My seizures are complex partials and they were from a head injury when I was
a baby. That was about 40 years ago. Stress seems to make my seizures worse,
when I get worried about something, that is when I have most of mine right
now.Except for when I went through the surgery 6 years ago, which they where
controlled for a few months, mine have never been controlled completely.I
have fewer now than I did before the surgery.Lamictal is the only medicine
that caused a rash for me and had to be changed.Some of the medicines they
give for seizures they give for pain too, Keppra is one of them. I take it
for seizures, and a friend of mine gets it for pain. I hope this helps. Take
care.
Tammy
On Tue, Nov 30, 2010 at 10:32 AM, imbeez <imbeez@comcast.net> wrote:
>
>
> Hi! My name is Barbara.
>
> My 28 yr old niece was recently diagnosed with generalized epilepsy.
>
> Her symptoms are myclonic jerks and passing out.
> She has problems sleeping.
>
> First they put her on Lamictal which gave her meningitis symptoms.
>
> They changed it to Keppra, but she still had the jerks/seizures.
>
> It was changed to Depakote last week, which made her itchy and gain weight
> but the epilepsy symptoms stopped.
>
> My niece had Hodgkin's Lymphoma in the past and itchiness was a major
> symptom, so it is a concern and the doctor changed the medication.
>
> Now she is back to Keppra 1,000mg twice a day and Topamax 25mg which will
> increase slowly.
>
> This is all happened in the last 3 months.
>
> My questions are:
>
> How long after taking medication does it take not to have seizures/black
> outs?
>
> Has anyone ever had problems with itching on any of the medications?
>
> Does medication control it or just lessen the episodes?
>
> Does anyone ever get well and get off medication?
>
> She also has fibromyalgia from the trauma of stem cell transplant for
> Lymphoma.
> Is there any correlation with this and epilepsy?
>
> I know everyone is different, but I would appreciate any information.
> I have been researching online, but I find it better to talk to people
> going
> through this.
> They seem to have the most knowledge.
>
> I am trying to prepare for her doctor visit on Friday.
>
> Thanks for listening and would appreciate any help you could give me.
> Barbara
>
> [Non-text portions of this message have been removed]
>
>
>
[Non-text portions of this message have been removed]
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