Thursday, December 2, 2010

[epilepsy] Re: Surgery

 


Thank you so much for your responses. Every bit of information helps.

Rebecca
--- In epilepsy@yahoogroups.com, Kelly Porter <kellyporter@...> wrote:
>
> Rebecca,
>
> I had a right temporal lobectomy in March 2008. First, know that
> anxiety is normal.
>
> My results have been great. Though I am not seizure free I am no longer
> having multiple seizures daily, which means I am not totally
> incapacitated. I am all aobut others being informed and ready, so I
> won't make it sound better then it was.
>
> How long you will be in the hospital depends in part on how long your
> gridding process takes. I had my grids placed on the 28th. On the 31st
> I had my grids removed and my right temporal lobe removed with them. I
> stayed in the hospital for 4 additional days. Know however, that I have
> a retired RN as a mother in law who then stayed with me 2 weeks after
> that. Do not expect to go home and be well. You will be on a lot of
> pain meds, and you will sleep a LOT. My neurosurgeon was fairly
> surprised when I was off my pain meds in 4 weeks. When you take your
> meds, take them on schedule without missing doses, this is how they are
> most effective. Don't make plans to push yourself. Take the time it
> takes to heal and don't do anything you don't feel ready for, don't let
> others force you to do things. It took about 6 weeks before I felt like
> I could cook, do dishes, things of that nature. Thankfully my in laws
> raised an amazing husband for me! If you can, get someone to stay with
> you 24/7 for the first week or two.
>
> I am always more then happy to answer any questions about the process.
> Two and half years later I am happy with my decision to have surgery!!
>
> Kelly
>
>
> Your head
>
> On 11/30/2010 5:43 PM, None unless you call me something different wrote:
> > Has anyone had the surgery? Where was your seizure activity from, temporal lobe, occipital lobe, right or left? What were your results? Positives and negatives. How long was your hospital stay? And your recovery? So many questions and I feel like no answer could be thorough enough. Thank you in advance for your help and answers.
>

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