Thursday, February 26, 2009

Re: [epilepsy] Hi people. I think I may have joined the wrong group.

Thanks Carla :)

--- On Thu, 2/26/09, Carla Mcdonald <carlamcdonald@ymail.com> wrote:

> From: Carla Mcdonald <carlamcdonald@ymail.com>
> Subject: Re: [epilepsy] Hi people. I think I may have joined the wrong group.
> To: epilepsy@yahoogroups.com
> Date: Thursday, February 26, 2009, 11:09 PM
> Jon I'm so sorry you are going through such hard
> times..have you tried to sit down and explain to your wife
> what you are feeling? Well, there are some very nice people
> on this site and  just bet they will be able to help you..I
> don't have siezures but my dear friend does. You see I
> joined this group so I could understand better. That I can
> be more help and understanding....Carla
>
> --- On Fri, 2/27/09, gwynny1165@sbcglobal.net
> <gwynny1165@sbcglobal.net> wrote:
>
> From: gwynny1165@sbcglobal.net
> <gwynny1165@sbcglobal.net>
> Subject: [epilepsy] Hi people. I think I may have joined
> the wrong group.
> To: epilepsy@yahoogroups.com
> Date: Friday, February 27, 2009, 6:44 AM
>
>
>
>
>
>
> My name is Jon. I started having seizures 3 years ago (have
> to ask my wife because I forget
> information) . I'm 43 now and have no childhood record
> of seizures. My first seizure was a
> grand mal in the middle of the night. I ended up throwing
> myself from the bed onto the floor
> between the wall and bed. When the EMTs arrived I was still
> seizing. I've been on Dilantin
> since that day. The grand mal's have mostly subsided
> and have been replaced by absence
> type seizures. This of course happens mostly when I forget
> to take one 100mg pill on time
> (6am, 2pm, 10pm). Every MRI I've had come up clear. No
> tumors or abnormaliies. This last
> seizure I had was on my wifes and I's way home from the
> movies one night (I asked her to
> drive cuz I was feeling "seizurely" and dammit it
> I really wanted to see "Taken" and remember
> it! dammit!) anyway, the doctors took blood and noticed my
> potassium level was REALLY low.
> Has anyone else had this side effect with Dilantin?
> The doctors seem to think that the fact that I've been
> in 2 auto accidents that I ended up
> cracking the windshield with my head and one moped accident
> where I opened the ground
> with the same head, are a cause of the seizures. (scar
> tissue, calcium buildup etc.) but nothin
> shows up on the MRI.
> Anyway, is this where I belong? Does anyone else suffer
> from adult onset seizures? I feel so
> alone sometimes. My wife is here for me but she doesnt know
> what I go through. The loss of
> appetite after a seizure, the strange taste in my mouth.
> The loss of all control. I have to stop,
> I'll make myself cry again.
>
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> [Non-text portions of this message have been removed]

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