--- In epilepsy@yahoogroup
>
> Hi Tristin,
> When I was born the drs were saying that I had petit mal seizures and they were thinking I will grow out of it by the time I reach 15 years old, but instead it turned to Partial Complex, then one Dr said, I doubt that you will grow out of this you will most likely be on medication the rest of your life. So it was then that I realized I will have to deal with this forever. I just don't feel too bad since my Nephew who is now about 22 has the same kind of seizures, and my neice who is now dead because her seizure caused her to suffocate, she too was born with epilepsy. Seems like it runs through the family. I was just the first one in the family that everyone was aware of.
>
> Two things give me much hope though. In reading the bible two translations have it in Matthew 17:15 (NKJV) Lord have mercy on my son, for he is an epileptic...
> Jesus did heal that boy. So I have shiften much attention into bible study and have taken ministry very strongly. Just the thought that "Jesus healed an Epileptic" says to me that my problem is not something God can't handle.
>
> That keeps me in good spirits most of the time. Back then I thought I had some rare disease or something and I am very surprised at the number of persons at present who have epilepsy.
>
> Housekat / Kevin Knight
>
>
>
> --- In epilepsy@yahoogroup
> >
> > Hey Kevin,
> > Until my recent left temporal lobectomy (11-12-08), my seizures were never under control with meds. It didn't take too long for my neurologist to diagnose what kind of seizures I have, but then again, my seizures got worse, and I started having different kinds of seizures over time. I've always had partial seizures. At 9 years old, I started having tonic clonic seizures, and when I hit puberty, I started having complex partial seizures. Over the years, it's been a mixture of different kinds of seizures for me.
> >
> > Happy 4th of July,
> > Tristin Seagraves :)
> >
> > --- On Thu, 7/2/09, Kevin <kevluvskats@
> >
> >
> > From: Kevin <kevluvskats@
> > Subject: [epilepsy] How long did it take for your Drs to figure out what kind of seizures you have?
> > To: epilepsy@yahoogroup
> > Date: Thursday, July 2, 2009, 7:05 PM
> >
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> > What kind and how long to figure out exactly what medicines are the right ones for you? It took about 40 years for them to figure mine out. They were back and forth on the issue of whether mine were epileptic or psychological. The NYC Hospitals 17 of them total were of no help. Things started getting better in 1996 when Emory University Hospital in Atlanta GA reasoned that if my seizures are always at night, then they can't find out anything in the day. So they pushed aside all the previous medical records and had me stay overnight and realized what was going on. Right Temporal lobe as they said, then they gave me Keppra and Tegretol and improvement came. Then in University of Nebraska Med Ctr, with EEG video monitor, EKG, MRI and Cat Scan, they figured it started in the right temporal lobe but spread only as far as the frontal lobe. So they changed from Tegretol to Trileptal. So Keppra and Trileptal have been much better at controlling them, so now its
> > only about once every 2 months if I'm careful about the way I eat. Constipation always prompts one so I'm very nervous and careful about what I eat. Some Drs also claim Psychological fears also have triggered them but mostly they are epileptic and only partially psychological. Now things are okay. I don't like that it took soooooo long to get an answer but at least they know and have given me the right meds now.
> >
> > Housekat / Kevin Knight
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> > [Non-text portions of this message have been removed]
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