Tuesday, April 28, 2009

Re: [epilepsy] Taking more than one medication



Yes CBI, I agree. That would be way to tough for me ... I sometimes forget what day it is.:)smile(;
keep smiling
Julie

Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "CBI" <cbicook@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Tuesday, April 28, 2009 4:02 PM
Subject: [epilepsy] Taking more than one medication

Wow, That's a tough meds schedule to keep up with. I'm glad you can
keep it straight. I know it would be a challenge for me. You are
also fortunate to not have a seizure for more than a year. I would
love to reach that point again. The breakthrough seizures I have are
frustrating but I am learning to live with them. I need to ask my
doctor, and I have a new neurologist because my previous one retired.
I want to learn more about the different medications we all take. The
first question I have is which ones are new to the market. I have read
there are many that are just being made available and I don't know
their differences. Dilantin and Phenabarb have been around for many
years. Carbatrol has been around for some time also. If anyone is
using on of the new medications, how much success are they having? Any
side effects?
Thanks everyone for your support. I'm learning a lot about how we each deal with this.

CBI

--- On Tue, 4/28/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
From: mylmy@bnin.net <mylmy@bnin.net>
Subject: Re: [epilepsy] Taking more than one medication
To: epilepsy@yahoogroups.com
Date: Tuesday, April 28, 2009, 1:1

CBI,
For me it was up to the Dr. I have nothing to do with it.
I was taking 4 brand name Dilantin and the blood level
told him that was too much. So I take 3 Dilantin Mon, Wed
and Fri and 4 the other days.I also take 4- 30 mg phenabarb
a day. I have my blood levels checked twice a year and again
if I have a sz. I have a physical once a year and a check up
6 months later. I have been on this for over 20 years. He
also has my liver, kidneys, sugar etc. checked.(blood test)

I take 2 Dilantin ,2 phenabarb and an Evista (osteoporosis)
in the AM and on Mon, Wed, and Fri I take 1 Dilantin, 2 phenabarb
and aspirin. The other days I take 2 Dilantin, 2 phenabarb and
an aspirin at night.

My last sz was 2 years ago and before that it was 4 years.
I used to have grand mal szs but now they are more like complex
partials. My girls say my brain is scrambled for about 2 days.
I don't pass out but I also am not my normal self. I don't smile,
act like I don't hear you, don't ask questions and then can't
answer questions.
Millie

[Non-text portions of this message have been removed]

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