Friday, February 27, 2009

Re: Re: [epilepsy] When to tell/ Kim

Melissa,
I agree that the ADA offers some legal support on the job against
discrimination, but there are many
employers who find ways around it. Telling them up front about epilepsy may
just give them the
opportunity to find some other reason not to hire an individual with
seizures.
-Tim Heller

On Fri, Feb 27, 2009 at 12:35 AM, Melissa Cannon <mel_a_can@yahoo.com>wrote:

> Just a note to anyone worried about working, epilepsy is covered under
> the Americans with Disibilities Act. Employers can not descriminate because
> of it. I am a restaurant manager. All of my upper mgmt know i have EP. They
> have to accomadate.
>
> ----------
> Sent from AT&T's Wireless network using Mobile Email
>
>
> ------Original Message------
> From: Tim H <deacon500@gmail.com <deacon500%40gmail.com>>
> To: <epilepsy@yahoogroups.com <epilepsy%40yahoogroups.com>>
> Date: Thu, Feb 26, 2009 10:13 PM
> Subject: Re: [epilepsy] When to tell/ Kim
>
> Kim,
>
> Your son 's story is sad already at 16. Same for my 22 year daughter
> Danielle. Epilepsy is treated like the plague by employers, school systems
> and the like. I still find fundamentalist who believe its associated with
> demon possession.
>
> My first reaction to the school's decision to kick your son out of those
> classes is to consult a lawyer. May be you can fight it.If fighting it
> doesn't work, I think under the same circumstances I would seriously
> consider signing a waiver letting the school out of liability if something
> were to happen while your son is participating in those classes. Like you
> say its the only thing keeping him in school. The point is his seizures are
> controlled with meds. There does not need to be excessive worry from the
> school's position about him having seizures.
>
> When Danielle was in elementary and high school we had the staff of local
> office of the Epilepsy Council inservice teachers on ep. I remember one of
> those meetings when the teacher's union rep attended and complained about
> possible (never happened) having to activate Danielle's VNS by taking the
> magnet out of her purse and waving it over (not actually touching) the area
> of the VNS on her chest. The Council staff and I said almost at the same
> time- would you (teachers) rather be responsible for doing CPR if she were
> not to come out of a seizure or waive a magnet over her chest?
>
> I probably see working in fast food restaurants around immediate dangers
> like fryers, grills to be a different matter. Maybe he can work at the
> counter away from the actually cooking areas. Although if your son is
> working in a grocery store I don't really see the need to tell them at all.
> If he has a seizure, he has a seizure. A lot of those jobs have to do with
> the abiliy to keep up with every one's else productivity level, e.g.
> bagging
> groceries, stocking shelves.
>
> I have been accused of being way over protective in the past. This approach
> may have kept Danielle "safe" but she has missed out on life because of my
> attitude. She has SSI and Medicaid and wants to work but no one will
> seriously consider hiring her.
> She has been working with voc rehab for over 1 1/2 years and they still
> have
> not found her a paying job of any kind. She volunteers in a food pantry 3x
> a week and spends $10.50 per day to get there (about 8 miles 1 way). She
> helps people with groceries and clothing..
>
> One of my best guy friends, age 48, has Ep mostly night time grand mal
> seizures. He is able to drive a car. He rarely tells his employer before
> or during employment he has Ep. No one would ever hire him. Most people he
> works with don't know he has Ep. Over the years, he probably has 1-2
> absence seizures at work. He can almost always tell they are going to
> happen and calls his wife who can talk him out of it. He has mostly desk
> jobs. Until recently he worked in a large national grocery chain part- time
> and while working a full time job. He now works f/t as a financial
> counselor
> for a medical provider.
>
> There is my .02 cents for what its worth.
>
> -Tim Heller
> Dani's Dad
>
> Kim,
>
> Your son 's story is sad already at 16. Same for my 22 year daughter
> Danielle. Ep
> On Thu, Feb 26, 2009 at 6:33 AM, Kay Dennis <kay_lynn_47@yahoo.com<kay_lynn_47%40yahoo.com>>
> wrote:
>
> >
> > Hi I am new here and have a question. My son is 16 years old and has
> >
> > been seizure free for one year except for last month when he had one
> >
> > due to not taking meds. He is presently looking for work at the
> >
> > normal teen places, fast food, retail, etc. Should he tell them about
> >
> > his epilepsy?
> > Also just found out today the school wants to kick him out of shop
> >
> > class and mechanics class due to his epilepsy - these being the only
> >
> > two classes that are probably keeping him in school any advice?
> >
> > Thanks
> >
> > Kim
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
>
> --
> My new blog 6/08 :
> http://mensgrief.blogspot.com/
> "The mystery of God hugs you in its all-encompassing arms."-
> - Hildegard of BingenIn
>
> Suspense
> "Only God can say what this new spirit gradually forming within you will
> be.
> Give God the benefit of believing that God�s hand is leading you and accept
> the anxiety of feeling yourself in suspense and incomplete."
> Teilhard De Chardin, SJ
>
> [Non-text portions of this message have been removed]
>
> ------------------------------------
>
> Just a friendly reminder: Please remember to sign your post and remember to
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--
My new blog 6/08 :
http://mensgrief.blogspot.com/
"The mystery of God hugs you in its all-encompassing arms."-
- Hildegard of BingenIn

Suspense
"Only God can say what this new spirit gradually forming within you will be.
Give God the benefit of believing that God's hand is leading you and accept
the anxiety of feeling yourself in suspense and incomplete."
Teilhard De Chardin, SJ

[Non-text portions of this message have been removed]

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