Thursday, April 30, 2009

Re: [epilepsy] Re: Surgery or no Surgery?



Katrina,

I was very scared about having the surgery. It took awhile for me to get
brave enough to get my nerve up to do it. I was in and out of the hospital
two days later, but it took time to get myself back on my feet at home. Any
kind of surgery is risky, but I was having so many seizures, with my family
and friends I figured there was nothing to lose. Sometimes the seizures were
so bad then it took 3 or 4 people to keep me from hurting myself.I was
barely making it before I had the surgery, sleeping most of the time. It was
something that changed my life when I had it done.It gave my life a
different meaning.I just hope I never have to make a decision like that
again. Take care.

Tammy

On Thu, Apr 30, 2009 at 1:04 PM, katrini24 <katrini24@yahoo.com> wrote:

>
>
> --- In epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>, "Doris"
> <dorisellen@...> wrote:
> >
> > I had left temporal too, on 9/12/97. My seizures during the day
> > completely stopped however nocturnal ones began and I still get
> > these a couple of times a month. It is so much better than having them
> when awake. I am glad I did the surgery and the changes it made possible
> made it worth it. I am still on drugs too, presenty Lamictal. Good luck.
> > Doris
> >
> > --- In epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>, Julie Hope
> <epilepsyhealth@> wrote:
> > >
> > > I have not had the surgery nor can I but have heard others speak of
> that too Tammy - you are not alone. I
> > > don't think there is a permanent cure or would want to say. It was
> certainly great that you did have some
> > > control for that period of time at least. I am curious when you have
> had surgery like that do you still take
> > > your medication as before?
> > > Some people can go for years without a seizure after the implant or
> surgery and others can't. Did your doctor
> > > say there may be pros and cons about it and that it may not work to
> your liking?
> > > Take care Tammy
> > > Keep smiling and write any time would love to hear from you.
> > > Julie
> > > Julie Hope
> > > epilepsyhealth@
> > > http://www.2betrhealth.com
> > > ----- Original Message -----
> > > From: "uniquepnk tds.net" <Uniquepnk@>
> > > To: <epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>>
> > > Sent: Monday, April 27, 2009 12:27 PM
> > > Subject: Re: [epilepsy] Surgery or no Surgery?
> > >
> > >
> > > CBI,
> > >
> > > I had a left temporal surgery back in 2004. I had a head injury and
> they
> > > removed the scar where the damage was. It was a very small, what the
> > > neurosurgeon removed was. I went nine months without a seizure and they
> > > started back. They are not near as bad or as many. I have been on just
> about
> > > every kind of medicine and on very high doses and none of them
> controlled
> > > the seizures. After the surgery I was taken off one of the medications
> I was
> > > on, but I had to take it back in a smaller dose. It is a decision that
> I am
> > > changed my life to a certain extent. If you are a candidate, it might
> be
> > > something to think about. If there is anything else I can help, write
> > > anytime. Take care.
> > >
> > > Tammy
> > >
> >I thought that surgery for seizures was bad or very risky. Were you
> scared?
>
> Katrina
>
>
>

[Non-text portions of this message have been removed]

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