more
>
> than we can handle,,,,,, with love and prayers,,,,, , a
> MOM
>
>
>
> ____________ _________ _________ __
>
> From: lucy133_daisy <lucy133_daisy@
> hotmail.com>
>
> To: epilepsy@yahoogroup
> s.com
>
> Sent: Monday, March 30, 2009 2:28:19 AM
>
> Subject: [epilepsy] anyone pregnant/ have been pregnant?
>
>
>
> Hi all,
>
>
>
> I am looking for someone who is pregnant (or already has
> kids!) for some
>
> advice.
>
>
>
> I'm 15 weeks pregnant, and on lamictal. Have already
> had one seizure during
>
> the pregnancy, and would like some reasurrance/ advice from
> any of the epileptic
>
> ladies here!
>
>
>
> TIA, Lucy.
>
> lucy133_daisy@ hotmail.com
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (5)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 4. I was at an EFA lecture last week
>
> Posted by: "no_seizures_ since_surgery" stephenpales@
> yahoo.com
>
> no_seizures_ since_surgery
>
> Date: Mon Mar 30, 2009 4:31 am ((PDT))
>
>
>
> I was at a lecture Thursday night by the EFA branch here
> near Chicago. One
>
> thing mentioned which I've heard many times before says
> so much in few
>
> words. They spoke about after the first few meds tried and
> don't control
>
> your seizures, the lower the chance of success in each new
> med. you try. More
>
> and more they are suggesting looking into surgery sooner
> than ever before.
>
> There are statistics of success you might be interested in
> asking your Dr. about
>
> as far as the percentage of success going down each new
> med. you try. Maybe
>
> those stats. could be found through the EFA? It was most
> definitely a very
>
> interesting lecture followed by Q/A by 2 Drs. The subject
> was "Epilepsy and
>
> Testing for Cognitive Deficits" And boy do I have
> cognitive deficits (big
>
> smile)! Allot of us can truly relate to that (smile)!
> Take care, keep a smile
>
> on your face!
>
>
>
> Steve
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.1. Re: new member
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 4:42 am ((PDT))
>
>
>
> Cathy,
>
>
>
> Welcome to our group. I don't have any experiecne
> with
>
> children but I have had EP for 46 years. I was diagnosed
>
> (DX) when I was 30.
>
>
>
> I have learned a lot from this group. Just read all the
>
> letters. You will hear from many. There are 30 different
>
> kind of meds. Your Dr. needs to find the one that fits
>
> your daughter.
>
>
>
> Keep on asking questions.
>
>
>
> Millie
>
>
>
> > my 7 yr old daughter was just diagnosed with epilepsy
> this past friday,
>
> > she had 2 grand mal seizures in less than a week. I
> have been reading
>
> > about the different meds and this is very scary!!!! I
> would love to hear
>
> > from anywone who could give me advice,
> answers,anything!
>
> >
>
> > cathie
>
> >
>
> >
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.2. Re: new member
>
> Posted by: "Kirsten" kirsty815@yahoo.
> com kirsty815
>
> Date: Mon Mar 30, 2009 8:16 am ((PDT))
>
>
>
> Hey Cathy,
>
> My daughter is 6 and has had epilepsy since she was a month
> old. I can tell
>
> you about our experiences with some meds. I know how scary
> it can be, but your
>
> in a trial and error period right now to see what med will
> work best for your
>
> daughter. The key is to find an epileptologist you trust
> and feel comfortable
>
> talking to.
>
>
>
> Meg started with Myoclonic seizures but they've always
> changed, she now has
>
> complex partial seizures, she's been pretty well
> controlled on meds and
>
> hasn't had a seizure since Aug '07'. Meds
> we've tried are
>
> Phenobarbital, dilantin, tryleptal, neurontin, and Keppra.
> Right now she's
>
> on 9cc's of Phenobarbital and 3cc's of Keppra 2 x a
> day (we're
>
> currently weaning the Pheno to see if she can stay seizure
> free on just the
>
> Keppra). I joined this group a little over a week ago and
> they are all very
>
> friendly and helpful.
>
>
>
> Welcome
>
> Kirst
>
> --- In epilepsy@yahoogroup
> s.com, "cathiebutler"
>
> <cathiebutler@ ...> wrote:
>
> >
>
> > my 7 yr old daughter was just diagnosed with epilepsy
> this past friday,
>
> she had 2 grand mal seizures in less than a week. I have
> been reading about the
>
> different meds and this is very scary!!!! I would love to
> hear from anywone who
>
> could give me advice, answers,anything!
>
> >
>
> > cathie
>
> >
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.3. Re: new member
>
> Posted by: "Tammy Wolfgram" tammy@maccetera.
> com arammat
>
> Date: Mon Mar 30, 2009 9:52 am ((PDT))
>
>
>
> To the Mom of the child who was just diagnosed with
> epilepsy,
>
>
>
> First, I'm sorry I forgot to grab your name. My
> daughter Megan
>
> started having seizures right around the time she turned
> ten. I don't
>
> want to step on anyone's toes, so I hope everyone reads
> this in the
>
> spirit in which is was written. I am so glad that my
> husband was
>
> diagnosed with esophageal before Megan was diagnosed with
> epilepsy,
>
> because dealing with cancer has given me an entirely
> different
>
> perspective than I think I would have had without that
> experience.
>
>
>
> My attitude at that time was that anything that didn't
> have a better
>
> than 90% change of killing you wasn't really worth
> worrying about too
>
> much. (It's still pretty much my attitude:) I am always
> grateful that
>
> I had that reaction, as it allowed Megan to live her life
> as normally
>
> as possible. I'm not suggesting you should be reckless
> where your
>
> child's safety is concerned, but don't overdo the
> protection either.
>
> I understand how a diagnosis like epilepsy can overshadow
> everything
>
> else, but only if you let it. Focus on making your
> child's life as
>
> normal as possible. If you are afraid to even have your
> child out of
>
> your sight because of epilepsy, he or she will pick up on
> that fear
>
> and very likely become fearful, too.
>
>
>
> Obviously, everyone's situation is different. Some
> children will
>
> outgrow their seizures and others may not. Some will only
> have an
>
> occasional seizure, while others may have dozens in a a
> single day.
>
> And you have to keep your own child's circumstances in
> mind as you
>
> make decisions. I'm just encouraging you to not let
> this diagnosis
>
> overwhelm you or your child. Life does go on and life can
> still be
>
> wonderful.
>
>
>
> Take care,
>
> Tammy
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.4. Re: new member
>
> Posted by: "uniquepnk tds.net" Uniquepnk@tds.
> net uniquepnk
>
> Date: Mon Mar 30, 2009 11:20 am ((PDT))
>
>
>
> Cathie,
>
>
>
> Welcome to the group. I have complex partial seizures. They
> were caused from
>
> a head injury when I was a baby. I am 40 now. There are
> many different
>
> medicines, so you will have to work with the doctors to
> find out what works
>
> for you daughter. It takes time to find the right
> combination. My seizures
>
> are not fully controlled,but with the medicine I am on they
> are not as bad
>
> as they were when I was younger.There is plenty of
> information here and if
>
> you need anything, write anytime. Take care.
>
>
>
> Tammy
>
>
>
> On Sun, Mar 29, 2009 at 8:02 PM, cathiebutler
>
> <cathiebutler@
> yahoo.com>wrote:
>
>
>
> > my 7 yr old daughter was just diagnosed with
> epilepsy this past friday,
>
> > she had 2 grand mal seizures in less than a week. I
> have been reading
>
> about
>
> > the different meds and this is very scary!!!! I would
> love to hear from
>
> > anywone who could give me advice, answers,anything!
