Thursday, April 30, 2009

[epilepsy] Psychomotor EP?



Saw my Neurologist this afternoon for my follow up explaining how just before I left for her visit I was playing a CD on my computer and ya know how those skins on that Media Player come up with all the various wild colors and shapes, etc? Well my son and I were clicking thru them when this really cool psychedlic pattern came on and boy oh boy, it was like it snacthed and dragged me in to my PC!
My son said to turn it off so I did, but I tell ya - had I continued to watch this almosty strobe-like display of colossal colors, I can only imagine what'd happened.

As most of you know, I haven't been officially diagnosed with EP yet altho my Neuro had written in her notes as well as told me she suspects absence and frontal lobe sxs.

Today her notes say "psychomot Ep-not intract: uncontrolled - uncertain etiology."
Wtf???
Hahahaha.
I looked it up and seems she's referring to temporal lobe epilepsy, i.e., TLE?

She gave me an Rx for Trileptal but when I got to CVS, it was way too expensive [I am self pay] so they're gonna fax asking her for another med.

Since I cannot afford the 24 hour EEG and both my EEGs were normnal, I imagine she's relying on my symptoms and episodes.
I wonder because I filed for social security disability last year for other illnesses; and subsequently these seizures surfaced. So if indeed I do have EP, dangit, I want it written clearly so the SSA and my Attorneys can deciper thru the medical jargon - lol. Not only that, I really wanna know what's wrong with me and how to treat it!

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