Hi,
Since 1986 I have been on 2 or 3 meds at a time.The Doctor looks me over and then checks my seizure calendar and then we talk about meds. mostly about new meds that I have not tried. Right now I am only on carbatrol. due to an e.e.g. that I had had done in feb.It showed that with meds my seizures were being taken care of. so he took me off of topramax and keppra and left me on carbatrol.So far it is doing the job...Sometimes I have a psyduo seizure but I can talk myself out of those mostly.My age is 50yrs
I had mostly been on 2 to 3 seizure meds and I have taken them all at once 2 times a day.As far as the side effects I only had one that put me in the hosp. as an overdose...I was taking darvaset for pain after my vns was taken out. Well you DO NOT mix darvaset with tegretol or carbatrol as it makes your blood level of carbatrol or tegretol so high that it looks like you took an over dose and you see 3 to 4 to 5 person at one time and that makes you really sick to tummy. I had to shut my Eyes during that time or I would have thrown up.
The only other side effect that I had to be taken off the med. lyrica I swelled up like a balloon.
Trish (jiminycricketblue)
--- On Mon, 4/27/09, cbicook <cbicook@yahoo.
From: cbicook <cbicook@yahoo.
Subject: [epilepsy] Taking more than one medication
To: epilepsy@yahoogroup
Date: Monday, April 27, 2009, 5:35 PM
The only time I've taken more than one medication was when I switched from Dilantin to Tegretal. This was a phase out phase in approach and it worked for me, no seizures during the transition. I had been on dilantin so long that I had conficence even though it didn't completely stop my seizures. I was not as sure with tegretal at first only because I was not familiar with it. At first I thought while still taking Dilantin, at a lower dose and taking Tegretal, why not stay on those dosages. It was not my doctor's decision nor intent.
What I'm not sure about is when is the decision made to take more than one medication?
How long have members taken two or more typed of medications? The one negative effect is the strain it places on your liver or other organs. How do you manage that?
Are there long lasting effects that raise concerns?
How do you manage the medication blood levels to keep control?
How do you tell when to increase one medication and not another?
Any experiences you have or and guidelines from your doctors would help.
Do you take each medication at different times during a day?
If you think of other information that would help understand how this is a benefit and positive or negative experience please include them.
What about side effects. Can the two interfere with one another and cause headaches or tremors? By all means if it results in months or years of being seizure free, that would be great however the other factors need to be considered especially side effects and strain on other parts of the body. Thanks for your support.
CBI
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