Yeah Tim, I see what you're saying. About a year ago, I was driven to the ER because I was having numerous seizures (complex partial and tonic clonic). I don't remember entering the hospital, but I remember being in the ER and demanding to be released! I can get really mouthy and stubborn just after a seizure. I understand that it's their job, but no one knows you better than yourself. I believe the hospital would have kept me overnight for observation, if I hadn't talked myself out of it. I remember having to explain to them that I have epilepsy and have had seizures all my life. I told the dr that I probably know more about epilepsy and seizures than he did. lol. I let them know that I was of no harm to myself and/or others. I wasn't in "status epilepticus,
Tristin :)
--- On Sun, 7/26/09, TIMOTHY BALDWIN <tbb1@prodigy.
From: TIMOTHY BALDWIN <tbb1@prodigy.
Subject: Re: [epilepsy] Need help understanding this...what do you think
To: epilepsy@yahoogroup
Date: Sunday, July 26, 2009, 2:39 AM
Hi Tristin,
Sometimes I don't know if I'm experiencing post-ictal memory loss because most seizures occur when alone and I come out of it and no one else is there. But, if a paramedic is there he might first say, "You had a seizure, GET in the ambulance." Now I don"t need to get in to an ambulance whenever I have a seizure in order for me to receive three bills for an unnecessary ride. Billed by, Fire dept. for ambo. service, Hospital, and paramedics. When if he would only ask me, Do you have diabetes? and if I answered Yes to that it would be an emergency because low blood sugar can cause seizures and death. Since I'd answer No, Afterward he should ask; Have you been diagnosed with epilepsy? If No is the answer it may be an emergency! But, I'd say Yes, and there's probably no need for a hospital visit. I'd like to ask him for a Release of Responsibility form to sign which all paramedic have but never offer to you. But after having a seizure I can't think of
the name to ask for. All they want to do is take you to the hospital so that the fire Dept can bill you if they don't, their coming there was free. Worse is if a police officer is there first, he'll ask me questions to decide if the seizure was caused by alcohol or drugs, That requires allot more memory use than just saying yes or no, he might ask, Can you tell me the name of the current president? Can you tell me what location your at? and others. And then if a paramedic arrives and you don't want to go to a hospital. the police officer may decide that, "If its not medical, it must be criminal". And then if you have medication in a pocket he'll charge you with, Possession of Drugs. The police then take them to be used as evidence and put you in a cell and if you are to take your medication you'll need to wait to be taken to a hospital, it might be 12 hrs. and your therapeutic blood level of those meds., drops straight down and takes many
weeks to get up to that point, and of course you'll likely have seizures because of this. Title two of the ADA tells police not to prevent medication from being taken by people with epilepsy, cardiac conditions etc..
Tim B.
--- On Sat, 7/25/09, Tristin Seagraves <tristinspike26@ yahoo.com> wrote:
From: Tristin Seagraves <tristinspike26@ yahoo.com>
Subject: Re: [epilepsy] Need help understanding this...what do you think
To: epilepsy@yahoogroup s.com
Date: Saturday, July 25, 2009, 8:47 PM
Sorry Rose,
Stupid computer! lol.
Yes. I can relate to your son's post-ictal confusion. When I have a seizure or cluster of seizures my confusion can last a couple of days. One time when I was post-ictal (about 24 hours after a cluster), I had to ask a family member how old I was. I really didn't know until I asked. I also experience a feeling of unreality. When I'm post-ictal, other than the confusion, my surroundings look out of place and larger than normal.
Hope this helps,
Tristin Seagraves :)
--- On Sat, 7/25/09, rosecraigkatiezack <rosecraigkatiezack @ yahoo.com> wrote:
From: rosecraigkatiezack <rosecraigkatiezack @ yahoo.com>
Subject: [epilepsy] Need help understanding this...what do you think
To: epilepsy@yahoogroup s.com
Date: Saturday, July 25, 2009, 6:31 PM
My son Zack is 14 years old. This last year he has had 2 episodes where for 12 hours he gets diorientated and totally confused. He can not do simple math tell you his age, what year it is, or remember event that happened an hour before. This does not appear to effect his large motor skills. When he goes to bed the next morning he is fine again.
We saw an nerologist who had us do an EEG....and although she is very surprised he has Epilepsy and is concerned he is having more minor
seisures at other times. We are seeing her to discuss treatment next Firday. Has anyone else ever had seizures present this way or confusion lasting afterwards this long. I am feeling a bit overwelmed and would appreciate any thoughts or advice. Thanks! Rose
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