Sunday, November 21, 2010

Re: [epilepsy] Re: Ambulatory EEG

 

What an interesting story, Steve. That's how the kids do it at the hospital
where I used to volunteer - plugged in to the outlet in their room and then they
carry it all to the playroom and plug it in there. thanks :)

Wendy

________________________________
From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Tue, November 16, 2010 8:58:19 AM
Subject: [epilepsy] Re: Ambulatory EEG

Hi Wendy,

Years and years ago I had a 48 hour EEG at home. My hair was hooked up like a
usual EEG with a think cord coming from my head with all the wires. That
connected to a cord with maybe a 10 foot cord which went to a unit the size of a
toaster oven which was placed by a near by outlet and plugged in. I was able to
walk all around doing whatever I liked. If I wanted to go upstairs or down, I
simply picked up the unit and repluged it to another near by outlet. The extra
unit attached to my waste I was able to use if I did things outside the house
and felt a seizure coming. I never feel aura's so never used it. My Dr. told
me to go bicycling, play tennis with the attachment on. I didn't do it but did
do anything I wanted in the house but taking a shower. It was funny being on
the computer, posting in the group saying I was having a EEG now. The EEG
didn't show anything new for me but did give the Dr. an oppertunity to track me
for 48 hours rather than 1 hour in the usual way. Also allot cheaper than a
VEEG in the hospital. And remember, you are up and about doing things that
might trigger a seizure or simply more electrical activity! I would go for it
if I was you. Take care, keep a smile on your face!

Steve

--- In epilepsy@yahoogroups.com, wendy d <wdeb5@...> wrote:
>
> Hello,
>
> My simple partial seizures are changing a little bit, and my doctor suggested
>an
>
> ambulatory (at home) EEG for 24-48 hours to try to find out which area of the
> brain is affected. During this outpatient procedure, I am told I will press the
>
> "event" button when I feel a seizure. I believe I have had seizures during
> previous EEGs that did not show up. The large majority of my EEGs, including
> overnights, are completely normal. Would there be any benefit to doing the
> ambulatory EEG is my seizures may not show up on the recording? I'd guess there
>
> is a chance something might show up if I am having more intense seizures, but
> there is also a high probability that nothing will show up at all. Could there

> be a chance that something will show up even when it hasn't before, or should I
>
> just skip it? Thanks!!
>
> Wendy
>
>
>
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]

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