Tuesday, July 28, 2009

Re: [epilepsy] Hi all. Newbie here!

 

Hi
I started having my Grand Mal at 13 or so and am now in just in my 60's so YES you will still be here at 50
(smile) And NO we don't mind you rambling on at all, not one little bit.
What you can do with your son to explain to him what is going on, sit down on the floor with him and tell him
in the simplest way possible how you sometimes get so dizzy and black out and afterwards you may not be able
to remember anything. You can also tell him mommy isn't hurting while doing that but may have a bad headache
after and have to sleep for a bit. Tell him the dr is going to give mommy some medicine that hopefully will
help so you don't do that so often. Make sure he knows that if he can get a pillow and put it under your head
so you don't hurt yourself.
You say you were already 'out of work when these seizures started happening'....did you get layed off because
of this economy right now? The stress of just that alone could of been enough to start them possibly. Stress
is a big factor and can be a trigger for a seizure.
Take care and try to stay calm
Best of luck to you and ask lots and learn is the best way.
Above all keep smiling!!
Julie

Julie Hope
epilepsyhealth@sasktel.net
http://www.2betrhealth.com
----- Original Message -----
From: "itsme_imhere85" <itsme_imhere85@yahoo.com>
To: <epilepsy@yahoogroups.com>
Sent: Tuesday, July 28, 2009 10:01 AM
Subject: [epilepsy] Hi all. Newbie here!

Hi all
I'm pretty new to all this I only found out recently that i have epilepsy. After suffering two seizures. I
don't no all the details of names etc yet as im still waiting on my mri and eeg tests.
Both times i have had my fits i have felt funny for around half an hour before and
suffered mini seizures at this point (one time i was in a taxi and when i realised what was going on i was
highly embarrassed)!
Then the main seizure will come and last 2-3 minutes, afterwards i have no memory of
anything including who my partner is or my sons name, and i feel like crap for a couple of days.

I also had to have my thyroid removed and they just cant seem to get my levels level! which is a pain and has
caused me depression too.

I can deal with all these things, but what does worry me is that the 2nd seizure i had, It was my little boy
who found me on the bathroom floor, and that really upset me because he's only 3 and it must have scared the
crap out of him.
I have also applied for DLA, but am not sure what to expect bk from them? I was
already out of work when these fits started happening because i have to care for my partner who was in a bad
motorbike accident which has left him with no use in his left arm and shoulder and he's in constant agony.

I hope no one minds me rambling on but no one else i know has any problems like this, and
im starting to think if i have this many problems by 23 what will i be like at 50 or will i even be here???

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