This is very interesting Kelly, as was just doing some looking into JME, and one of the triggers that set it
off is light sensitivity, which is why it shows up on an EEG quickly. Young adults love the tv, video games,
going to dances where the lighting may affect them, the sunlight through branches of trees, even the sunlight
on the waves of ocean. Things that I had never thought of before. I definitely know I can not handle the sun
even though it is not hot out or in direct light. I gather from that the reflection is a big thing and can be
a major trigger for a seizure. There were a few other things mentioned too and it just blew my mind. Just
one more cause for me and my dizzy spells hum........
Thanks Kelly.
Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "Kelly Porter" <kellyporter@frontiernet.net>
To: <epilepsy@yahoogroups.com>
Sent: Saturday, December 04, 2010 4:17 PM
Subject: [epilepsy] Re: Seizures seeing from patterns/movements .
I finally discovered earlier this year that some of what I thought
were seizures was actually a light sensitivity issue. When you are
light sensitive certain patterns and light make you feel as if you are
moving. For example, a ceiling fan that causes light and shadow to
flicker, or vertical blinds that have stripes of dark/light because
there is space between them. What happens is your eyes can not
comprehend if these areas are flat or moving, so you fell as if you are
moving or get dizzy.
I was sent to a nuero opthomologist and based on what I told him he knew
immediately what the issue was. He prescribed glasses for me that have
a special tint on them that block certain values of light. this tint is
a specialty thing called FL 41. Regular sunglasses dont help because
they dont block the right part of the light, and other tints dont work
either because they change the intensity but dont block the part that
causes the sensitivity. At first I was skeptical, but the very first
time I put them on I knew it would work!! I actually said to my husband
"It's almost like I should have known this was the problem because
everything just looks right now". Colors were right again even, I just
didn't realize something was wrong until it was right again.
If you think light sensitivity is and issue ask your Dr. to send you to
a nuero opthomologist. not a regular one, but a nuero one.
kelly
--- In epilepsy@yahoogroups.com, "UhuraC" <sacornelius@...> wrote:
>> I do know I need to talk to my doctor so please don't just say to do that. What I am asking for is similar
>> experiences, suggestions on specific things to tell him, and things like that.
>>
>> Seeing movements or patterns seems to trigger seizures. Is there a medicine that can lessen siezures
>> specifically triggered by seeing patterns or movements?
>> You know how you blink hard/suddenly if you are in a completely dark room and the lights are turned on
>> unexpectedly? That is what the seizures in the car feel like. Or are they seizures?
>> Thanks.
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