Tuesday, October 29, 2013

Re: [epilepsy] Hello

 

Dilantin was added to my mix ( Trileptol,Topamax, Vimpat. Seems like a lot but it worked for 18 months. This summer was very stressful. Death in the family, and a move, yep... I am hoping that after this move that things simmer down. I feel ok on Dilantin, no probs.  Little forgetful ... but who isnt ?



On Sunday, October 27, 2013 11:02 AM, Susan Wain <susan.wain@yahoo.com> wrote:
 
Hi.........For those that are on Dilantic.....doesn't that give you hallucitions (as i experienced) or a sense of total confusion?

From: Millie Myers <mylmy@gogreencroft.net>
To: epilepsy@yahoogroups.com
Sent: Tuesday, September 10, 2013 12:17 AM
Subject: Re: [epilepsy] Hello
 

Hi Robert,
 
Welcome to our group.  I've had EP for  50 years. I then had 3 daughters 2,4, and 6 and a
husband who is now an ex.  I have been on Dilantin and Phenabarb for over 20 years.  My
last sz was a year ago but I had been sz free for 5 years.  My girls say my brain gets scrambled
when I have a sz.  I don't pass out anymore.  Because I hadn't taken my meds for about 3 days,
the Dr. kept me on those meds.  I'm very fortunate to not have many szs.
 
I have a 3 room plus bath apartment in a Retirement Center.  In Nov it will be 17 years that I have
been here..  The Manor I live in has 150 apts.  I love it here.  There are 1,200 residents on campus.
 
Glad you joined us.
 
Millie
 
 
 
----- Original Message -----
Sent: Monday, September 09, 2013 7:19 PM
Subject: [epilepsy] Hello

 
Hi all,

Just joined. I didn't know there was another group run by Jewl (where I have been a member for several years). I am in UK and take Tegretol, Mysoline and Clonazepam (also take extra of this to try to try to arrest cluster seizures). I went through a whole succession of AEDs trying to regain the full control I had for 12 years until 1992. Newest AED I tried during thid time was Keppra then Trileptal. I know there are now new ones out there, and these have been discussed with the neuro Prof recently. We decided I was probably best to stick with the current regime, unless things take a dive.

I should add my epilepsy started life as nocturnal only TC szrs. When control (on Phenytoin) was lost they came back as daytime CPs. These have changed several times over 20 years.

Best wishes
Robert


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