>
> >
>
> > cathie
>
> >
>
> >
>
> >
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 5.5. Re: new member
>
> Posted by: "kteribond@aol.
> com" kteribond@aol.
> com love2skrap
>
> Date: Mon Mar 30, 2009 5:41 pm ((PDT))
>
>
>
> Hi Cathie,
>
> Welcome to the group. I have an 8 year old daughter that
> has had Epilepsy
>
> since she was 3 years old. She mainly has complex partials
> that usually occur
>
>
>
> in her sleep, which many times generalize into GM.
>
> What medication have they started your daughter on? My
> daughter was
>
> initially on Trileptal, but is now on Depakote and Keppra.
>
>
> It's a very scary process in the beginning dealing with
> all of this. But,
>
>
>
> it does get better. You will learn a lot from the others
> in this group.
>
> If I can help you in anyway please let me know.
>
> Kim
>
>
>
>
>
> Kim Bond
>
> Scrapbook Advisor #1440
>
> Picture Perfect Scrapbook Co;
>
> _www.scraplifesart. com_ (http://www.scraplif
> esart.com/)
>
> Contact me to get a copy of our NEW Catalog!!
>
>
>
> In a message dated 3/29/2009 4:05:40 P.M. Pacific Standard
> Time,
>
> cathiebutler@
> yahoo.com writes:
>
>
>
> my 7 yr old daughter was just diagnosed with epilepsy this
> past friday, she
>
> had 2 grand mal seizures in less than a week. I have been
> reading about the
>
> different meds and this is very scary!!!! I would love to
> hear from anywone
>
> who could give me advice, answers,anything!
>
>
>
> cathie
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (156)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 6. Epilepsy Research Results
>
> Posted by: "Belinda Shale"
>
> belinda.shale@
> thepatientconnec tions.com thepatientconnectio n
>
> Date: Mon Mar 30, 2009 7:03 am ((PDT))
>
>
>
> Hi Everyone
>
>
>
> Just to let you know that our epilepsy research results are
> now avaiable online
>
>
>
> http://www.thepatie
> ntsvoice. org/Epilepsy/
>
>
>
> Please do feel free to use the infomation as you see fit.
> However we do ask
>
> that you link to the page if you choose to do so
>
>
>
> Rgds
>
>
>
> Belinda
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 7. Re: JILL [epilepsy] Re: EEG Result, seizure newbie
>
> Posted by: "Uggie" ugmcginnis@embarqma
> il.com min9200meg
>
> Date: Mon Mar 30, 2009 7:26 am ((PDT))
>
>
>
> Jill -
>
> Ur husband needs to tell the drs that are treating him that
> he has a
>
> sensitivity to the IV dye. I know when I have to get an
> MRI with IV dye - I
>
> have to take a few days prior of additional (allergy) meds
> - so I don't
>
> have
>
> a reaction to that dye. U may check into this and see if
> his drs have it
>
> listed about his reactions to the IV dye.
>
>
>
> Just a thought
>
> Uggie
>
>
>
> -------Original Message----- --
>
>
>
> From: Jill Gunzel
>
> Date: 3/28/2009 7:53:08 PM
>
> To: epilepsy@yahoogroup
> s.com
>
> Subject: [epilepsy] Re: EEG Result, seizure newbie
>
>
>
> Dear Group,
>
> It was so interesting to read someone's post about EEG
> results not
>
> really showing anything (unless something happened to be
> going on
>
> during the test).
>
> I'm new to the group. My husband (57 yrs old,
> otherwise extremely
>
> healthy)) had a first time seizure, March 10. So far, the
> CT scan
>
> was clear, the blood test showed a definite tonic/clonic
> seizure
>
> (high CO2), he's been sore for almost 3 weeks (back
> xray showed no
>
> break), MRI showed a bright signal in the T2 area (so
> we'll retake it
>
> in April), and the EEG is next week. His blood tests
> showed kidney
>
> functions were way off a few days after the seizure. And
> he managed
>
> to get two vein infections from the IV's (from the
> ambulance and also
>
> from the dye with the MRI...he had an infection last year
> from the IV
>
> for a colonoscopy. Not sure why he's so prone to
> those.)
>
>
>
> The MRI report was slightly scary, because they gave those
>
> speculations on why there was a bright signal. I wish I
> hadn't
>
> looked up the terms they used (demylinating process, which
> is MS, and
>
> low grade neoplasm...which could be an early stage of a
> nasty
>
> tumor). But it was only "possibilities" . Our
> primary care
>
> doc's
>
> comment was, "They don't have a clue!" And I
> figure neither of
>
> those
>
> possibilities were big enough to have caused the
> seizure....so I"m
>
> trying to convince myself it was either always that way, or
> a result
>
> of the seizure, which was listed as another less likely
> possibility.
>
>
>
> The morning of the seizure, he was sitting at his computer
> and just
>
> keeled over onto the floor with the seizure. He'd been
> extremely
>
> constipate (like for a week), had taken 2 Exlax the night
> before and
>
> 2 that morning, and had just had a major dump. He was also
> taking
>
> cold meds for a nasty cold, and he'd had a lot of
> coffee. So, if
>
> electrolyte imbalance and/or viruses can be the
> cause....I'd like to
>
> think that was enough to be the case.
>
>
>
> For now, we're waiting for the EEG, the next MRI, the
> bloodtests to
>
> confirm kidneys are back....and an okay to start driving
> again. If
>
> any of you have a different take on this, I'd be very
> interested in
>
> hearing from you.
>
> Best wishes to all,
>
> Jill
>
>
>
>
>
>
>
> ------------ --------- --------- ------
>
>
>
> Just a friendly reminder: Please remember to sign your post
> and remember to
>
> clean up messages when you reply to them. This is
> especially important if
>
> you are on digest. This not only helps out the list owner
> but, it makes
>
> messages much easier to read when they arrive in our
> inboxes.
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>
> ____________ _________ _________ _________ _________
> _________ _
>
>
>
> No virus found in this incoming message.
>
> Checked by AVG - www.avg.com
>
> Version: 8.0.238 / Virus Database: 270.11.31/2028 - Release
> Date: 03/28/09
>
> 07:16:00
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 8a. Re: Seizures and Medications
>
> Posted by: "Karina Castillo" castillokarina88@
> yahoo.com
>
> castillokarina88
>
> Date: Mon Mar 30, 2009 8:00 am ((PDT))
>
>
>
> Well hardly, i used to be taking lamictal but now my doctor
> changed my
>
> prescription so now I am taking keppra 500mg.
>
> 1/2 in the morning, 1 in the pm, and 1 daily. And I feel
> fine as now.
>
> What medication is she taking? I used to take lamictal.
>
>
>
> ____________ _________ _________ __
>
> From: Barbara Allen <barb.allen50@
> yahoo.com>
>
> To: epilepsy@yahoogroup
> s.com
>
> Sent: Thursday, March 26, 2009 8:20:37 PM
>
> Subject: Re: [epilepsy] Re: Seizures and Medications
>
>
>
> My daughter takes 500 mg of Lamictal morning and night.
> Last night we went to
>
> see a local Epilepsy doc speak, he said she should not be
> taking the lamictal at
>
> night because it can cause insomnia (which has been the
> case with her), so she
>
> is going to talk to her doc. He also said that the generic
> drug has a 20%/20%
>
> which means the drug companies only have to come within 20%
> more or less of the
>
> effectivemness of the brand name drug so depending on how
> frequent and severe
>
> the seizures are you may want to stay away from generic.
