Wednesday, April 29, 2009

Re: [epilepsy] Surgery or no Surgery?



Julie,

I am glad I had the surgery, but the seizures are not getting any better. It
started out a couple of seizures a month, but now it has been as high as
7.My neurologist told me there was a 70% chance that I would never have
another seizure.The Keppra which is now Keppra XR Itakethe exact same dose I
did before I had the surgery, but the Neurontin which was 3200 mgs a day is
at 900mgs a day. When I came totally off the Neurontin, that is when the
seizures started, but even as it started increasing the dosage of it the
seizures have too.My neurologist at one time said it could be scar tissue
and then the hormone thing, so he doesn't know why they are acting up. I am
scheduled to go back in the hospital Tuesday to be monitored,which I totally
dread. I have to start going off my medicine tomorrow.The neurologist said
he wanted to see if they were coming from anywhere else.I just don't know.I
will be glad when the whole hospital thing is over. The surgery was a good
thing, but if they find out it is scar tissue it seems like they would have
to remove it every so often. Who knows. Take care and write me anytime.

Tammy

On Wed, Apr 29, 2009 at 1:44 AM, Julie Hope <epilepsyhealth@sasktel.net>wrote:

>
>
> I have not had the surgery nor can I but have heard others speak of that
> too Tammy - you are not alone. I
> don't think there is a permanent cure or would want to say. It was
> certainly great that you did have some
> control for that period of time at least. I am curious when you have had
> surgery like that do you still take
> your medication as before?
> Some people can go for years without a seizure after the implant or surgery
> and others can't. Did your doctor
> say there may be pros and cons about it and that it may not work to your
> liking?
> Take care Tammy
> Keep smiling and write any time would love to hear from you.
> Julie
> Julie Hope
> epilepsyhealth@sasktel.net <epilepsyhealth%40sasktel.net>
> http://www.2betrhealth.com
> ----- Original Message -----
> From: "uniquepnk tds.net" <Uniquepnk@tds.net <Uniquepnk%40tds.net>>
> To: <epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>>
> Sent: Monday, April 27, 2009 12:27 PM
> Subject: Re: [epilepsy] Surgery or no Surgery?
>
> CBI,
>
> I had a left temporal surgery back in 2004. I had a head injury and they
> removed the scar where the damage was. It was a very small, what the
> neurosurgeon removed was. I went nine months without a seizure and they
> started back. They are not near as bad or as many. I have been on just
> about
> every kind of medicine and on very high doses and none of them controlled
> the seizures. After the surgery I was taken off one of the medications I
> was
> on, but I had to take it back in a smaller dose. It is a decision that I am
> changed my life to a certain extent. If you are a candidate, it might be
> something to think about. If there is anything else I can help, write
> anytime. Take care.
>
> Tammy
>
>
>

[Non-text portions of this message have been removed]

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