Tristin,
I totally understand and back what your saying. Thats one reason why my daughter went through 5 differant nuerologist within 2 and half years. Now shes sees a epitologist and things are going so much better!
Elizabeth
____________
From: Tristin Seagraves <tristinspike26@
To: epilepsy@yahoogroup
Sent: Wednesday, July 1, 2009 1:00:51 PM
Subject: Re: [epilepsy] Re: Hello Everyone!
Many neurologists are extremely narrowminded. It's sometimes hard to find a good neurologist that understands that epilepsy affects everything throughout your body; from your cardiovascular system to your digestive tract and beyond. At my last appointment, my neurologist had an intern filling in for him, and get this... the intern's answer to at least two of my questions were "I don't know." :o Sometimes I think I know more about seizures than my neurologist! No one knows your body better than yourself. If your neurologist isn' t paying attention to what you're saying, then find a new neurologist. There are good ones out there. It's just a subject you have to be picky with.
Tristin :)
--- On Wed, 7/1/09, veronique <msvb19@yahoo. com> wrote:
From: veronique <msvb19@yahoo. com>
Subject: [epilepsy] Re: Hello Everyone!
To: epilepsy@yahoogroup s.com
Date: Wednesday, July 1, 2009, 11:25 AM
question I am now taking progestrone for my seizures and I am doing well. I am polycystic and going to a dr. to help with thyroid problems and problems with periods. why aren't the neurologist paying attention to this information? looks like the answer to the problem
the grand mal are controlled with tegretol but the catamenial are not controlled with topamax. the ones I see don't believe me but I see that not too many do. why.
--- In epilepsy@yahoogroup s.com, "Jewl" <fourpawz@xxxxxxxx. xxxx wrote:
>
>
> Catamenial refers to seizure activity associated with a woman's menstrual
> cycle. For more than one hundred years, the relationship between seizures
> and menstruation has been examined. Studies have shown that fluctuations in
> female hormones prior to and during menstruation may elevate seizure
> frequency in some women. In a small percentage of women, catamenial
> seizures may occur only during the days just before their periods; for
> others, during the period itself. Higher ratios of estrogen to progesterone
> may increase seizure frequency. Water retention, electrolyte imbalance, and
> even poor sleep are also contributing causes.
>
> The connection between menstruation and seizures has been demonstrated in
> women with simple partial, complex partial, and generalized tonic-clonic
> seizures. However, different types of seizures may be associated with
> different phases of a woman's menstrual cycle. For example, a women with
> absence seizures may have more seizures during days 16 to 28 of her average
> cycle and may have the least during her period. A women with partial
> seizures, on the other hand, tends to have fewer seizures during days 16 to
> 28 and more just prior to ovulation and during menstruation.
>
> Menstrual disorders, such as amenorrhea (the absence of menstruation) ,
> oligomenorrhea (a scanty menstruation) , cycles of irregular length and an
> absence of changes in cervical mucus have been reported in women with
> epilepsy, especially those who experience complex partial seizures.
>
> Mood swings, often pronounced prior to and during menstruation, may be
> further aggravated by anticonvulsant medication. If mood swings become
> problematic, it is recommended you discuss adjustments to medication with
> your physician and/or neurologist.
>
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