>
>
>
> --- On Thu, 3/26/09, Doris <dorisellen@ nc. rr.com>
> wrote:
>
>
>
> From: Doris <dorisellen@ nc. rr.com>
>
> Subject: [epilepsy] Re: Seizures and Medications
>
> To: epilepsy@yahoogroup s.com
>
> Date: Thursday, March 26, 2009, 6:57 PM
>
>
>
> Hi Marie,
>
> Very glad Lamictal working well for you and the super thing
> is that you are
>
> going to persue your education online. That is a terrific
> idea. It will be an
>
> accomplishment and it will be super satisfying. There is so
> much we can do
>
> online. I am on the Lamictal too, 200mg twice daily. I
> still have seizures but
>
> they are nocturnal and it happens usually twice a month. I
> have my license too
>
> and it is very meaningful to me too. For a super amount of
> years I did not have
>
> it since seizures were during the day. Left temporal
> lobectomy changed that
>
> about 12 years ago. I hope you have real good insurance
> since the Lamictal is
>
> expensive unless you use the generic type. If by chance you
> do use generic,
>
> please fill me in as I keep thinking maybe sometime I will
> be able to change to
>
> that because of the cost involved. Good luck and fill in on
> how you are doing.
>
> Take care.
>
> Doris
>
>
>
> --- In epilepsy@yahoogroup s.com, Danny Newell
> <bigboy46@.. .> wrote:
>
> >
>
> > i know some meds work different on people, i did get a
> vasectomy at a very
>
> young age. i was only 20 years old.
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > --- On Thu, 3/26/09, moblondielpn <annaackermann@
> ...> wrote:
>
> >
>
> > From: moblondielpn <annaackermann@ ...>
>
> > Subject: [epilepsy] Seizures and Medications
>
> > To: epilepsy@yahoogroup s.com
>
> > Date: Thursday, March 26, 2009, 8:41 AM
>
> >
>
> > Seems they are different for each of us. I take
> lamitcal for years now. I
>
> works
>
> > for me. Wont say haven't had any but it has helped
> me.
>
> > I am back at work. I can drive. of course we never
> forget that in one day
>
> that
>
> > can all change and I could start having them
> frequently again.
>
> > I had to have a hysterectomy about the same time I
> started lamitcal I
>
> always
>
> > had seizures and
>
> > bad ones around that "time of the month" So
> that also helped I
>
> am
>
> > sure.
>
> > I am a L.P.N. and now Hubby and i have decided for me
> to try to get my
>
> > R.N.online . take my time and just try. Even if
> studies takes a few
>
> years.. I
>
> > always even as a child that I am not so smart. Killed
> to many brain cells
>
> I
>
> > guess. My husband says that I am smarter than I think
> I am. But being
>
> treated
>
> > like I was mentally challenged as a child didn't
> help I'm sure. No
>
> one
>
> > explained to me anything about seizures and My
> childhood is a lifetime
>
> movie for
>
> > sure.
>
> > So I will try a subject at a time. I need some
> encouragement please.
>
> > Marie
>
> >
>
> >
>
> >
>
> > ------------ --------- --------- ------
>
> >
>
> > Just a friendly reminder: Please remember to sign your
> post and remember
>
> to
>
> > clean up messages when you reply to them. This is
> especially important if
>
> you
>
> > are on digest. This not only helps out the list owner
> but, it makes
>
> messages
>
> > much easier to read when they arrive in our inboxes.
>
> >
>
> > Yahoo! Groups Links
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > [Non-text portions of this message have been removed]
>
> >
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (19)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 9a. Re: Does This Happen To You? [Annette]
>
> Posted by: "TIMOTHY BALDWIN" tbb1@prodigy.
> net tbb19572000
>
> Date: Mon Mar 30, 2009 8:05 am ((PDT))
>
>
>
> Millie,
>
>
>
> Complex-partial siezures are unconscious partial siezures.
> My seizures in one
>
> area of my brain is all that is nechacerly to show that
> they are partial.
>
> And that my unconsciousness shows that defines that they
> are complex. Thank
>
> you.
>
>
>
> Timothy Baldwin < tbb1@prodigy.
> net >
>
>
>
> --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
>
>
> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Monday, March 30, 2009, 5:26 AM
>
>
>
> Annette,
>
>
>
> You usually pass out with a GM. With a Complex partial
>
> or an absence or other kinds- you don't pass out.--
> your
>
> brain just isn't working like usual. You don't
> hear
>
> what is going on and sometimes can't talk. There are
> 25
>
> different kinds of szs.
>
>
>
> Millie
>
>
>
> > Hi Millie: I don't get Medicare I get
> "Minnesota
>
> Care" Because I am
>
> > from Minnesota-- I getmy meds Cheap cuz the State
> pays for it and I pay
>
> a
>
> > CO---Pay. Oh, I was taking to a friend and she said
> the seizures I was
>
> > have were GM. But I don't understand I was
> sitting>>>>
>
> I thought the GM
>
> > is ONLY when you fall to the floor?
>
> >
>
> >
>
> >
>
> > From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> > Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> > To: epilepsy@yahoogroup s.com
>
> > Date: Saturday, March 28, 2009, 8:44 AM
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Annette,
>
> >
>
> > Before Medicare d -- I had been getting my meds almost
> free.
>
> > Dilantin (brand name) was free. Then Medicare D came
> in and
>
> > they changed it to generic. I had a complex partial--
> or
>
> > something like it and my Dr. ordered the brand name. I
> had
>
> > been sz free for 4 years. I've been on a
> combination of Dilantin
>
> > and Phenabarb for over 20 years.
>
> >
>
> > Millie
>
> >
>
> >> Hi Millie : My Insurance that I get thru the
> State does't cover
>
> >> regular
>
> >> EP meds I was on it but now I sopose cuz the
> Country's pinching
>
> >> pennies
>
> >> they want to try me out on Generic . I have
> been on these 2
>
> types of
>
> >> Meds 4 years. Maybe I will have 2 b a Guinne Pig
> again ( which I
>
> >> really
>
> >> don't) Maybe it takes longer/ who knows
> thanks 4 your
>
> reply.
>
> >> ~~Annette~~
>
> >>
>
> >> --- On Fri, 3/27/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >>
>
> >>
>
> >> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >> Subject: Re: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >> To: epilepsy@yahoogroup s.com
>
> >> Date: Friday, March 27, 2009, 8:47 PM
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> Anne,
>
> >>
>
> >> Generic meds for EP don't seem to work too
> well. I know I need
>
> >> to take the Brand name. It is more expensive but
> if it works--fine.
>
> >>
>
> >> Or maybe you need another med. There are 30
> different kinds of meds.
>
> >> Or a combination. Each person has to find the one
> that works for them.
>
> >>
>
> >> Millie
>
> >>
>
> >>> Hi At first it was Grandmal then
> I started haveing
>
> what are
>
> >>> called
>
> >>> Complex Partial, and Simple Partial I just
> called them Medium
>
> Seizures
>
> >>> or
>
> >>> Small Seizures cuz to me that is what they
> are to me also
>
> "Clusters"
>
> >>> haveing small ones right after another. I am
> sopose to take
>
> Lorazapam 1
>
> >>> mg. When it does that, But Latnight I was
> on the computer and
>
> I had 3
>
> >>> (
>
> >>> what I call) Complex Partial and very
> different I just sat at my
>
> chair
>
> >>> andjust shook and then my head hurt like my
> brain was rattled
>
> >>> (headache)
>
> >>> Then I read that Lamictial makes ya not
> sleepy I doesnt matter
>
> what
>
> >>> time
>
> >>> I take my meds I still can't fall
> asleep. I am now on Both
>
> Generic
>
> >>> Keppra & Generic Lamictal to me I
> think it isn't
>
> working cuz I have
>
> >>> not had these many seizures in years. ~Hope
> this answers your
>
> >>> questions~~ ~~Annette~~
>
> >>>
>
> >>> --- On Fri, 3/27/09, pat040394
> <ltpat228@comcast. net>
>
> wrote:
>
> >>>
>
> >>>
>
> >>> From: pat040394 <ltpat228@comcast. net>
>
> >>> Subject: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >>> To: epilepsy@yahoogroup s.com
>
> >>> Date: Friday, March 27, 2009, 5:18 PM
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> Annette - what kind of epilepsy were you
> diagnosed?
