Monday, July 27, 2009

Re: [epilepsy] Need help understanding this...what do you think- answering answer of (Tristan Segraves)

 

Yes this sounds right~but I don't even get belligerent~ they just ask if I think I need this & let me decide. Sometimes I have ability to decide + Now I ask helpers not to feel bad about repEating a concern or a code word we've agreed to right away & again in 15 minutes if they feel its important and I'm not getting it ~ that includes them knowing it's okay to ask or state when they think they see my dog alerting & I don't catch it. Many of my doctors take cues off my dog when working with me, because Shadow's never been wrong. So they ask me is shadow trying to tell us something? Thank you for your help. I am beginning to understand minute more~jenandshadow
Sent from my Verizon Wireless BlackBerry

-----Original Message-----
From: mylmy@bnin.net

Date: Mon, 27 Jul 2009 03:27:33
To: <epilepsy@yahoogroups.com>
Subject: Re: [epilepsy] Need help understanding this...what do you think-
answering answer of (Tristan Segraves)


Jenn and Shadow,

I am a person who likes to be in control but when I am told that
I am not acting my usual self -- I have learned that I need to
give in and listen to them. When I am in that state -- I do not
know what I am doing -- and I am aware that I am giving in.

After a GM and during a complex sz that for me lasts about 2 days--
I am not my usual self. I cannot make decisions -- and have no
business being belligerent about it.

But when I know I am OK again -- I let them know.

Millie




> Complex partial I heard before--about a year ago. I will be feeling
> completely normal-like one time I was going shopping with my healthcare
> worker + somehow I was so sure I didn't need my wheelchair or walker +
> against her better judgment I told her - they have carts @ FRED MEYERS.
> Half hour into the shopping she asked me to sit down for my safety and
> asked me wasn't shadow alerting. I was oblivious to all until my hips went
> out under me-
> She put me in a chair where I lay down on a table with shadow taking care
> of me + vowed to listen better to dog + others no matter how strong I feel
> So if feing like I can do it all is an Aura or warning - I need to
> know-jenandshadow
>
> Sent from my Verizon Wireless BlackBerry
>




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