Hey Kevin,
Until my recent left temporal lobectomy (11-12-08), my seizures were never under control with meds. It didn't take too long for my neurologist to diagnose what kind of seizures I have, but then again, my seizures got worse, and I started having different kinds of seizures over time. I've always had partial seizures. At 9 years old, I started having tonic clonic seizures, and when I hit puberty, I started having complex partial seizures. Over the years, it's been a mixture of different kinds of seizures for me.
Happy 4th of July,
Tristin Seagraves :)
--- On Thu, 7/2/09, Kevin <kevluvskats@
From: Kevin <kevluvskats@
Subject: [epilepsy] How long did it take for your Drs to figure out what kind of seizures you have?
To: epilepsy@yahoogroup
Date: Thursday, July 2, 2009, 7:05 PM
What kind and how long to figure out exactly what medicines are the right ones for you? It took about 40 years for them to figure mine out. They were back and forth on the issue of whether mine were epileptic or psychological. The NYC Hospitals 17 of them total were of no help. Things started getting better in 1996 when Emory University Hospital in Atlanta GA reasoned that if my seizures are always at night, then they can't find out anything in the day. So they pushed aside all the previous medical records and had me stay overnight and realized what was going on. Right Temporal lobe as they said, then they gave me Keppra and Tegretol and improvement came. Then in University of Nebraska Med Ctr, with EEG video monitor, EKG, MRI and Cat Scan, they figured it started in the right temporal lobe but spread only as far as the frontal lobe. So they changed from Tegretol to Trileptal. So Keppra and Trileptal have been much better at controlling them, so now its
only about once every 2 months if I'm careful about the way I eat. Constipation always prompts one so I'm very nervous and careful about what I eat. Some Drs also claim Psychological fears also have triggered them but mostly they are epileptic and only partially psychological. Now things are okay. I don't like that it took soooooo long to get an answer but at least they know and have given me the right meds now.
Housekat / Kevin Knight
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