>
> >>>
>
> >>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>
> >>>
>
> >>> --- In epilepsy@yahoogroup s.com, Annette Holm
> <annetteholm69@
>
> ...>
>
> >>> wrote:
>
> >>>>
>
> >>>> I don't really know What I do know
> is that I have G.M
>
> (grandmals, Cp
>
> >>>> -complex partial what I call
> med. seizures and Sp
>
> Simple Partial
>
> >>>> what I call little ones cuz they last
> only sec.) I have a
>
> V.N.S.
>
> >>>> Vagel Nerve Stimalator I like it .
> going on 8 yrs now
>
> .
>
> >>>> ~~Annette~~
>
> >>>>
>
> >>>> --- On Wed, 3/25/09, pat040394
> <ltpat228@.. .> wrote:
>
> >>>>
>
> >>>>
>
> >>>> From: pat040394 <ltpat228@.. .>
>
> >>>> Subject: [epilepsy] Re: Does This Happen
> To You?
>
> >>>> To: epilepsy@yahoogroup s.com
>
> >>>> Date: Wednesday, March 25, 2009, 7:09 PM
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> Well I called my Neuro today and left a
> message with her
>
> Nurses about
>
> >>>> my
>
> >>>> episode.
>
> >>>> For me it's paramount as hopefully
> this will aide her in
>
> my diagnosis.
>
> >>>>
>
> >>>> What kind of epilepsy do you have?
>
> >>>>
>
> >>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~
>
> >>>>
>
> >>>> --- In epilepsy@yahoogroup s.com, Annette
> Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>> >
>
> >>>> > ok-- I was standing outside A
> Hospital cuz my
>
> stepdaughter just
>
> >>>> had twins and felt weird I could feel my
> head turn to the
>
> right ( I
>
> >>>> knew it wasn't sopose to ) I new it
> was an involentary
>
> movement (
>
> >>>> there were other people standing near
> me) but didn't
>
> notice . which
>
> >>>> was ok don't want to freak them out
> ( some of the people
>
> know about
>
> >>>> my seizures) it also was 2-3 pm.
> and also I felt like
>
> I was
>
> >>>> spacy~~!! It just seemed really odd I
> sopose I should tell
>
> my neuro
>
> >>>> X-Cept I don't want her to(up) the
> meds . I hate that
>
> when they do
>
> >>>> that.
>
> >>>> >
>
> >>>> > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .> wrote:
>
> >>>> >
>
> >>>> >
>
> >>>> > From: pat040394 <ltpat228@ .>
>
> >>>> > Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>> > To: epilepsy@yahoogroup s.com
>
> >>>> > Date: Wednesday, March 25, 2009, 5:19
> PM
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> > Please tell me, Annette, what exactly
> happened with you.
>
> >>>> >
>
> >>>> > My episode occured mid afternoon.
>
> >>>> >
>
> >>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~~~~ ~~
>
> >>>> >
>
> >>>> > --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>> > >
>
> >>>> > > Hi~~ Yes, this has happened
> to me about 3 wks
>
> ago, I wasn't at
>
> >>>> the
>
> >>>> computer, but I have noticed it a few
> times, I don't
>
> know what I'd
>
> >>>> call it I think it is a type of seizure
> cp-----sp ? I
>
> don't know
>
> >>>> if this has happened to you besides being
> on the computer I
>
> have
>
> >>>> noticed when I play . certain games on
> the computer this
>
> happenes
>
> >>>> to me . ~~Annette~~ I cannot say about
> others cuz they are
>
> all
>
> >>>> different just like we are.
>
> >>>> > >
>
> >>>> > > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .>
>
> wrote:
>
> >>>> > >
>
> >>>> > >
>
> >>>> > > From: pat040394 <ltpat228@
> .>
>
> >>>> > > Subject: [epilepsy] Does This
> Happen To You?
>
> >>>> > > To: epilepsy@yahoogroup s.com
>
> >>>> > > Date: Wednesday, March 25, 2009,
> 3:08 PM
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > > Last Sunday I was sitting here
> at my computer when
>
> it occured to
>
> >>>> me
>
> >>>> I was staring, then my neck and head
> started to pull/twitch to
>
> the
>
> >>>> right. I think when the pulling began,
> that's when I
>
> realized
>
> >>>> something was odd and I shook my body so
> it would stop. I
>
> really had
>
> >>>> to concentrate and force myself so my neck
> would go back
>
> right.
>
> >>>> > >
>
> >>>> > > I really can't say how long
> it lasted but maybe
>
> up to 30 seconds?
>
> >>>> > > I say this as when I stare, I
> truly don't know
>
> how much time goes
>
> >>>> by.
>
> >>>> > > Afterwards I felt worn out for
> some reason.
>
> >>>> > >
>
> >>>> > > As most of you know, I'm
> still being tested and
>
> haven't yet been
>
> >>>> diagnosed with epilepsy, although my
> Neurologist suspects
>
> absence
>
> >>>> petit mals.
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > >
>
> >>>> > > [Non-text portions of this
> message have been
>
> removed]
>
> >>>> > >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> >
>
> >>>> > [Non-text portions of this message
> have been removed]
>
> >>>> >
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> [Non-text portions of this message have
> been removed]
>
> >>>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> [Non-text portions of this message have been
> removed]
>
> >>>
>
> >>>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> [Non-text portions of this message have been
> removed]
>
> >>
>
> >>
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > [Non-text portions of this message have been removed]
>
> >
>
> >
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (23)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 9b. Re: Does This Happen To You? [Annette]
>
> Posted by: "mylmy@bnin.net"
> mylmy@bnin.net
> mylmy
>
> Date: Mon Mar 30, 2009 9:18 am ((PDT))
>
>
>
> Timorthy,
>
>
>
> Do you pass out or are you not aware of what is going on?
>
>
>
> Millie
>
>
>
> > Millie,
>
> >
>
> > Complex-partial siezures are unconscious partial
> siezures. My seizures in
>
> > one area of my brain is all that is nechacerly to show
> that they are
>
> > partial. And that my unconsciousness shows
> that defines that they are
>
> > complex. Thank you.
>
> >
>
> > Timothy Baldwin < tbb1@prodigy.
> net >
>
> >
>
> > --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >
>
> > From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> > Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> > To: epilepsy@yahoogroup
> s.com
>
> > Date: Monday, March 30, 2009, 5:26 AM
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Annette,
>
> >
>
> > You usually pass out with a GM. With a Complex
> partial
>
> > or an absence or other kinds- you don't pass
> out.-- your
>
> > brain just isn't working like usual. You don't
> hear
>
> > what is going on and sometimes can't talk. There
> are 25
>
> > different kinds of szs.
>
> >
>
> > Millie
>
> >
>
> >> Hi Millie: I don't get Medicare I get
> "Minnesota
>
> Care" Because I am
>
> >> from Minnesota-- I getmy meds Cheap cuz the
> State pays for it and I
>
> pay
>
> >> a
>
> >> CO---Pay. Oh, I was taking to a friend and she
> said the seizures I
>
> was
>
> >> have were GM. But I don't understand I was
>
> sitting>>>> I thought the
>
> >> GM
>
> >> is ONLY when you fall to the floor?
