CBI,
For me it was up to the Dr. I have nothing to do with it.
I was taking 4 brand name Dilantin and the blood level
told him that was too much. So I take 3 Dilantin Mon, Wed
and Fri and 4 the other days.I also take 4- 30 mg phenabarb
a day. I have my blood levels checked twice a year and again
if I have a sz. I have a physical once a year and a check up
6 months later. I have been on this for over 20 years. He
also has my liver, kidneys, sugar etc. checked.(blood test)
I take 2 Dilantin ,2 phenabarb and an Evista (osteoporosis)
in the AM and on Mon, Wed, and Fri I take 1 Dilantin, 2 phenabarb
and aspirin. The other days I take 2 Dilantin, 2 phenabarb and
an aspirin at night.
My last sz was 2 years ago and before that it was 4 years.
I used to have grand mal szs but now they are more like complex
partials. My girls say my brain is scrambled for about 2 days.
I don't pass out but I also am not my normal self. I don't smile,
act like I don't hear you, don't ask questions and then can't
answer questions.
Millie
> The only time I've taken more than one medication was when I switched
> from Dilantin to Tegretal. This was a phase out phase in approach and it
> worked for me, no seizures during the transition. I had been on dilantin
> so long that I had conficence even though it didn't completely stop my
> seizures. I was not as sure with tegretal at first only because I was
> not familiar with it. At first I thought while still taking Dilantin,
> at a lower dose and taking Tegretal, why not stay on those dosages. It
> was not my doctor's decision nor intent.
>
> What I'm not sure about is when is the decision made to take more than
> one medication?
>
> How long have members taken two or more typed of medications? The
> one negative effect is the strain it places on your liver or other
> organs. How do you manage that?
>
> Are there long lasting effects that raise concerns?
>
> How do you manage the medication blood levels to keep control?
>
> How do you tell when to increase one medication and not another?
>
> Any experiences you have or and guidelines from your doctors would
> help.
>
> Do you take each medication at different times during a day?
>
> If you think of other information that would help understand how this
> is a benefit and positive or negative experience please include them.
>
> What about side effects. Can the two interfere with one another and
> cause headaches or tremors? By all means if it results in months or
> years of being seizure free, that would be great however the other
> factors need to be considered especially side effects and strain on
> other parts of the body. Thanks for your support.
>
>
>
> CBI
>
>
>
>
>
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