Thanks, Jamie! I checked with my insurance as you suggested - they should cover
90% of my 24 hour ambulatory EEG. What a patient daughter you must have to be
video taped and all hooked up for 6 days.
Wendy
________________________________
From: Jamie <cnmjmaloney@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Tue, November 16, 2010 8:32:02 PM
Subject: [epilepsy] Re: Ambulatory EEG
Wendy, I don't know what kind of insurance you have.....you might want to find
out what your cost would be. Me then 8 year-old had a 6 day one and our cost was
almost 2K. We have a PPO. We video taped her while she slep too and he said
that was VERY helpful. I pushed the button when I thought I saw one. The Dr
watched the video and confirmed 6 seizures but the EEG showed no sign. SHe
something to be aware of. Pros and COns to both. My daughters dr is always
wanted to give her more tests but we have said no at least twice to more EEGS.
Good Luck :) I hope you get answers to your questions.
Sincerly,
Jamie (Megan's mom age 9)
--- In epilepsy@yahoogroups.com, wendy d <wdeb5@...> wrote:
>
> Thanks, Elizabeth, Millie and Tim. I've emailed the doctor to see what she
>wants
>
> to do, and I think it is definitely worth a shot. I will let you know what
> happens!
>
> Wendy
>
>
>
>
>
> ________________________________
> From: TIMOTHY BALDWIN <tbb1@...>
> To: epilepsy@yahoogroups.com
> Sent: Mon, November 15, 2010 9:35:50 AM
> Subject: Re: [epilepsy] Ambulatory EEG
>
>
> Wendy,
> Don't miss out,it could show some seizures that you don't have any idea
>of.After
>
>
> its over you'll probably be asked;How many seizures did you have while being
> recorded?You might say four,sixteen or none.The doctor will look at records and
>
> find out see how many epileptic seizures you had.If you told him four or
>another
>
>
> amount,but none are found.He might decide that they were probably weren't due
>to
>
>
> epilepsy.If you said none,and he finds that you had some could've been very
> quick or all happened while sleeping.It's very important to know of the fact
> that you could be having more than you know of.Say if you were driving and had
>a
>
>
> very quick seizure happened in .3 of a second,and only caused you to blink your
>
> eyes shut,while in or about to make a turn as the road does,it's likely you
> might go straight into a tree without turning.If in a turn you could not
> continue to turn and run off the road or crash into a car next to you.It only
> takes a tenth of a second to cause you to crash and wonder what caused this.If
> some epileptic seizures are long enough for many to notice,maybe you could've
> been sitting down,w/o a witness to tell you of having one.
> Tim Baldwin
>
> ________________________________
> From: wendy d <wdeb5@...>
> To: epilepsy@yahoogroups.com
> Sent: Sun, November 14, 2010 4:48:29 PM
> Subject: [epilepsy] Ambulatory EEG
>
>
> Hello,
>
> My simple partial seizures are changing a little bit, and my doctor suggested
>an
>
>
>
> ambulatory (at home) EEG for 24-48 hours to try to find out which area of the
> brain is affected. During this outpatient procedure, I am told I will press the
>
> "event" button when I feel a seizure. I believe I have had seizures during
> previous EEGs that did not show up. The large majority of my EEGs, including
> overnights, are completely normal. Would there be any benefit to doing the
> ambulatory EEG is my seizures may not show up on the recording? I'd guess there
>
> is a chance something might show up if I am having more intense seizures, but
> there is also a high probability that nothing will show up at all. Could there
> be a chance that something will show up even when it hasn't before, or should I
>
> just skip it? Thanks!!
>
> Wendy
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
[Non-text portions of this message have been removed]
No comments:
Post a Comment