>
> >>
>
> >>
>
> >>
>
> >> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >> Subject: Re: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >> To: epilepsy@yahoogroup s.com
>
> >> Date: Saturday, March 28, 2009, 8:44 AM
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> Annette,
>
> >>
>
> >> Before Medicare d -- I had been getting my meds
> almost free.
>
> >> Dilantin (brand name) was free. Then Medicare D
> came in and
>
> >> they changed it to generic. I had a complex
> partial-- or
>
> >> something like it and my Dr. ordered the brand
> name. I had
>
> >> been sz free for 4 years. I've been on a
> combination of Dilantin
>
> >> and Phenabarb for over 20 years.
>
> >>
>
> >> Millie
>
> >>
>
> >>> Hi Millie : My Insurance that I get thru
> the State does't
>
> cover
>
> >>> regular
>
> >>> EP meds I was on it but now I sopose cuz the
> Country's
>
> pinching
>
> >>> pennies
>
> >>> they want to try me out on Generic . I
> have been on these 2
>
> types of
>
> >>> Meds 4 years. Maybe I will have 2 b a Guinne
> Pig again (
>
> which I
>
> >>> really
>
> >>> don't) Maybe it takes longer/ who
> knows thanks 4 your
>
> reply.
>
> >>> ~~Annette~~
>
> >>>
>
> >>> --- On Fri, 3/27/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >>>
>
> >>>
>
> >>> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >>> Subject: Re: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>> To: epilepsy@yahoogroup s.com
>
> >>> Date: Friday, March 27, 2009, 8:47 PM
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> Anne,
>
> >>>
>
> >>> Generic meds for EP don't seem to work too
> well. I know I need
>
> >>> to take the Brand name. It is more expensive
> but if it
>
> works--fine.
>
> >>>
>
> >>> Or maybe you need another med. There are 30
> different kinds of
>
> meds.
>
> >>> Or a combination. Each person has to find the
> one that works for
>
> them.
>
> >>>
>
> >>> Millie
>
> >>>
>
> >>>> Hi At first it was Grandmal
> then I started
>
> haveing what are
>
> >>>> called
>
> >>>> Complex Partial, and Simple Partial I
> just called them
>
> Medium
>
> >>>> Seizures
>
> >>>> or
>
> >>>> Small Seizures cuz to me that is what
> they are to me also
>
> >>>> "Clusters"
>
> >>>> haveing small ones right after another. I
> am sopose to take
>
> Lorazapam
>
> >>>> 1
>
> >>>> mg. When it does that, But Latnight I
> was on the computer
>
> and I had
>
> >>>> 3
>
> >>>> (
>
> >>>> what I call) Complex Partial and very
> different I just sat at
>
> my chair
>
> >>>> andjust shook and then my head hurt like
> my brain was rattled
>
> >>>> (headache)
>
> >>>> Then I read that Lamictial makes ya not
> sleepy I doesnt
>
> matter what
>
> >>>> time
>
> >>>> I take my meds I still can't fall
> asleep. I am now on
>
> Both Generic
>
> >>>> Keppra & Generic Lamictal to
> me I think it
>
> isn't working cuz I
>
> >>>> have
>
> >>>> not had these many seizures in years.
> ~Hope this answers
>
> your
>
> >>>> questions~~ ~~Annette~~
>
> >>>>
>
> >>>> --- On Fri, 3/27/09, pat040394
> <ltpat228@comcast. net>
>
> wrote:
>
> >>>>
>
> >>>>
>
> >>>> From: pat040394 <ltpat228@comcast.
> net>
>
> >>>> Subject: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>>> To: epilepsy@yahoogroup s.com
>
> >>>> Date: Friday, March 27, 2009, 5:18 PM
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> Annette - what kind of epilepsy were you
> diagnosed?
>
> >>>>
>
> >>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>
> >>>>
>
> >>>> --- In epilepsy@yahoogroup s.com, Annette
> Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>>>
>
> >>>>> I don't really know What I do
> know is that I have
>
> G.M (grandmals,
>
> >>>>> Cp
>
> >>>>> -complex partial what I call
> med. seizures and Sp
>
> Simple Partial
>
> >>>>> what I call little ones cuz they
> last only sec.) I
>
> have a V.N.S.
>
> >>>>> Vagel Nerve Stimalator I like it
> . going on 8 yrs
>
> now .
>
> >>>>> ~~Annette~~
>
> >>>>>
>
> >>>>> --- On Wed, 3/25/09, pat040394
> <ltpat228@.. .>
>
> wrote:
>
> >>>>>
>
> >>>>>
>
> >>>>> From: pat040394 <ltpat228@.. .>
>
> >>>>> Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> To: epilepsy@yahoogroup s.com
>
> >>>>> Date: Wednesday, March 25, 2009, 7:09
> PM
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>> Well I called my Neuro today and left
> a message with her
>
> Nurses about
>
> >>>>> my
>
> >>>>> episode.
>
> >>>>> For me it's paramount as hopefully
> this will aide her
>
> in my
>
> >>>>> diagnosis.
>
> >>>>>
>
> >>>>> What kind of epilepsy do you have?
>
> >>>>>
>
> >>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~
>
> >>>>>
>
> >>>>> --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> >
>
> >>>>> > ok-- I was standing outside
> A Hospital cuz
>
> my stepdaughter
>
> >>>>> just
>
> >>>>> had twins and felt weird I could
> feel my head turn to
>
> the right ( I
>
> >>>>> knew it wasn't sopose to ) I new
> it was an
>
> involentary movement (
>
> >>>>> there were other people standing near
> me) but didn't
>
> notice . which
>
> >>>>> was ok don't want to freak them
> out ( some of the
>
> people know about
>
> >>>>> my seizures) it also was 2-3
> pm. and also I felt
>
> like I was
>
> >>>>> spacy~~!! It just seemed really odd
> I sopose I should
>
> tell my neuro
>
> >>>>> X-Cept I don't want her to(up)
> the meds . I hate
>
> that when they do
>
> >>>>> that.
>
> >>>>> >
>
> >>>>> > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .>
>
> wrote:
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > From: pat040394 <ltpat228@
> .>
>
> >>>>> > Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> > To: epilepsy@yahoogroup s.com
>
> >>>>> > Date: Wednesday, March 25, 2009,
> 5:19 PM
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > Please tell me, Annette, what
> exactly happened with
>
> you.
>
> >>>>> >
>
> >>>>> > My episode occured mid
> afternoon.
>
> >>>>> >
>
> >>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~~~~ ~~
>
> >>>>> >
>
> >>>>> > --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> > >
>
> >>>>> > > Hi~~ Yes, this has
> happened to me about 3 wks
>
> ago, I wasn't at
>
> >>>>> the
>
> >>>>> computer, but I have noticed it a few
> times, I don't
>
> know what I'd
>
> >>>>> call it I think it is a type of
> seizure cp-----sp
>
> ? I don't know
>
> >>>>> if this has happened to you besides
> being on the
>
> computer I have
>
> >>>>> noticed when I play . certain games
> on the computer this
>
> happenes
>
> >>>>> to me . ~~Annette~~ I cannot say
> about others cuz they
>
> are all
>
> >>>>> different just like we are.
>
> >>>>> > >
>
> >>>>> > > --- On Wed, 3/25/09,
> pat040394 <ltpat228@
>
> .> wrote:
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > From: pat040394
> <ltpat228@ .>
>
> >>>>> > > Subject: [epilepsy] Does
> This Happen To You?
