Kevin,
The day I had my first EEG 47 years ago they told me I had EP,
that I would be on meds the rest of my life and that I wouldn't
drive for a year. I had 3 daughters, 2, 4, and 6 plus a husband
(ex now)
I have never had many seizures and I don't remember what meds I
was on at first and my ex doesn't talk to me. I would like to ask
him some questions but anyway......
My kids were too little to know anything about the meds but they
knew when I had a sz. My ex had taught them to call him and he
always came right away. I usually fell on the floor but I woke
up in bed in the hospital or at home.
after they knew that I had EP they told us that I didn't need to
go the hospital.
My szs started when I was carrying my 2nd and 3rd daughters. Then
didn't have another until my youngest was 2.
Millie
> What kind and how long to figure out exactly what medicines are the right
> ones for you? It took about 40 years for them to figure mine out. They
> were back and forth on the issue of whether mine were epileptic or
> psychological. The NYC Hospitals 17 of them total were of no help. Things
> started getting better in 1996 when Emory University Hospital in Atlanta
> GA reasoned that if my seizures are always at night, then they can't find
> out anything in the day. So they pushed aside all the previous medical
> records and had me stay overnight and realized what was going on. Right
> Temporal lobe as they said, then they gave me Keppra and Tegretol and
> improvement came. Then in University of Nebraska Med Ctr, with EEG video
> monitor, EKG, MRI and Cat Scan, they figured it started in the right
> temporal lobe but spread only as far as the frontal lobe. So they changed
> from Tegretol to Trileptal. So Keppra and Trileptal have been much better
> at controlling them, so now its only about once every 2 months if I'm
> careful about the way I eat. Constipation always prompts one so I'm very
> nervous and careful about what I eat. Some Drs also claim Psychological
> fears also have triggered them but mostly they are epileptic and only
> partially psychological. Now things are okay. I don't like that it took
> soooooo long to get an answer but at least they know and have given me the
> right meds now.
>
> Housekat / Kevin Knight
>
>
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