Tim,
I think you told us that you work in DC but live in Maryland.
What kind of work do you do? How long do you have to
travel to get to your work?
Do you now label your container for EP pills? How many
times has this happened to you?
Millie
----- Original Message -----
From: TIMOTHY BALDWIN
To: epilepsy@yahoogroups.com
Sent: Sunday, November 28, 2010 12:00 AM
Subject: Re: [epilepsy] Local Family Shining Light on Epilepsy Awareness
Elizabeth,Jewl and millions of others,
I've never voted because I've spent too much time taking medicines.I was a third
of a mile from the US Capital building,inside Union Station(train station) when
I had a seizure,Amtrak Police confused their first radio message which was
totally correct."Man having seizure on platform between tracks 13&14".
Then after I became barely conscious and a person waiting on a low platform next
to track 15 that is no higher than the tracks the train runs on.Walked over
tracks 15&14,then looked up to said,"Someone will be there to help in a few
seconds."Amtrak Police were there,
After I denied to travel with a paramedic to a hospital,Amtrak said as the
paramedic left,"If it's not medical it must be criminal".
On 6/18/92 the METRO section of Washington Post,the story starts,"Md. Man's
Nightmare Began After Seizure".
Amtrak Police decided to have me transported to St. Elizabeth Hospital for a
psychiatric examination.Because Amtrak Police confused me and the other person
to being just me.Another radio message,"Man on track 14, train approaching".They
thick I attempted to commit suicide by jumping off a high platform in front of
an oncoming train and jumped right back up.I explained and showed that my right
ACL(anterior cruciate ligament)was just reconstructed.Why and how could I jump
like that?
DC Metropolitan Police assisted because Amtrak Police don't have the ability to
go off of track and station area.I had a seizure when getting into the back seat
of police car.DC's Metropolitan Police took me to another hospital just to find
out if blood showed medicine in it.Police never asked if I wanted to contact an
attorney,because they say,"We never put him under arrest."What was it?Amtrak and
the District of Columbia both settled in federal court.
Years later,I had seizure at Farragut North,a DC Metro station,a DC Metropolitan
Policeman happened to be there and responded to the seizure.I just off a subway
train onto the platform inside.The police person wanted to find the cause of
seizure and after he didn't smell any alcohol,I was patted down to find out if
it was caused by drug use.He found me to have pills that weren't in a marked
prescription bottle.He then arrested me for Possession of Drugs.I had six pills
of medicine for a dose in two hours.ADA,title II tells police are to provide
water to people with Epilepsy in order to take medicine!When I asked for water
to take medicine,while locked behind bars,the police said,"Since there is no
doctor on the premises,all of your drugs are being held as Police Evidence,and
that can't be touched.
you can find one in a hospital".I thought,How can I just go anywhere when I'm
locked up?I knew what was happening to the therapeutic level of my medicine as
it got past its half life.It drops straight down like the stock market,it raises
very slowly.Police took me to a hospital 13hours after a dose was due.The doctor
gave my medicine,and told them to release me.At police station,I was told to
come back tomorrow for any possessions.I returned and had a seizure that was
caused by the blood level of medicine being lower than therapeutic,an ambulance
took me back to the same hospital.
The police skip by the ADA,by saying,He didn't have any medicine to have water
with.
The DC Metropolitan Police are better than those here in Baltimore. MD.
Maybe,I and allot of people with epilepsy would love and vote for whoever began
a search for a cure of seizures.
Timothy Baldwin
: Elizabeth Quinn <equinn76@earthlink.net>
To: epilepsy@yahoogroups.com
Sent: Fri, November 26, 2010 8:06:44 PM
Subject: Re: [epilepsy] Local Family Shining Light on Epilepsy Awareness
I'm sure he's aware of epilepsy, as his White House Senior Advisor's son has
severe epilepsy. It would be great if he could do this though!
elizabeth
----- Original Message -----
From: Jewl
To: epilepsy@yahoogroups.com
Sent: Friday, November 26, 2010 5:50 PM
Subject: [epilepsy] Local Family Shining Light on Epilepsy Awareness
Local Family Shining Light on Epilepsy Awareness
The White House could go purple if a message from southern Colorado reaches the
right ears. It's one that millions of Americans share: a push to cure epilepsy,
starting by bringing attention to the brain disorder.
The White House could go purple if a message from southern Colorado reaches the
right ears. It's one that millions of Americans share: a push to cure epilepsy,
starting by bringing attention to the brain disorder.
There is a purple ribbon tied around a tree in front of the Jackson family home
in Colorado Springs. It's for a little guy named Zaki.
"At Zaki's worst, he would have hundreds of seizures every day," said his
mother, Heather.
Zaki's epilepsy first appeared when he was four months old, making a life less
than ordinary for his family.
"You can't do anything but care for that, so obviously it's turned our life
pretty much upside down."
One of his care-givers is a service dog named Rajah. Zaki also takes large doses
of medicine to treat his symptoms, one of which doesn't allow him to sweat,
according to Heather. She believes the most difficult part is that Zaki and
others with the same deadly condition often suffer silently.
"There's this stigma with having epilepsy so people don't talk about it," she
said. "People aren't aware that November is epilepsy awareness month."
Heather's made it one of her missions to get the conversation started. At home
she starts by wearing purple, the symbolic color of epilepsy awareness. On a
larger scale, she's lobbying the White House to go purple the same way it went
pink for breast cancer awareness.
"March 26th [2011] is the goal," said Heather.
So far, nearly four thousand Facebook followers support her cause which she
hopes will catch the attention of Capitol Hill.
"There's not really anyone to champion the cause, so hopefully, someone will
step up."
In the meantime, Zaki continues his own fight. His seizures, which still worry
Heather, have slowed down which she considers a small step toward a brighter
future for Zaki and millions of others like him.
"If you care today, there could be a cure tomorrow," she said.
Follow their efforts on Facebook by clicking the link below.
http://www.facebook.com/turnthewhitehousepurple
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