>
> >>>>> > > To: epilepsy@yahoogroup
> s.com
>
> >>>>> > > Date: Wednesday, March 25,
> 2009, 3:08 PM
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > Last Sunday I was sitting
> here at my computer
>
> when it occured to
>
> >>>>> me
>
> >>>>> I was staring, then my neck and head
> started to
>
> pull/twitch to the
>
> >>>>> right. I think when the pulling began,
> that's when I
>
> realized
>
> >>>>> something was odd and I shook my body
> so it would stop. I
>
> really had
>
> >>>>> to concentrate and force myself so my
> neck would go back
>
> right.
>
> >>>>> > >
>
> >>>>> > > I really can't say how
> long it lasted but
>
> maybe up to 30 seconds?
>
> >>>>> > > I say this as when I stare,
> I truly don't
>
> know how much time goes
>
> >>>>> by.
>
> >>>>> > > Afterwards I felt worn out
> for some reason.
>
> >>>>> > >
>
> >>>>> > > As most of you know, I'm
> still being tested
>
> and haven't yet been
>
> >>>>> diagnosed with epilepsy, although my
> Neurologist suspects
>
> absence
>
> >>>>> petit mals.
>
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>
> Messages in this topic (23)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 9c. Re: Does This Happen To You? [Annette]
>
> Posted by: "TIMOTHY BALDWIN" tbb1@prodigy.
> net tbb19572000
>
> Date: Mon Mar 30, 2009 1:01 pm ((PDT))
>
>
>
> YES. Mostly all times when one occurs at home, where I live
> by my self without
>
> a witness to inform me of them. I'm not aware of a
> seizure. Unless, I was
>
> injured in the fall, or if I may have been sitting in a
> good chair watching
>
> TV and spilled something I'd been drinking
> into my lap. If I don't
>
> spill anything, I wouldn't be aware that I missed a
> min. or few of the
>
> show. During one of latest seizures, I was walking from
> the
>
> refrigerator. Thing in a hand were dropped while I fell
> and afterward I
>
> probably just stood up and got back and did something
> without being fully aware
>
> that anything until 30 mins. later when I noticed that I
> was confused, I was
>
> in the right place but didn't remember my route there
> or those I was to take
>
> I just walked and thought that I was having a simple
> partial seizure. I
>
> didn't know that my confusion was due to being in the
> post ictal period
>
> of a complex-partial that had happed at home earlier when
> I was
>
> returning from the refridgerator. It took place, I dropped
> what was in my
>
> hand. I then stood up and wasn't aware of the seizure
> happening or
>
> anything or what I was doing or had been in my hand.
> Thirty mins. later, I
>
> still wasn't aware of previous seizure. But I noticed
> that I
>
> was confused and thought that I was having a simple
> partial taking place in my
>
> brain at that time. I wasn't aware of a seizure
> earlier which placed me
>
> in the post ictal period of the complex partial that
> had occured .
>
> Later, after work I was back at home and near the refidg.
> I saw the remains
>
> from it. And, I figured that the confusion I was aware
> later when on my way
>
> to work was related to it.
>
>
>
> Thanks for hearing it,
>
> Tim Baldwin < tbb1@prodigy.
> net >
>
>
>
>
>
> --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
>
>
> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Monday, March 30, 2009, 12:16 PM
>
>
>
> Timorthy,
>
>
>
> Do you pass out or are you not aware of what is going on?
>
>
>
> Millie
>
>
>
> > Millie,
>
> >
>
> > Complex-partial siezures are unconscious partial
> siezures. My seizures in
>
> > one area of my brain is all that is nechacerly to show
> that they are
>
> > partial. And that my unconsciousness shows
> that defines that they are
>
> > complex. Thank you.
>
> >
>
> > Timothy Baldwin < tbb1@prodigy. net >
>
> >
>
> > --- On Mon, 3/30/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >
>
> > From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> > Subject: Re: [epilepsy] Re: Does This Happen To You?
> [Annette]
>
> > To: epilepsy@yahoogroup s.com
>
> > Date: Monday, March 30, 2009, 5:26 AM
>
> >
>
> >
>
> >
>
> >
>
> >
>
> >
>
> > Annette,
>
> >
>
> > You usually pass out with a GM. With a Complex
> partial
>
> > or an absence or other kinds- you don't pass
> out.-- your
>
> > brain just isn't working like usual. You don't
> hear
>
> > what is going on and sometimes can't talk. There
> are 25
>
> > different kinds of szs.
>
> >
>
> > Millie
>
> >
>
> >> Hi Millie: I don't get Medicare I get
> "Minnesota
>
> Care" Because I am
>
> >> from Minnesota-- I getmy meds Cheap cuz the
> State pays for it and I
>
> pay
>
> >> a
>
> >> CO---Pay. Oh, I was taking to a friend and she
> said the seizures I
>
> was
>
> >> have were GM. But I don't understand I was
>
> sitting>>>> I thought the
>
> >> GM
>
> >> is ONLY when you fall to the floor?
>
> >>
>
> >>
>
> >>
>
> >> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >> Subject: Re: [epilepsy] Re: Does This Happen To
> You? [Annette]
>
> >> To: epilepsy@yahoogroup s.com
>
> >> Date: Saturday, March 28, 2009, 8:44 AM
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >>
>
> >> Annette,
>
> >>
>
> >> Before Medicare d -- I had been getting my meds
> almost free.
>
> >> Dilantin (brand name) was free. Then Medicare D
> came in and
>
> >> they changed it to generic. I had a complex
> partial-- or
>
> >> something like it and my Dr. ordered the brand
> name. I had
>
> >> been sz free for 4 years. I've been on a
> combination of Dilantin
>
> >> and Phenabarb for over 20 years.
>
> >>
>
> >> Millie
>
> >>
>
> >>> Hi Millie : My Insurance that I get thru
> the State does't
>
> cover
>
> >>> regular
>
> >>> EP meds I was on it but now I sopose cuz the
> Country's
>
> pinching
>
> >>> pennies
>
> >>> they want to try me out on Generic . I
> have been on these 2
>
> types of
>
> >>> Meds 4 years. Maybe I will have 2 b a Guinne
> Pig again (
>
> which I
>
> >>> really
>
> >>> don't) Maybe it takes longer/ who
> knows thanks 4 your
>
> reply.
>
> >>> ~~Annette~~
>
> >>>
>
> >>> --- On Fri, 3/27/09, mylmy@bnin.net
> <mylmy@bnin.net>
> wrote:
>
> >>>
>
> >>>
>
> >>> From: mylmy@bnin.net
> <mylmy@bnin.net>
>
> >>> Subject: Re: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>> To: epilepsy@yahoogroup s.com
>
> >>> Date: Friday, March 27, 2009, 8:47 PM
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> Anne,
>
> >>>
>
> >>> Generic meds for EP don't seem to work too
> well. I know I need
>
> >>> to take the Brand name. It is more expensive
> but if it
>
> works--fine.
>
> >>>
>
> >>> Or maybe you need another med. There are 30
> different kinds of
>
> meds.
>
> >>> Or a combination. Each person has to find the
> one that works for
>
> them.
