I cannot image ho that is for you. I fought for almost 7 years for my daughter. Several nights I stood and watched her have partial tonic clonic seizures. I would tell the doctors and they said it was new mommy syndrome. But I can tell you I was not the crazy one it was them. My 8 year old daughter has been on Keppra for about 2 years and we only have petia mal seizures and I do not even see most of them. She is able to let me know about them after the fact. But hers come from the back lobe in her brain. But we do not only deal with this but she has a blood vessel that is extra also. They call it an anomaly. Every day she gets up and acts almost 8 but mainly 5 or so then that is good day for all of us involved.
Have a happy 4th to all
Stacie H
--- On Fri, 7/3/09, trish schobert <jiminycricketblue@
From: trish schobert <jiminycricketblue@
Subject: Re: [epilepsy] How long did it take for your Drs to figure out what kind of seizures you have?
To: epilepsy@yahoogroup
Date: Friday, July 3, 2009, 3:45 PM
It too 18 yrs for mine I was 2 1/2 when they first noticed them now I am 50. Now I don't have epileptic siezures(meds controlling them) since Feb of this yr. I still have phuedo siezures yet but I am working on those to stop them also
Trish (jiminycricketblue)
--- On Thu, 7/2/09, Kevin <kevluvskats@ yahoo.com> wrote:
From: Kevin <kevluvskats@ yahoo.com>
Subject: [epilepsy] How long did it take for your Drs to figure out what kind of seizures you have?
To: epilepsy@yahoogroup s.com
Date: Thursday, July 2, 2009, 6:05 PM
What kind and how long to figure out exactly what medicines are the right ones for you? It took about 40 years for them to figure mine out. They were back and forth on the issue of whether mine were epileptic or psychological. The NYC Hospitals 17 of them total were of no help. Things started getting better in 1996 when Emory University Hospital in Atlanta GA reasoned that if my seizures are always at night, then they can't find out anything in the day. So they pushed aside all the previous medical records and had me stay overnight and realized what was going on. Right Temporal lobe as they said, then they gave me Keppra and Tegretol and improvement came. Then in University of Nebraska Med Ctr, with EEG video monitor, EKG, MRI and Cat Scan, they figured it started in the right temporal lobe but spread only as far as the frontal lobe. So they changed from Tegretol to Trileptal. So Keppra and Trileptal have been much better at controlling them, so now its
only about once every 2 months if I'm careful about the way I eat. Constipation always prompts one so I'm very nervous and careful about what I eat. Some Drs also claim Psychological fears also have triggered them but mostly they are epileptic and only partially psychological. Now things are okay. I don't like that it took soooooo long to get an answer but at least they know and have given me the right meds now.
Housekat / Kevin Knight
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