Sunday, July 26, 2009

Re: [epilepsy] Need help understanding this...what do you think

 

This is Tim's daughter Danielle, and I have seizures eye blinkies,
complexpartials, and I used to have grandmals. Then I got a Vegas Nerve
Stimulator,or a VNS. It sends messages to the brain to stop the seizure, but
it involves minor surgery.It did give me the ability to stop a seizure if
one started just by using a strong magnet. (but if you guys did decide on
that he couldnt get an MRI it would burn up inside.One time a doctor forgot
and almost had me get one.Then I realized i couldn't.)

On Sat, Jul 25, 2009 at 11:33 PM, <mylmy@bnin.net> wrote:

>
>
> Hi Rose,
>
> Welcome to our group.
>
> Yes, I do. My last one was 2 years ago and before that 4 years.
> My daughters say my brain is scrambled for about 2 days. Then like
> you put on a light-- I am OK again. I used to have grand mal szs-
> but about 15 years ago they changed.
>
> I do not pass out but at first I act like I don't hear you. If
> I am by myself --I sleep quite a bit. Then if someone comes to
> the door -- I may have trouble understanding you. Sometime later
> I can't talk-- my brain just isn't working.
>
> I live in a Retirement Center and I have instructions out that if I
> am not acting my usual self they should call my daughters. Their
> numbers are on the back of my door but also in my hollow Medical Alert
> bracelet on my RT arm.
>
> About 6 years ago I was admitted to the hospital and had an MRI, Ultra
> Sound, CScan and an EEG. My Dr. thought I had a TIA (small stroke) --
> as far as I can see it was no different than when I had a sz. I didn't
> know that a TIA and a stroke were so much alike.
>
> When I look at the different kinds of szs it sounds kind of like complex
> partial-- only it lasts longer.
>
> Millie
>
> > My son Zack is 14 years old. This last year he has had 2 episodes where
> > for 12 hours he gets diorientated and totally confused. He can not do
> > simple math tell you his age, what year it is, or remember event that
> > happened an hour before. This does not appear to effect his large motor
> > skills. When he goes to bed the next morning he is fine again.
> > We saw an nerologist who had us do an EEG....and although she is very
> > surprised he has Epilepsy and is concerned he is having more minor
> > seisures at other times. We are seeing her to discuss treatment next
> > Firday. Has anyone else ever had seizures present this way or confusion
> > lasting afterwards this long. I am feeling a bit overwelmed and would
> > appreciate any thoughts or advice. Thanks! Rose
> >
> >
>
>
>

--
Visit My blog:
http://mensgrief.blogspot.com/
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Today the few have achieved their economic freedom at the expense of the
many. That is why our world order is tottering. Nothing can save it but a
united attempt to put the will of God into operation.

- Muriel Lester,
social reformer and pacifist (1883-1968)

< ' )))><

"To the true servant of God every place is the right place and every time is
the right time."

- Catherine of Siena,
St. Catherine of Siena as Seen in Her Letters.

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