>
> >>>
>
> >>> Millie
>
> >>>
>
> >>>> Hi At first it was Grandmal
> then I started
>
> haveing what are
>
> >>>> called
>
> >>>> Complex Partial, and Simple Partial I
> just called them
>
> Medium
>
> >>>> Seizures
>
> >>>> or
>
> >>>> Small Seizures cuz to me that is what
> they are to me also
>
> >>>> "Clusters"
>
> >>>> haveing small ones right after another. I
> am sopose to take
>
> Lorazapam
>
> >>>> 1
>
> >>>> mg. When it does that, But Latnight I
> was on the computer
>
> and I had
>
> >>>> 3
>
> >>>> (
>
> >>>> what I call) Complex Partial and very
> different I just sat at
>
> my chair
>
> >>>> andjust shook and then my head hurt like
> my brain was rattled
>
> >>>> (headache)
>
> >>>> Then I read that Lamictial makes ya not
> sleepy I doesnt
>
> matter what
>
> >>>> time
>
> >>>> I take my meds I still can't fall
> asleep. I am now on
>
> Both Generic
>
> >>>> Keppra & Generic Lamictal to
> me I think it
>
> isn't working cuz I
>
> >>>> have
>
> >>>> not had these many seizures in years.
> ~Hope this answers
>
> your
>
> >>>> questions~~ ~~Annette~~
>
> >>>>
>
> >>>> --- On Fri, 3/27/09, pat040394
> <ltpat228@comcast. net>
>
> wrote:
>
> >>>>
>
> >>>>
>
> >>>> From: pat040394 <ltpat228@comcast.
> net>
>
> >>>> Subject: [epilepsy] Re: Does This Happen
> To You? [Annette]
>
> >>>> To: epilepsy@yahoogroup s.com
>
> >>>> Date: Friday, March 27, 2009, 5:18 PM
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> Annette - what kind of epilepsy were you
> diagnosed?
>
> >>>>
>
> >>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
>
> >>>>
>
> >>>> --- In epilepsy@yahoogroup s.com, Annette
> Holm
>
> <annetteholm69@ ...>
>
> >>>> wrote:
>
> >>>>>
>
> >>>>> I don't really know What I do
> know is that I have
>
> G.M (grandmals,
>
> >>>>> Cp
>
> >>>>> -complex partial what I call
> med. seizures and Sp
>
> Simple Partial
>
> >>>>> what I call little ones cuz they
> last only sec.) I
>
> have a V.N.S.
>
> >>>>> Vagel Nerve Stimalator I like it
> . going on 8 yrs
>
> now .
>
> >>>>> ~~Annette~~
>
> >>>>>
>
> >>>>> --- On Wed, 3/25/09, pat040394
> <ltpat228@.. .>
>
> wrote:
>
> >>>>>
>
> >>>>>
>
> >>>>> From: pat040394 <ltpat228@.. .>
>
> >>>>> Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> To: epilepsy@yahoogroup s.com
>
> >>>>> Date: Wednesday, March 25, 2009, 7:09
> PM
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>> Well I called my Neuro today and left
> a message with her
>
> Nurses about
>
> >>>>> my
>
> >>>>> episode.
>
> >>>>> For me it's paramount as hopefully
> this will aide her
>
> in my
>
> >>>>> diagnosis.
>
> >>>>>
>
> >>>>> What kind of epilepsy do you have?
>
> >>>>>
>
> >>>>> ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~
>
> >>>>>
>
> >>>>> --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> >
>
> >>>>> > ok-- I was standing outside
> A Hospital cuz
>
> my stepdaughter
>
> >>>>> just
>
> >>>>> had twins and felt weird I could
> feel my head turn to
>
> the right ( I
>
> >>>>> knew it wasn't sopose to ) I new
> it was an
>
> involentary movement (
>
> >>>>> there were other people standing near
> me) but didn't
>
> notice . which
>
> >>>>> was ok don't want to freak them
> out ( some of the
>
> people know about
>
> >>>>> my seizures) it also was 2-3
> pm. and also I felt
>
> like I was
>
> >>>>> spacy~~!! It just seemed really odd
> I sopose I should
>
> tell my neuro
>
> >>>>> X-Cept I don't want her to(up)
> the meds . I hate
>
> that when they do
>
> >>>>> that.
>
> >>>>> >
>
> >>>>> > --- On Wed, 3/25/09, pat040394
> <ltpat228@ .>
>
> wrote:
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > From: pat040394 <ltpat228@
> .>
>
> >>>>> > Subject: [epilepsy] Re: Does This
> Happen To You?
>
> >>>>> > To: epilepsy@yahoogroup s.com
>
> >>>>> > Date: Wednesday, March 25, 2009,
> 5:19 PM
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> > Please tell me, Annette, what
> exactly happened with
>
> you.
>
> >>>>> >
>
> >>>>> > My episode occured mid
> afternoon.
>
> >>>>> >
>
> >>>>> > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~
> ~~~~~~~~~ ~~
>
> >>>>> >
>
> >>>>> > --- In epilepsy@yahoogroup s.com,
> Annette Holm
>
> <annetteholm69@ ...>
>
> >>>>> wrote:
>
> >>>>> > >
>
> >>>>> > > Hi~~ Yes, this has
> happened to me about 3 wks
>
> ago, I wasn't at
>
> >>>>> the
>
> >>>>> computer, but I have noticed it a few
> times, I don't
>
> know what I'd
>
> >>>>> call it I think it is a type of
> seizure cp-----sp
>
> ? I don't know
>
> >>>>> if this has happened to you besides
> being on the
>
> computer I have
>
> >>>>> noticed when I play . certain games
> on the computer this
>
> happenes
>
> >>>>> to me . ~~Annette~~ I cannot say
> about others cuz they
>
> are all
>
> >>>>> different just like we are.
>
> >>>>> > >
>
> >>>>> > > --- On Wed, 3/25/09,
> pat040394 <ltpat228@
>
> .> wrote:
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > From: pat040394
> <ltpat228@ .>
>
> >>>>> > > Subject: [epilepsy] Does
> This Happen To You?
>
> >>>>> > > To: epilepsy@yahoogroup
> s.com
>
> >>>>> > > Date: Wednesday, March 25,
> 2009, 3:08 PM
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > Last Sunday I was sitting
> here at my computer
>
> when it occured to
>
> >>>>> me
>
> >>>>> I was staring, then my neck and head
> started to
>
> pull/twitch to the
>
> >>>>> right. I think when the pulling began,
> that's when I
>
> realized
>
> >>>>> something was odd and I shook my body
> so it would stop. I
>
> really had
>
> >>>>> to concentrate and force myself so my
> neck would go back
>
> right.
>
> >>>>> > >
>
> >>>>> > > I really can't say how
> long it lasted but
>
> maybe up to 30 seconds?
>
> >>>>> > > I say this as when I stare,
> I truly don't
>
> know how much time goes
>
> >>>>> by.
>
> >>>>> > > Afterwards I felt worn out
> for some reason.
>
> >>>>> > >
>
> >>>>> > > As most of you know, I'm
> still being tested
>
> and haven't yet been
>
> >>>>> diagnosed with epilepsy, although my
> Neurologist suspects
>
> absence
>
> >>>>> petit mals.
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > >
>
> >>>>> > > [Non-text portions of this
> message have been
>
> removed]
>
> >>>>> > >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
> >>>>> >
>
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>
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>
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>
> >>>>> > [Non-text portions of this
> message have been removed]
>
> >>>>> >
>
> >>>>>
>
> >>>>>
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> >>>>>
>
> >>>>>
>
> >>>>>
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> >>>>>
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> >>>>>
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> >>>>>
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> >>>>>
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> >>>>>
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> >>>>>
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> >>>>>
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> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>>
>
> >>>>> [Non-text portions of this message
> have been removed]
>
> >>>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>>
>
> >>>> [Non-text portions of this message have
> been removed]
>
> >>>>
>
> >>>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>>
>
> >>> [Non-text portions of this message have been
> removed]
>
> >>>
>
> >>>
>
> >>
>
> >>
>
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> Messages in this topic (23)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 10a. Re: GOOD MORNING TO ALL
>
> Posted by: "Kirsten" kirsty815@yahoo.
