Hey Tim,
It just sounds like intractable epilepsy to me (epilepsy that isn't responsive to AEDs). You should look into seizure surgery. My seizures were uncontrollable, even with high dosages of AEDs, but I've been seizure-free since my surgery 7 months ago. Surgery isn't for everyone with intractable epilepsy, but you can find out if you're a candidate.
Tristin :)
--- On Fri, 7/3/09, TIMOTHY BALDWIN <tbb1@prodigy.
From: TIMOTHY BALDWIN <tbb1@prodigy.
Subject: [epilepsy] misdiagnosed
To: epilepsy@yahoogroup
Date: Friday, July 3, 2009, 11:56 PM
I've been wondering about the cause of my uncontrollable seizures and the reason that they've never responded to the medicines which I've been prescribed over and over again. Maybe, all those meds. weren't developed for the type of seizure that I have. Has anyone wondered if they could have been misdiagnosed, and suffered from it the whole time?
Tim B. < tbb1@prodigy. net >
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