> com kirsty815
>
> Date: Mon Mar 30, 2009 8:25 am ((PDT))
>
>
>
> Hey Tammy,
>
> Our Meghan is 6 years old, she goes by meggers, meg-a-moo,
> moo moo, bug-a-boo
>
> and various others I'm sure she'll totally be
> embarrassed by in a few
>
> years..lol
>
> The National Walk for Epilepsy is in D.C. but you can
> fundraise and virtual
>
> walk or walk in your own community on the day (they'll
> send you your
>
> t-shirts and give you press release info if you want to get
> the media involved
>
> in your local participation) . This was our first year
> virtual walking and we
>
> raised $130 not to bad considering I'm not a pushy
> sales person..lol Next
>
> year we're going to try and make it to D.C. and get our
> local media
>
> involved. There are other walks you can participate in,
> but you have to check
>
> your local Epilepsy Foundation chapter to see where they
> are. I know here in
>
> Tampa they have one in December called the reindeer run,
> it's a 5k or a mile
>
> walk with kids, they give the kids bells and antlers, very
> cute!
>
>
>
> Kirst
>
>
>
> --- In epilepsy@yahoogroup
> s.com, Tammy Wolfgram <tammy@...> wrote:
>
> >
>
> > Hi all,
>
> >
>
> > You all have too much to say! I can barely keep up
> with you. I was
>
> > five digests behind this afternoon! I'm doing to
> just do all my
>
> > replies to the two remaining digests in this email.
> BTW, it would
>
> > really help me and others who are on digest format if
> you would trim
>
> > your quoted material when replying. A lot of times,
> there is about 3
>
> > or 4 times as much quoted material in each digest as
> new material.
>
> >
>
> > Annette, I am insured by my state's health risk
> sharing pool, which
>
> > means that I pay premiums like an insurance plan, but
> it has similar
>
> > restrictions to medicare. I think that in most cases,
> if your doctor
>
> > indicates that the brand name medication is
> "medically
>
> necessary" you
>
> > can get the brand name approved. We were able to do
> this for Megan,
>
> > in spite of the new drug policy indicating that no
> brand name drugs
>
> > would be covered if there was a generic available. We
> pay a higher co-
>
> > pay ($30 for each Rx), but it's well worth it in
> terms of Megan's
>
>
>
> > better seizure control.
>
> >
>
> > Also for Annette: Grand mal seizures are also known as
> generalized
>
> > tonic clonic seizures. You can fall to the floor, but
> if you are
>
> > seated, you might remain so even while having a tonic
> clonic seizure.
>
> > You generally lose consciousness during the seizure,
> and your muscles
>
> > spasm or contract. When Megan feels like she is going
> to have a
>
> > seizure and can let us know, we either sit her down
> or get her to
>
> > lie down so she doesn't injure herself while
> falling. That said,
>
> > Megan generally has only superficial injuries as the
> result of her
>
> > seizures. Bruises or small abrasions are usually all
> that happens.
>
> >
>
> > It is possible for you to have more than one kind of
> seizure. When
>
> > you were sitting, was there anyone around to describe
> what was
>
> > happening? Do you have any recollection of that time?
> Best wishes in
>
> > getting this figured out.
>
> >
>
> > For Kirst and Meghan: first off, how old is your
> Meghan? My Megan is
>
> > 19 and will be 20 in May. We also call our Megan
> "Meggers"
>
> although
>
> > she is also known as Monkey and Magpie by various
> people :) I am
>
> > unfamiliar with the Walk for Epilepsy. Do they only do
> this in DC, or
>
> > are there events staged in other cities in the US on
> the same day?
>
> >
>
> > For Melissa and Steve's reply: Steve, I think it
> is so great that
>
> > your surgery had such good results for you. Melissa,
> since
>
> > medications do not work for you and you apparently
> have a focus of
>
> > seizure activity in your brain, I certainly would
> encourage you to
>
> > explore the option of surgery.
>
> >
>
> > For Jill: I can understand your worry and concern for
> your husband.
>
> > It sounds like he has only had one seizure so far.
> While it is wise
>
> > to look into it, this one seizure could just be an
> anomaly. Best
>
> > wishes to you both.
>
> >
>
> > For travilin2, if you feel this second doctor is a
> better fit for
>
> > you, and you don't have much confidence in the way
> your case is being
>
>
>
> > handled by the first doctor and his office, I think
> changing would be
>
> > a good idea. You might want to investigate the
> reputation and
>
> > credentials of doctor number 2 before making the
> switch, just to be
>
> > sure.
>
> >
>
> > OK, this is long and I've only read the one
> digest, so I'll send
>
> this
>
> > now.
>
> >
>
> > Tammy
>
> >
>
>
>
> Messages in this topic (6)
>
> ____________ _________ _________ _________ _________
> _________ _
>
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> _________ _
>
> 11. Re: drugs for seizures (Millie)
>
> Posted by: "Jill Gunzel" gunzel@cox.net
> jgunzel
>
> Date: Mon Mar 30, 2009 9:29 am ((PDT))
>
>
>
> Millie,
>
> Thanks so much for your comments on meds and seizures.
> I'm hoping we
>
> won't need them, but we're already talking about
> the "what if this
>
>
>
> wasn't a flukey one-time seizure". I speculated
> about medicines and
>
> your post confirmed I was correct. I speculated that it
> was just
>
> like with Restless Legs Syndrome. The FDA approves some
> drugs for
>
> it, the doctors also prescribe other drugs that are
> approved for
>
> other situations, and to make it really exciting, we find
> that what
>
> works for one doesn't work for the other....or even
> makes it worse!
>
>
>
> With RLS, coffee is a bad thing for some, but for others it
> will stop
>
> and RLS attack. Go figure!
>
>
>
> I love your attitude about not caring about the
> cause....you got it,
>
> you're dealing with it. Good for you!!!
>
> Jill
>
>
>
> Messages in this topic (1)
>
> ____________ _________ _________ _________ _________
> _________ _
>
> ____________ _________ _________ _________ _________
> _________ _
>
> 12a. Re: EEG Result
>
> Posted by: "debbie riley" islandbabie5942004@
> yahoo.com
>
> islandbabie5942004
>
> Date: Mon Mar 30, 2009 1:25 pm ((PDT))
>
>
>
> hun dont give up. it took my hubby 5 years to finally have
> a egg to show
>
> something we thougtht the doc tought we was crazy but 2
> weeks ago he had a
>
> siezure and it show up on the egg and now he is on meds
> doing better please take
>
> care
>
>
>
> --- On Fri, 3/27/09, pat040394 <ltpat228@comcast.
> net> wrote:
>
>
>
> From: pat040394 <ltpat228@comcast.
> net>
>
> Subject: [epilepsy] EEG Result
>
> To: epilepsy@yahoogroup
> s.com
>
> Date: Friday, March 27, 2009, 10:32 PM
>
>
>
> It was normal.
>
>
>
> Had an absence petit mal last Sunday but noooooooooo, the
> friggin EEG taken 1
>
> week earlier was normal!
>
>
>
> I've had it, man - just about had it.
>
>
>
> All these tests and still no diagnosis.
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> Messages in this topic (7)
>
>
>
> Just a friendly reminder: Please remember to sign your post
> and remember to
>
> clean up messages when you reply to them. This is
> especially important if you
>
> are on digest. This not only helps out the list owner but,
> it makes messages
>
> much easier to read when they arrive in our inboxes.
>
>
>
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